Uncategorized

Leading my Limits

Hannah

When I opened my arms wide to welcome in a community that would keep us afloat on the days we need it, and hold us up on the days we are too frail, I also opened my arms to a whole range of perspectives, experiences, and opinions. It stands to reason that with so many different brush strokes making up my tribe, there will sometimes be tension when considering my situation.

I am a terminally ill young(ish) mom, wife, medical professional, friend, and relative with an awful lot of people who care deeply about me and want the best for me. And each of those “best wishes” is shaped by that person’s own knowledge, fears, and life experiences. I’m genuinely grateful for that—it means no stone is left unturned, no possibility ignored, no concern left unspoken. That kind of care is a gift.

But if I’m honest, it can also be a lot to carry.

I have been offered the full spectrum of doctors’ names and specialties, an impressive number of healing stories shared from personal experience, and a wide array of remedies that are “sure to help”—from expensive teas and elaborate oils to unconventional rituals and everything in between. Each suggestion is given with love. I know that. I feel that.

And still… it can be overwhelming.

Because underneath all of it is an unspoken assumption: that I might not be doing enough, considering enough, or protecting myself well enough.

The truth is, I am living inside this body every single day. I am the one weighing the risks, measuring the energy costs, and deciding what is worth it and what is not. I am constantly calculating—what will give me more life, and what will simply take more from me.

I need the space to do that.

I need the freedom to say, “Thank you, but no,” without feeling like I am letting someone down or missing something critical. I need permission—not from others, but from myself—to trust my own judgment.

Because I am not passive in this. I am not unaware. I am not neglecting my care.

I am choosing, very intentionally, how I spend what I have.

Sometimes that will look like pursuing treatment. Sometimes it will look like resting. Sometimes it will look like saying yes to something that feels worth the risk, and other times it will look like protecting my peace at all costs.

All of those choices are valid.

So if you are someone who loves me—and I know you are—please hear this gently: your care means everything to me. Your suggestions come from a place of compassion, and I don’t take that lightly.

But the most supportive thing you can offer me is trust.

Trust that I am listening.

Trust that I am thinking.

Trust that I am choosing with both wisdom and intention.

And trust that I know, better than anyone else, what my body and my life require in this season.

Walk with me. Sit with me. Pray for me. Laugh with me.

But please, let me lead when it comes to my own limits.

suffering

Life in the Margins

Hannah

Someone recently asked me what my favorite tangible thing is. It gave me pause, because I don’t think I’ve stopped to wonder over that question, but the answer was clear. My pink journaling Bible.

It’s hard to explain, but my pink art journaling Bible isn’t just a book to me—it’s the place where my life with God has actually taken shape in a visible, tangible way.

Every page holds more than printed words. It holds prayers I’ve prayed when I didn’t have the strength to say them out loud. It holds questions I’ve wrestled through, verses that steadied me, and moments where something finally “clicked” and I knew God was speaking to me personally. The notes, the colors, the artwork—they’re not decoration. They’re a record of relationship.

Over time, it’s become a kind of memorial. I can flip back and see where I was struggling, where I was growing, and how God met me in those exact places. It reminds me that He’s been faithful, not just in general, but to me—specifically, consistently, and patiently.

It’s also one of the few places where I’ve been completely honest. No performance, no editing—just me showing up as I am. That makes it deeply personal in a way that’s hard to replicate anywhere else.

So when I say it’s my favorite tangible object, it’s not about the Bible itself being pink or artistic—it’s because it carries the history of my walk with God. It’s worn in all the right ways. It’s lived in. And it reminds me who He is, and who I am in Him.

Multiple System Atrophy

Losing Vision, Finding my Offering

Hannah

If you watched my video this week about getting new glasses, you probably noticed the lighthearted tone. I try to keep humor woven into my videos because the goal is education and awareness about Multiple System Atrophy (MSA)—not to make people feel sorry for me.

But the truth is, this latest change has felt a little heavier than humorous.

It started when I noticed my vision had gotten blurry very quickly. I wondered if it might be a side effect of one of my medications, or maybe my slight glasses prescription just needed updating. When I went in for an eye exam, I learned it was neither.

The reason for the vision problems was that my disease has weakened the muscles that control my eyes. The blurriness I was experiencing wasn’t actually blur at all—it was double vision.

The doctor who saw me that day was incredibly kind and compassionate. I could tell he genuinely cared about what I was facing and wanted the best outcome possible for me. I sat there staring into the giant robot-looking machine while he dialed lens after lens into place, trying to make the prescription strong enough to correct my sight.

It got better.

The two birthday candles that started several hand widths apart slowly moved closer and closer together.

But even at the strongest setting… they never merged into one.

I left the office with a pair of thick bifocal glasses and the unsettling feeling that the rug had just been pulled out from under me. This development hadn’t even been on my radar. And the truth is, even with the new glasses there is still a lot that has been lost in terms of what I can see clearly—and that affects what I can do.

At first it was a discouraging blow.

My Etsy business could be affected. My art might be harder. My writing could become more difficult. I found myself wondering a question that probably sits quietly in many of our hearts at one time or another:

What do I have to offer now?

When our abilities begin to shrink, it’s easy to feel like our usefulness is shrinking too. Our culture trains us to believe that our value lies in our productivity, our skills, our accomplishments, and the things we create.

But the longer I walk this road, the more I realize something important:

God has never asked me to offer Him my abilities. He has always asked for my heart.

In the Old Testament sacrificial system, people brought offerings to the altar—animals, grain, oil, wine. But even then, God repeatedly reminded His people that the physical offering wasn’t the thing He truly desired.

He wanted their hearts.

Scripture says that “a broken and contrite heart… you will not despise.” (Psalm 51:17)

In other words, the offering God values most is not what we produce, but who we surrender.

That realization has been quietly reshaping the way I think about loss.

If my art becomes harder… I can still love people.

If my business slows down… I can still encourage someone.

If my vision fades further… my heart can still belong completely to God.

None of those things require perfect eyesight, steady hands, or impressive talent.

They simply require willingness.

So maybe the question isn’t “What do I still have to offer?”

Maybe the real question is:

“Am I willing to place my heart on the altar?”

Because that offering never becomes obsolete.

It never weakens with disease.

It never diminishes with age or limitation.

And it is the one offering God has always wanted most.

So if your abilities feel smaller than they used to… if illness, loss, or circumstances have taken things from you that you once used to serve others or serve God… take heart.

Your most valuable offering has never been your strength.

It has always been you.

Uncategorized

15

Hannah

Today you would be fifteen.

Fifteen feels big. It feels loud and bright and full of opinions and music and friends and late nights in the kitchen. Fifteen feels like learning to drive soon. Like strong emotions and stronger convictions. Like figuring out who you are. And that precious part of mother/daughter relationships where you become friends who enjoy each other’s company.

And I don’t get to know who you would have been.

That’s the ache.

I don’t know if you would have loved sports or books. I don’t know if you would have been bold or quiet, stubborn or soft. I don’t know what your laugh would sound like as a teenager, or what kind of friends you would choose, or whether you would roll your eyes at me when I tried to hug you in front of them.

There is a particular grief in the unknown.

When you died at nearly 5 months old, I grieved the baby in my arms. But as the years pass, I grieve the girl you never got to become. The birthdays that don’t come with cakes. The school pictures that were never taken. The conversations we will never have on this side of heaven.

And yet — this is not a hopeless day.

Because while I don’t know who you would have been here, I know exactly where you are.

You are not frozen at four months old. You are not missing out. You are not wandering or waiting or wishing for what might have been.

You are fully alive in the presence of Jesus.

You are safe. Whole. Held.

There is a security in that. A steadying under the ache. My arms were only meant to hold you for a short time. His were always meant to hold you forever.

Sometimes people ask how I reconcile the grief with the faith. The truth is, I don’t reconcile it. I carry both. I carry the longing to see your face at fifteen, and I carry the unshakable hope that the first face you see every day is the face of our Lord.

Scripture tells us that to be absent from the body is to be present with Him. That promise has been an anchor for me. Not a cliché. Not a platitude. An anchor.

I still wonder about you. I still imagine you. I still feel that flicker of curiosity about the young woman you might have been.

But I don’t have to wonder about your eternity.

And that changes everything.

Today I will probably cry. I will probably smile at memories of your baby cheeks and the way your tiny hand wrapped around my finger. I will probably whisper “happy birthday” into the quiet.

Fifteen.

I love you just as fiercely as I did the day you were born. That love did not shrink with your lifespan. It has stretched across years and heaven itself.

One day, there will be no more wondering. No more imagining. No more “what if.”

Only reunion.

Until then, I trust the One who loves you even more than I do.

Happy birthday, my girl. You are deeply missed. And you are eternally secure.

Multiple System Atrophy

I wish I could pick

Hannah

This morning I sat perched in my bathroom and let out a raspy wail. “Ugh, I just wish I could plan a fun and special thing and not have this disease wreck the day and ruin it for me!” My “woe is me” meter was on full tilt as I lamented the evening I had conjured up in my head, even though I still had a solid eight hours until go time.

That’s right where the enemy would have us be, isn’t it? Catastrophizing every ordinary miracle today has to offer because we haven’t taken a moment to stop, give thanks, pray for mercy, and trust that our good Father wants us to experience the good parts just as much as we want them ourselves.

I realized, as I sat there staring at my own tired reflection, that I had already decided how the day would end before it had even begun. I had written a story of disappointment, frustration, and limitation — and then handed it the microphone before God even had a chance to speak into it.

How often do we do that?

We trade possibility for prediction.

We surrender joy to fear.

We allow what might happen to rob us of what is happening.

Illness has a way of shrinking the horizon. It teaches you to measure life in energy units, in symptom flares, in “maybe” and “we’ll see.” But what it doesn’t get to do is dictate where hope lives. That part still belongs to God. And, if I’m honest, sometimes it belongs to my willingness to loosen my grip on expectations.

The truth is, special moments have rarely unfolded the way I imagined them even before sickness entered the room. The most meaningful memories in my life were almost always disguised as interruptions, detours, or completely rewritten plans. Somehow, God has always had a way of sneaking beauty into spaces I was convinced were ruined.

So I sat there and did the only thing I knew to do. I prayed a very unpolished, very honest prayer.

“Lord, I’m scared this day will fall apart. I’m frustrated that my body feels like it has veto power over things my heart longs for. But I trust You more than I trust my fears. Help me to receive whatever today holds — the joy, the disappointment, the laughter, the fatigue — as something You can still use for good.”

Peace didn’t rush in like a tidal wave. It rarely does. Instead, it trickled in like a slow drip from a faucet that someone finally remembered to turn off. My shoulders softened. My breathing steadied. The day didn’t suddenly become guaranteed or predictable, but it became held. And that is often better.

Maybe the miracle isn’t that our plans go perfectly.

Maybe the miracle is that joy can still show up in imperfect circumstances.

Maybe the miracle is that God wastes nothing — not the setbacks, not the symptoms, not even the bathroom floor meltdowns before noon.

I don’t know how tonight will unfold. If I’m honest, part of me still wants to script it, control it, and protect it from disappointment. But I’m learning that tightly gripping expectations often squeezes the life out of the very moments I’m trying to preserve.

So today, I’m practicing open hands.

Open hands to receive whatever strength God gives.

Open hands to release whatever I cannot control.

Open hands to hold joy gently, without demanding it perform perfectly.

If you’re living in a body, a season, or a circumstance that feels unpredictable, maybe this is your reminder too: you are allowed to hope without guarantees. You are allowed to celebrate even when outcomes feel uncertain. You are allowed to believe that goodness can coexist with limitation.

Our Father is not waiting at the finish line of a perfect day to meet us there. He is walking beside us through the messy, rewritten, grace-filled middle of it all.

And sometimes, that is where the best parts are hiding.

suffering

Still Here, Already Erased

Hannah

There’s a particular kind of loneliness that comes when you realize people are already grieving you—even though you’re still here.

You can feel it in the way conversations change.

In the pauses that linger a little too long.

In the careful tones, the lowered expectations, the way plans quietly stop including you.

It’s as if, in their minds, you’ve already crossed a threshold that your body hasn’t yet stepped over.

People don’t always do this out of cruelty. Often it’s fear. Sometimes it’s love mixed with helplessness. Sometimes it’s their own attempt at self-protection—beginning the goodbye early so it won’t hurt as much later. But no matter the reason, the result can feel the same: you’re treated like a memory while you’re still breathing.

And that hurts in a way that’s hard to explain.

Because you are still here.

You still think, feel, hope, laugh, get irritated, change your mind.

You still want to be seen as a whole person—not a fragile symbol of loss.

When people grieve you too soon, it can feel like being erased in real time. Like parts of you are being gently set aside, boxed up, and labeled past tense. You notice fewer questions about your opinions. Fewer arguments. Fewer expectations. A subtle withdrawal, masked as kindness.

A dimming of the flames that used to be the most meaningful light to you.

There’s a quiet injustice in that.

Because anticipatory grief may prepare them, but it isolates you.

It can make you feel like you’re standing at your own funeral, listening from the back of the room, wondering when someone will turn around and realize you’re still part of the conversation.

What many people don’t understand is that being alive—even with a terminal diagnosis, even with uncertainty—still means living. It means wanting connection, normalcy, meaning, humor, and sometimes distraction. It means wanting to be included without an asterisk.

Not as “the brave one.”

Not as “the one we might lose.”

Just as you.

There is a deep ache in watching people move on emotionally while you are still doing the hard work of staying present. Of waking up each day and choosing to engage with the world, even as the world quietly practices letting go.

And yet—there’s also clarity that comes from this place.

You learn who can sit with you without rehearsing the ending.

Who can love you in the present tense.

Who understands that honoring your life doesn’t require stepping away from it early.

Multiple System Atrophy

The Sound of Survival

Hannah

As my muscles weaken and I spend more time on my ventilator, my voice is fading as well. After much frustration trying to gather enough breath to make myself heard, especially from another room, we came up with a new solution.

I was delighted that with my new amplifier I can easily be heard, even in my softest voice. It saves me a lot of breath, and makes it easier for the people around to understand me.

However, this didn’t necessarily go over well with everyone. When my young son saw the demonstration of my new device his eyes widened. “Please do not EVER use that in front of any of my friends.” Ahh, I’ve seen this hard embarrassment before. It happened when I initially needed a machine to support my breathing, and it happened when I first started using a wheelchair. Whenever we were headed somewhere, he would ask, “are you bringing your vent? Are you bringing your chair?” Earlier on I was able to provide some balance- leaving these behind to make it through short events with him so that he had one less thing to worry over. As my condition has progressed however, these helps are a more constant companion. But here we are with a new player on the scene, and my heart breaks for my boy who just longs for some normalcy.

And so I find myself holding two truths at once. I am deeply grateful for tools that allow me to remain present, to speak, to be heard, to stay connected to the people I love. And I am also grieving alongside my son, who did not ask for a mother whose body requires so much explaining.

His embarrassment is not cruelty. It is not rejection. It is the ache of a child who wants to blend in, who wants his world to look like everyone else’s, who is already carrying more than his fair share of difference. I recognize that look in his eyes—the same one I’ve seen when strangers stare too long, when friends ask questions he doesn’t know how to answer, when he realizes yet again that our family does not move through the world unnoticed.

So I try to meet him with gentleness. I remind him that it’s okay to feel this way. That loving me doesn’t mean loving every machine that keeps me going. That embarrassment and compassion can exist in the same heart. I tell him that these devices are not symbols of failure, but of persistence—that they are the reason I can cheer for him, listen to his stories, and whisper “I love you” at the end of the day.

And I also do the harder work of letting go of the bargain I once tried to make—of believing I could soften this for him by minimizing myself. I am learning that my job is not to disappear to make life easier for those I love, but to model what it looks like to live honestly within limitation, without shame.

One day, I hope he will remember not the sound of the amplifier or the sight of the tubes, but the way we kept showing up for each other anyway. I hope he will know that his mother did not give up her voice—even when it came out differently than before.

Christmas, Uncategorized

Holy Ground at Bedtime

Hannah

Last night my son and I laid near the soft glow of the Christmas tree, and talked as we have many nights at bedtime. We talked about all the typical things; what the bullies said to him at school today, why of all the people in the world did God allow me to be sick, and will the doctors tell us ahead of time when I am about to lose my voice, or will it just disappear without warning. I walked him through the emotions he feels about each of these things, and then we moved on through our bedtime routines.

It was after he was quiet for the night that it hit me how abnormal our normal is. I thought about my friends around town also tucking their littles in for the night, but their bedside conversations being about things like vacation plans, what they want in their lunch tomorrow, or what park or fun store they should visit after school the next day.

The unfairness rose quickly—that our conversations are rarely frivolous, that heaviness so often sits between our words. But as I lingered in the comparison, gratitude surprised me. I am not who I once was, and I’m thankful for that. This life has trained my eyes to notice what is delicate and fleeting, like the fine frost etched along the glass. The former version of me, busy and strong, would have overlooked it all.

I lingered by the lights that night before bed. Soaking in their soft, twinkly glow. Inhaling the last whiffs of an evergreen candle burned earlier in the evening. And in that quiet, I realized that this is how God has been teaching me to live now—slowly, attentively, reverently. My life has been narrowed in many ways, but it has also been clarified. When your world gets smaller, the meaningful things grow louder. The sacred becomes harder to ignore.

I don’t wish this road on anyone, least of all my child. I would give anything to lighten what he has to carry, to let him worry about ball court drama instead of disease progression. And yet, I can see how tender his heart has become. How perceptive. How brave. He asks questions some adults avoid for decades. He feels deeply, and he is learning that feelings— even the heavy ones— are survivable when they are shared.

Our conversations may not be light, but they are honest. They are full of connection. They are full of presence. There is a strange gift in knowing that tonight matters. That this voice, this body, this moment is not guaranteed tomorrow. It presses love into sharper focus.

As I finally turned off the tree and made my way to bed, I carried both grief and gratitude with me. Grief for the ease we’ve lost. Gratitude for the depth we’ve gained. I don’t think one cancels out the other. I think they coexist, braided together, teaching me how to hold joy without naivety and sorrow without despair.

This is not the life I would have chosen. But it is the life I’ve been given. And within it—between bedtime prayers and flickering lights, between hard questions and small mercies—there is still so much beauty to behold.

family

Letting Go, One Christmas at a Time

Hannah

My youngest turned 13 earlier this week. Somehow I managed to get through that day and several more before it really hit me. My youngest baby is a teenager! The exact time this news caught up with my heart and my tears was the night before Christmas as I finished up my gift wrapping.

I picked a book from my stack of gifts and slid the scissors along the wrapping paper to measure just the right size piece. I had been excited to come across a newly released book in the series my boy enjoyed. But as I creased the paper around the edges of the book I suddenly stopped. Why on earth am I gifting him this? Not only does he not enjoy reading, he hasn’t been into this book series for THREE YEARS!

Suddenly a flood of tears coursed uninhibited down my cheeks, as I realized this purchase had simply been a misguided attempt to ignore the fact that time was stealing away the years, and grasping at anything to freeze the moments in time.

I stood there for a long moment, hands resting on the paper, staring at a version of my son that no longer exists. The boy who once devoured those stories on the couch, legs tangled in blankets, asking me just one more chapter, please. That boy has been quietly, faithfully growing up while I wasn’t looking.

I finished wrapping the gift anyway, tears dropping onto the tape and ribbon, because motherhood doesn’t stop when our hearts ache. But something shifted in me. I wasn’t just mourning a book choice—I was grieving a season. The small hands. The loud laughter over silly plots. The years when his world was simple and I was still his safe place for everything.

Thirteen feels like a threshold. Not a door slammed shut, but one gently closing behind us while another creaks open ahead. He is becoming someone new—someone with opinions, independence, and a future that will carry him farther from my daily reach. And I’m proud of him. Deeply. Fiercely. But pride doesn’t cancel grief. They coexist, tangled together in the quiet moments, like Christmas Eve tears over wrapping paper.

I know this won’t be the last time I grieve the passing of who my children once were. Motherhood is a series of goodbyes disguised as growth. We celebrate the milestones, take the pictures, bake the cakes—while our hearts lag just a step behind, trying to catch up.

So this Christmas, I’m letting myself feel it. I’m releasing the little boy I tried to buy back with a book, and asking for grace to love the teenager standing in front of me now. To learn him again. To meet him where he is, not where I wish time had paused.

And maybe that’s the real gift of this season—not holding tighter to what was, but opening our hands to what is becoming.

Thanksgiving

Thanksgiving Update

Hannah

I knew this Thanksgiving wouldn’t look quite like the ones we’ve tucked into memory. The calendar had to shift to fit kids’ work schedules and scattered availability. I had to recruit a backup cook because my strength simply couldn’t stretch far enough to carry a full Thanksgiving meal this year. And my husband had to bow out entirely when he scheduled a double knee replacement just days before the holiday.

Yet somehow, none of that made the week dull. I still managed to lock the keys in the car, faint while helping my husband and earn myself an ambulance ride—and a fresh set of stitches. And in true last-minute fashion, I found myself stepping in for friends and running the 8:30 a.m. Turkey Trot in thirty degree weather on Thanksgiving morning.

But today has been its own kind of glory—bundled in the cold, then thawing out in a warm, cozy house filled with the people I love. MarioKart championships, board games scattered across the table, quiet naps under soft blankets. It has been simple, chaotic, and beautiful.

I have more to be thankful for than words can hold. And as I count the blessings I can see—and the many I can’t—I’m lifting my gratitude upward. I pray you’re doing the same today, giving thanks to the One who fills our lives with mercies new every morning and goodness we could never deserve.

Happy Thanksgiving, friends. May your hearts be full and your eyes open to every grace He has poured out.

suffering

Standing, when everything shakes

Hannah

🎶 “Standing on the promises of Christ my King, through eternal ages let his praises ring; glory in the highest I will shout and sing, standing on the promises of God!”🎶

Affliction has a way of changing the way we sing. Once, I sang this hymn standing tall, lungs full, voice rising like a joyful Baptist at a Saturday night revival—sure, strong, unquestioning. Now, I sing it slower from the quiet of my hospital bed, tasting each word, weighing every promise against the heaviness pressing on my chest. The melody hasn’t changed, but I have.

18 days. Eighteen days of one hard thing after another maddeningly marching through the doors of my life—uninvited, unrelenting. Health unraveling into painful new territories, relationships trembling under pressure that threatens what once seemed unshakeable, the future scattering into pieces I can no longer hold together. It feels like too much.

In a weary whisper only God could hear, I said, You are asking too much of me. This feels impossible. I don’t think I can do this. And yet—You must think I can.

So where, Lord, is the help You promised?

Promise. That word flickered through my tired mind and opened a remembered door: “This is my comfort in my affliction, that Your promise gives me life” (Psalm 119:50). There it was—quiet as a breath, clear as a bell: Hannah, this is your help. My promises. Stand on them.

So the words came tumbling—like a river breaking through a dam—every scripture, every promise I could catch hold of, spoken aloud over the noise of despair crowding my soul:

If I stand firm to the end, You will save me. You give strength to the weary. I will see the goodness of the Lord in the land of the living. Your name is a strong tower—I run to You. With Your grace, all things are possible. So help me do what feels impossible. Help me make it through this.

And this morning, something was different. The circumstances hadn’t shifted—the questions still hovered—but my heart? It stood. Courage where fear had sat. Steadiness where trembling had lived. God had kept His word. He renewed me. He breathed life where hope was thinning. His promises held me upright, where I thought I would fall.

My family woke to the sound of me—quiet, raspy voice —singing again like that happy Baptist at a Saturday night revival: Standing on the promises of God.

And this time, I am not just singing it. I am living it.

Uncategorized

The Dusty Stethescope

Hannah

Sleep evaded me again last night.

I reached for distraction—scrolling through ideas for Christmas gifts for my people. When I searched for something for my young STNA/up-and-coming physician, I stumbled upon a site selling the most beautiful stethoscopes I’d ever seen.

Colors like jewels.

Patterns like joy.

One in particular caught my eye—a swirl of pink animal print and sharp, gleaming purple— shining with all things girlish and lovely. And for a brief flicker, right before unconscious thought becomes awareness, I mused, “this is the one I’ll ask for next time.”

But then—

my heart caught up to my body.

And I remembered where I was sitting: in my hospital bed at home, a ventilator mask pressed against my face, small plastic cups of pills lined neatly beside me, guarding against the next wave of breathless panic.

In the thick, holy silence of 2 a.m., I swear I heard the sound of my own heart dropping back into the deep, heavy truth of reality.

I will not be needing a new stethoscope.

Not now, not ever.

No more pressing the cool bell to a grandmother’s arm, listening for the soft rhythm of life beneath her paper-thin skin.

No more playing peekaboo with wide-eyed children, pretending it’s a game while I listen carefully to the music of their lungs.

Those days—those glory days—hang preserved behind glass, my green stethoscope draped like a memory across the frame. The strength that once carried me into the chaos of sirens and smoke has long since ebbed away, leaving behind a body most people only know in its fragility, not its former fire.

Suffering has a way of testing what our hearts truly believe.

It presses heat against the places where we’ve built our sense of strength.

And when suffering comes for the strong, it is often met with anger—

not at the pain itself, but at the theft of power.

On my hardest days, I don’t find myself begging for suffering to stop.

I find myself begging for strength to return.

That’s the honest prayer.

Not fewer storms—just stronger arms to stand in them.

And yet, even that desire reveals how frail my own strength really is.

Paul puts it even more vividly;

“We always carry around in our body the death of Jesus, so that the life of Jesus may also be revealed in our body.” (2 Corinthians 4:10)

We love strength.

We polish it, parade it, protect it.

And when it’s gone, we question the goodness of God.

But I am learning—slowly, painfully—that the taking of strength is grace.

Grace that empties my hands of what I thought I needed,

so that I might cling more tightly to Jesus.

Now, as I face this new season of weakness,

with tiny bursts of ability to go and do,

I ask myself: how will I use this small strength?

I’ve been praying—for hunger on my well days.

For Scripture to taste sweeter.

For my heart to grow restless for the things of God.

For apathy to break, for grace to deepen.

And when suffering returns—as it will—

may my heart be ready to receive it.

To whisper, thank you, Jesus, for entrusting me with this new hard.

Help me be faithful in it.

Help me reflect your goodness in the ache.

Let me be a mirror of grace—

a witness to the beauty that lives

in the losing of strength,

and the finding of You.

Infant loss, Uncategorized

Cradled By Heaven

Hannah

October is awareness month for several things, some I can relate to, and some that are not part of my story. Every year I ponder whether there is anything new to say as the calendar declares it is Pregnancy and Infant Loss Awareness Month, and as I’ve pondered that over this past week, it was impressed on me that there are scores of men and women walking afresh in the pain of this sorrow— mourning empty arms and vacant cradles and the fresh waves of pain that are going to come as we move into the season of celebrating family and togetherness. And that makes me want to share my story again and again, because each hurting heart needs to know their pain is seen, their empty space is held, and their future can contain lasting hope.

There are parts of my story I never imagined I’d be the one to write. I never thought I’d be the mother of children I couldn’t raise— that my arms would know both the fullness of love and the emptiness of loss so profoundly.

I’ve walked through the pain of losing two pregnancies, and I’ve held my precious daughter in my arms only to let her go before I was ready— just four and a half months after she was born.

There are no words for what it feels like to love that deeply and to lose that completely. Even now, years later, I can still feel her weight against my chest, and the flutter of my babies being woven together in my womb. But the pages of my story that I expected would be about them remain achingly blank. My heart still catches at that reality from time to time, like a bruise that never fully fades.

Grief changes everything. It changed how I see the world, how I talk to God, how I measure time—not by days and months, but by memories and milestones that never came. There were nights when I couldn’t pray, when I could only weep into my pillow and hope God heard the sound of it. And faithfully, He did.

He met me right there, not with explanations, but with His presence. I used to think faith meant feeling strong, but now I know it’s just trusting God enough to crumble in His hands. It’s believing He is still good when nothing feels good. It’s holding on to the promise that this life isn’t the end of the story.

I believe that my children are whole and alive in the arms of Jesus— and that one day, I’ll see them again. That hope doesn’t erase the ache, but it redeems it. It gives meaning to my tears and purpose to my pain.

I mother them differently now. In whispered prayers. In the way I try to love people more gently. In the way I cling to eternity a little tighter. Heaven holds what my arms cannot, but even here, in the space between what was and what will be, I still find traces of God’s goodness.

If you know this kind of loss too, I want you to hear this:

You are not alone.

Your story matters.

Your child’s life matters.

Even in this heartbreak, God is holding you and your little ones in the same hands. One day, every tear will be redeemed. Every broken hallelujah will turn into praise. And our arms—these aching, waiting arms—will finally be full again.

faith

Brave Was Never the Plan

Hannah

I had a new nurse come visit me last week. He was honest, kind, and thorough — asking all the usual questions about my medical history; the twists and turns that brought me here. I’ve learned to tell that story in pieces now, almost like reading from a well-worn script. When I finished, he sat back in his chair and said softly, “You’re really brave.”

He said it again before he left. And I smiled, but inside I felt a strange ache. Because I don’t feel brave. Not even close.

Most days, I feel like I’m just hanging on for dear life — doing the next thing because there is no other choice. Take the medication. Show up for the appointment. Face the pain. Rest. Repeat. There’s nothing glamorous about it, and most of the time, it doesn’t feel like courage; it feels like survival. The kind of survival where you’re digging in your fingernails, white-knuckling hope like your life depends on it, because it does.

But maybe, just maybe, God sees it differently.

I think about how often Scripture tells us, “Do not be afraid.” It’s not because life is easy or because fear never knocks at our door — it’s because God promises to be with us in it. Maybe bravery isn’t the absence of fear or the strength to charge forward. Maybe it’s the quiet trust to take one trembling step at a time, believing that God’s hand is steadying us, even when our own knees are shaking.

There are days when my prayers are nothing more than whispered sighs — “Lord, help me through this hour.” There are nights when I’m too weary to pray at all, and all I can do is rest in the truth that the Spirit intercedes for me when I have no words left. And maybe that’s what real courage looks like: surrendering the illusion of strength and leaning instead into the grace that holds me together.

I don’t feel brave, but I am learning that bravery doesn’t always feel like bravery. Sometimes it looks like showing up. Sometimes it looks like tears. Sometimes it looks like still believing that God is good, even when life doesn’t feel good.

If someone calls me brave, maybe what they really see is the reflection of God’s faithfulness — the way He sustains a soul that should have fallen apart by now. I’m learning to take that as a quiet reminder: this story isn’t about how strong I am, but about how faithful He is.

So no, I don’t feel brave. But I keep going. And by God’s grace, that’s enough.

faith

When a Voice Falls Silent: A Call to Courage

Hannah

There are a lot of voices right now. A deafening amount of opinions and points of view. Sometimes it’s difficult to know whether speaking is warranted, or if it will just add to the noise. One thing I know though, is that in the face of devastation, hope is a needed voice to hear.

What happens when a prominent voice for truth is suddenly silenced? When someone who stood boldly, unashamed of the gospel, and unwilling to compromise, is snatched away from us? The temptation is fear. Fear that if they can be taken down, then what about us? Fear that darkness is stronger than light. Fear that speaking up will cost too much.

The missionary Paul reminds us otherwise:

“…I will not be put to shame in anything, but that with all boldness, Christ will even now, as always, be exalted in my body, whether by life or by death. For to me, to live is Christ, and to die is gain.”
‭‭Philippians‬ ‭1‬:‭20-21

This is not the end. Death does not have the final word. Every voice that is silenced here will one day be awakened at the sound of His voice. Every injustice will be answered. Every act of courage will be remembered before the throne of God.

So what do we do if a voice for truth falls silent?

We do not shrink back. We do not hide in fear. We step forward. We take up the torch that has been handed to us. We keep talking, keep living, keep shining. Because the mission was never about one person’s voice alone — it is about God’s truth resounding through His people. (John 5:28-29)

The darker the world gets, the more every flicker of light matters. The more every word of courage echoes. The more every act of faith shines.

Let us not be silent. Let us not cower. Let us not let darkness have the last word. Instead, let us outshine it. Because one day, the tombs will open, the righteous will rise, and the Judge of all the earth will make everything right.

Until then, we keep speaking. We keep living with courage. We keep letting the light shine.

Gratitude

The Gift of Time

Hannah

About a week ago I discovered my first real, here-to-stay gray hair. At about an inch and a half long, the silvery strand sparkled in the light, and I squeaked with delight. I have been waiting for this day!

It felt almost holy, that moment of noticing what the world often calls a flaw but what Scripture calls a crown. The Bible says, “Gray hair is a crown of glory; it is gained in a righteous life” (Proverbs 16:31). A strand of silver is not something to pluck away or hide in embarrassment—it’s a shimmer of honor, the whisper of years lived and stories carried, a reminder that time is a gift.

The world tells us that beauty belongs to the young, but God tells us that beauty deepens with age. Every laugh line is a history of joy. Every crease carries the memory of burdens borne and released. Every gray hair gleams with testimony: of lessons learned, of prayers prayed, of nights endured and mornings met with new mercies.

Aging is not the dimming of the light, but the soft glow of it spreading, warming, illuminating. It is not a loss—it is a gathering. We gather wisdom, we gather perspective, we gather gratitude for the fleetingness of days and the eternity that awaits beyond them.

To age is to live long enough to love more deeply, to forgive more freely, to see life with eyes unclouded by the urgency of youth. It is to carry within us the sacredness of experience, the sweetness of perspective, and the quiet strength of having endured.

So when I see that little silver thread sparkle in the mirror, I do not feel embarrassed. I feel crowned. Crowned with grace, crowned with wisdom, crowned with the reminder that my days are in His hands and that every year is a jewel added to the story He is writing through my life.

Fun with gray

Aging is not something to hide. It is something to honor. Something to embrace. Something to rejoice in.

Because every gray hair is not just a strand—it is a song of God’s faithfulness woven into us, shimmering with glory.

faith

When Small Acts Become Sacred Moments

Hannah

As a member of my church, one of the things I most enjoy is using my spiritual gifts from God to serve wherever I’m needed. That has looked like playing with toddlers and teaching pre-schoolers as their parents sit in the service. Sharing my story with groups of people who don’t know me yet. Helping prepare and serve meals for special occasions, and taking meals to people when they’re ill. Though introverted, I also have a social streak, and I have enjoyed the hustle and bustle of working in a busy kitchen, preparing games, activities, or projects for large events, and participating in set up and take down for various events.

As you can imagine, my illness has stripped away my ability to do most of these things. This has sent me seeking different ways that I can still be an active part of my congregation instead of feeling like I do not have anything of value to contribute.

Through this season I have learned that Gifts from God are not always wrapped in brilliance. Sometimes, they arrive quietly—like a whisper, tucked deep into the folds of who we are. For me, one of those gifts is encouragement. It does not roar; it does not shine with spotlights. It is a candle in a darkened room, a warm cup of tea set down beside tired hands, a few words penned in ink that somehow carry light.

From time to time, God nudges me—

Write the note.

And so I do.

A card on a desk.

A folded envelope slid into a mailbox.

No fanfare. No flourish. Just I see you. I thank you. You matter. I cannot tell you how many times I’ve learned that God’s timing is far better than mine. That a sentence scribbled in the quiet has found its way into someone’s weary moment like rain on thirsty ground.

This is the mystery of the gifts He gives us; we offer them in faith, and He multiplies them in grace. Your gift may not look like mine. Perhaps you speak life through the meals you prepare, or through the way you listen without rushing.

Perhaps your gift is order in a world of chaos, or joy that bubbles into laughter in heavy spaces. Whatever it is—hold it with open hands. Let God place it where it’s needed most. And do not think it too small. The smallest seed, after all, can become the tallest tree.

This week, listen for His whisper. Offer your gift—quietly, humbly, freely. You may never see all the places it will bloom. But He will.

faith, Fatal Illness, grief, hope

Already Gone, Still Here

Hannah

In the lonely slowness of the in-between, I have discovered something deeply human. A kind of fierce clarity about what matters. An urgent desire to stop faking things just so others won’t be uncomfortable. A pressing yearning to stop wasting words. I can already see who stays. And who doesn’t. Why then do I go to such lengths to create a mirage of okayness so that other people don’t have to reckon with my pain? Why do I smooth over the truth, soften the edges, laugh at the wrong moments—just to make grief more palatable for them?

I think it’s because pretending is the currency of the healthy world. We’re taught to keep things light, manageable, convenient. And when you live in the long shadow of a fatal illness, your reality becomes deeply inconvenient. It disrupts dinner parties. It silences group texts. It taints the joyful camaraderie of a birthday party and unsettles the rhythm of everyone else’s forward motion.

So I contort myself. I wrap my fear in polite phrases. I pad my sorrow with jokes. I give updates that are vague but upbeat. I try not to be too much.

But the cost of that mirage is high. It leaves me lonelier than the illness ever could.

Because here in this slow unraveling, there’s a strange and sacred gift: honesty. The kind that doesn’t flinch. The kind that strips everything down to what’s real and raw and enduring. The kind that doesn’t need to be tied up in a bow.

I’m learning—painfully, awkwardly—that the people who can sit with the truth, even when it’s heavy, are the ones who deserve a front-row seat to what’s left of my life. The rest, kindly, can drift.

This in-between space? It’s not just waiting to die. It’s where I’m learning how to live.

And it’s beautiful and sacred and so much richer than the plot points I would have imagined for my life, and if I am worthy enough to be used for His glory in this way, then I dare not try to contort the storyline that I was written into- one that is not defeat, but is my final triumph.

This is my sacred stage to shine for Jesus- to show a watching world that He is true and every word He spoke is sure. So I will be clinging to His promises like breath itself until my breath is nothing more than the stringy shadow of a vapor hanging suspended in nothingness. If I do that alone then I know it was done with the most honest of intentions, not for the sake of trying to fit into one of the many molds this world would have me choose.

To those of you who were courageous enough to sit near and take fire based on your proximity, I thank you, and I commend you. Know that you did something holy. You didn’t fix it. You didn’t have to. You just stayed—when leaving would have been easier, cleaner, safer. You let the silence speak. You let the pain breathe. You let me be more than just my label.

Know that your presence has been a lifeline. A quiet rebellion against the cultural pull to look away, move on, keep scrolling. You bore witness when I felt invisible. You carried pieces of my grief in your own hands, and somehow, that made it more bearable.

You may not realize the impact you’ve had, but I do. And I will carry the weight of your kindness with me for as long as I have breath.

This long goodbye is not just mine to live—it’s ours to hold. And I am so deeply grateful for those of you who chose to hold it with me.

faith, Uncategorized

Even now

Hannah

How will we make it through this? The valleys we walk may bear different names, but at the beginning of the trailhead we all have a choice to make.

I once chose with clenched fists, fueled by grief, driven by fear… maybe you have been there too. But hear me now, not from the mountaintop, but from the shadowed lowlands, where echoes of pain still linger—choose the better way.

To those who call Jesus Lord: we proclaim a Kingdom not built by hands, not tied to decades past or decades to come. No power of earth can shake what is secure in Him. This is not a call to passivity— but perhaps an invitation: learn the stillness of the soul.

Not silence for silence’s sake, but a reorienting, a returning to the Way that is higher, slower, deeper. God has been faithful—not because all is mended, not because we have been spared, but because He never left.

Each day aches like fire, and still, Jesus is good.

Each prayer rises desperate, and still, Jesus is near.

His nearness is not held hostage to the outcomes I crave. Call me foolish, if you must. I am learning to care less for opinions, and more for people, because Jesus is shaping my heart for a Kingdom not made of noise.

God’s goodness is not measured by the speed of escape from sorrow. Whether I have months or years this I know:

Jesus is here. He is good. And gently He whispers: “Be still, and know that I am God.

So in your valley will you stop, just for a moment? Turn from the scroll, the post, the panic, and let your soul lean toward Him. Even here, where fear stirs, where anger brews, there is joy. Because love remains, and He is near.

Even now, I can say with trembling lips: It is well with my soul. He is God. And He is good.

Uncategorized

Even Here

Hannah

I decided today was shower day. With a broken wrist and low energy, some days are arranged to be less involved than a whole shower, but today it was time for the real thing.

Sitting on my chair in the shower I made a mental note to myself, “figure out how to get pumps for my shampoo and conditioner bottles; it’s getting hard for my hands to squeeze anything out of them.” I didn’t realize I had bigger problems than that.

As I finished up washing and reached up to scrunch the water out of my hair with my good hand, my arm banged back down onto my lap. I tried twice more, but couldn’t lift my arm high enough to squeeze the water from my hair. I decided to just dry off and deal with it outside the shower. Then came the realization that neither could I reach for my towel to dry off. I sat in the shower, dripping wet, unable to do anything for myself, and something broke inside.

Fortunately my husband was close enough by to hear my raspy call for help, and he came to my aid. As he did for me what I had done for myself for at least the past 37 years, tears mixed with the shower water that dripped down my face. “It’s not fair,” I croaked.

The words felt both childish and truer than anything I’d said all week.

This wasn’t how it was supposed to be. I wasn’t supposed to need help with something as basic as drying off. I wasn’t supposed to be this tired, this fragile, this dependent. And maybe most of all, I wasn’t supposed to feel so small—so cracked open by something as simple as a shower.

But there in the tension between frustration and fatigue, my heart whispered what my mouth could not: “Even here, Lord?”

Even here, when my wrist is broken, my body is weak, and my heart is weary?

Even here, when I don’t recognize this version of myself?

Even here, when I feel like more of a burden than a blessing?

And somehow, though He didn’t speak aloud, I felt the answer settle in deeper than my bones: Yes. Even here.

Even here, He is present.

Even here, He is faithful.

Even here, He is not confused about my story.

It’s one thing to trust God when everything makes sense—when my strength is intact, when my routines are predictable, and my body does what I ask of it. It’s another thing entirely to trust Him when nothing is working and I’m wrapped in a towel I couldn’t even reach on my own. It is a hard-fought trust that doesn’t come naturally.

But I’m learning that this is a holy place too.

Not polished. Not powerful. Just painfully human—and held.

There is a strange kind of worship that happens when we let God meet us in our brokenness without pretending we’re fine. When we let the tears fall and still say, “I trust You anyway.” When we acknowledge the ache and still choose to believe He’s working all things for our good.

I don’t understand all He’s doing. I don’t love the limitations. But I know the One who has never wasted pain, never abandoned His people, and never made a mistake. And if He’s allowing this part of the story, then somehow—even this—is being woven into something eternal.

So today, in a soaked towel and salty tears, I’m offering Him what I have: my honesty, my surrender, my broken trust trying to be whole.

Because even here, He is worthy.

Even here, He is good.

And even here, I still believe He knows exactly what He’s doing.

grief

Bingo, Ice Cream, and the Bitter Gift of Missing Out

Hannah

For several weeks I have been looking forward to this past Sunday. It was a chance to not only go to church in the morning, but then in the evening it was our quarterly meeting plus Ice cream and bingo, and I was excited to see so many of my people. And then MSA.

It didn’t take long to recognize that I was going to have to choose wisely what to use my energy on that day. Pain has been searing out of control more often than not lately, and Sunday morning there was no reprieve. I decided I had a better chance of making it Sunday night if I stayed at home and watched the morning service online, which I did, and then rested throughout the day.

As afternoon faded into evening however, it became clear that my body was not going to tolerate a car ride or anything else. The plans I had so carefully paced myself for began to crumble before my eyes. And with that, came the sting of disappointment—sharp and real.

I wish I could say I shrugged it off with grace, that I whispered a quick prayer and moved on. But instead, I wrestled with it. I grieved the loss of what felt like a lifeline that day. I missed my people. I missed being in the room, surrounded by familiar laughter and shared stories and the simple joy of ice cream and bingo. I missed being seen.

That’s the thing about disappointment—it sneaks in and tries to convince you that you’re forgotten. That everyone else is moving on without you. That your suffering sets you apart in the worst way.

But here’s where faith steps in and steadies the soul.

God doesn’t minimize our losses, and He doesn’t rush us through our grief. He meets us right in the ache. As I sat alone in my living room that night, I remembered the One who never misses a moment. The One who knew I would be here, again. The One who catches every tear and counts every pain-ridden hour as precious.

Crushing disappointment doesn’t get the final word. Not when we serve a God who promises beauty for ashes and joy in the morning. Not when He reminds us that He is our portion, not a perfect evening, not our best-laid plans. Him.

So, I went to bed that night not having seen the people I love, not having laughed over silly bingo cards, not having been part of the fellowship I was so looking forward to. But I went to bed held. Known. Carried. And even in the disappointment, maybe especially there, I was not alone.

And that’s enough.

family

The Heartbreaking Road Home

Hannah

Not long ago a friend posted something with this quote: “You can’t’ protect your child from their testimony.” Boy did that hit me like a ton of bricks.

As parents, we often carry a silent hope that our children’s lives will be smooth, their paths straight, and their hearts unbroken. We pray for their protection, guidance, and joy. But buried in that desire—however noble—is often the unspoken wish that they never have to walk through darkness. We long to shield them from pain, from failure, from regret. And yet, we forget: testimony is not born in safety. It’s born in the fire.

That line echoes like truth wrapped in heartbreak. Because if you’ve parented long enough, you know: you can’t control the path your child walks. You can guide, you can pray, you can love—but you cannot write their story for them. And sometimes, their testimony includes things you never would have chosen. The very moments you feared—addiction, rebellion, heartbreak, wandering far from faith—may become the places where Jesus meets them most deeply. How easily I forget that this is exactly where Jesus met me in my own life; why would he not do the same for my children?

And that’s where surrender comes in. Real surrender. Not the kind that says, “Lord, keep them safe and comfortable,” but the kind that says, “Lord, whatever it takes.”

Because if their knees hitting the floor is what it takes for them to run to Him, then let it be.

This doesn’t mean we stop parenting or stop praying. It means we stop trying to be their Savior. We trust the One who made them, who knows their every thought, who sees the beginning and the end. We release them into the hands of a God who loves them far more than we do.

It’s not easy to watch your child walk through fire. It’s not easy to hear pieces of their story that break your heart. But it’s necessary sometimes. For them to know grace, they may have to meet the edge of their own strength. For them to recognize light, they may have to sit in some darkness. And for them to know the realness of God, they may have to discover how empty everything else truly is.

So to the parent who is watching a child wander, who is grieving the turns their life has taken, who is praying with trembling hands: take heart. Their story isn’t over. And God’s mercy runs deeper than any pit they may fall into.

Your child’s testimony may not look like the one you hoped for. But it might just be the one that leads them home.

Let go. Trust God. And remember: even the prodigal was still a son.

grief

Trusting God as the Table Changes

Hannah

Despite often not having much of an appetite, that has not slowed my consumption of Ben & Jerry’s ice cream, or homemade yogurt, or anything really that resembles the flavor of a pickle. Until today. It was a waffle. A delicious, crisped-to-perfection sourdough waffle with butter and syrup was the red flag that put a stop to eating as I knew it. Truthfully I had noticed over recent weeks that bites were getting caught in my chest and being stubborn to go down, but I had been dismissing it as too big of a bite, or not enough chewing. That was wishful thinking. After a brief check-in with my speech therapist, she confirmed that the dangers of eating by mouth now outweigh the benefit. Fortunately for me I have already had feeding tubes placed for a few years now as my inability to absorb nutrients became a bigger problem. 

So this isn’t entirely unfamiliar ground for me. Still, hearing those words—that food by mouth is no longer safe—hit me in a way I didn’t expect. It’s not just about waffles or yogurt or pickles. It’s about the little pleasures, the ordinary gifts I’ve often taken for granted. The lit candles at my dinner table. The joy of sitting down to eat with others, the taste of something warm and comforting, the way food brings people together. That chapter is closing, and I find myself grieving the loss of it.

But grief, for me, never has the final say.

As I sat with this news today, a quiet truth settled in my heart: I am not sustained by waffles. I am not even ultimately sustained by feeding tubes. My sustenance comes from the Bread of Life—Jesus Himself. He alone satisfies the deepest hunger of my soul. The world may see this as loss, but in Him, there is gain. Not in a shallow, “look on the bright side” kind of way, but in a rooted, unshakable truth that His grace is sufficient for me—even here.

Scripture tells us, “Though outwardly we are wasting away, yet inwardly we are being renewed day by day” (2 Corinthians 4:16). My body may be failing, piece by piece, but I am being upheld, day by day, by the One who does not grow weary. I have tasted and seen that the Lord is good—and that is a flavor I will never have to give up.

So while I may no longer get to enjoy the crispy edges of a sourdough waffle, I rest in the promise of a coming feast—one prepared for me by the King Himself, where no illness, no brokenness, and no feeding tubes will ever be needed again.

Until that day, I will keep showing up to the table of His grace. Because He still meets me there.

suffering

Today

Hannah

Head throbs,

Spasms pulse.

Nausea ebbs and flows in great waves,

Pain spins up to 8 and then ticks back down to 4.

My mind fights my body with its will to get up and participate, move, live.

The weight of fatigue grips my limbs like wet sand,

Every breath a labor, every step a gamble.

The world outside carries on, brightly unaware,

While I drift beneath its surface, unseen currents pulling.

Hope is not always loud.

Sometimes it whispers in the quiet:

a hand held,

a laugh shared,

the sun warming my windowpane.

There are days I curse this vessel,

days I retreat into silence and salt,

but also moments—sharp and golden—

where love slices through the fog.

I do not vanish all at once.

I am still here:

in the tremor of my voice,

in the stories I still tell,

in the soft rebellion of surviving today.

Paramedic

Sweaty Palms and Steady Courage: The Cost of Doing What’s Right

Hannah

There was a day when I had to report one of my partners on the ambulance for the way he treated a patient. It was a partner I liked a lot. Everyone liked him. I remember standing in the supervisors’ office with my palms sweating and my heart pounding in my ears. He was one of the “good ole boys.” I knew it would probably damage our good relationship, and the backlash would likely affect my relationship with other coworkers as well.

The weight of my decision was heavy, and it certainly would have been easier to not say anything at all. But I had taken an oath to do no harm. I signed up to render aid with wisdom and compassion, and watching my people be abusive and degrading in silence would have been a terrible injustice. I could have just vowed to be better than that. I could have just told him I didn’t like it. Sometimes we need more than just words though; we need action. Marches for peace are great. Changing your social media profile to support a good cause is thoughtful. But that does not actually change anything. We need to act.

Friends, speaking up and putting a foot down is a really difficult thing to do. It’s scary, and it’s risky, and it is definitely not the norm, but our nation is hurting and if someone does not start standing up I fear for the future of our “United” States. We have to be people of action. That may mean turning in your partner. It may mean confronting someone you see abusing their power. It may be saying no to that one family member’s off-colored comments. Whatever it may look like to make a stand instead of turning a blind eye, we need to be doing that.

Eventually you will not feel alone standing up for justice, because when everyone starts doing it you suddenly are not the only fish swimming upstream anymore. You have the power to turn the school around. It starts with each and every individual calling it out when they see it, and saying “no more.” We can do this. I will be there standing beside you, sweaty palms and all.

Please leave me a comment, it lets me know you’re listening!

Memories

Where Memory and Mercy Meet

Hannah

Tonight, I was caught in the quiet pull of old photographs, each one a window to a world that felt softer, lighter. I lingered in the hush of memory—bare feet on sun-warmed pavement, sticky fingers clutching melting popsicles, laughter rising like fireflies into a dusk that never hurried. The days before my family knew the heavy grief of suffering through the progression of a fatal illness.

Grief has a way of sharpening our memories. It turns the past into a soft-lit place where pain had not yet knocked at the door. And tonight, I felt that ache—the ache of before.

But as I sat there, surrounded by memories frozen in time, the Lord gently reminded me: He was with us then, and He is with us now.

Hebrews 13:8 says, “Jesus Christ is the same yesterday and today and forever.” While everything around me has changed, He has not. The God who gave us the joy of long summer days and laughter echoing down the hallway is the same God holding us steady in the storm of uncertainty. He does not abandon us in our sorrow; He walks with us through it.

And so, while my heart longs for what once was, I’m learning to give thanks for the beauty that still is. Even in the midst of heartache, there are glimpses of grace—quiet moments of strength I know I didn’t conjure on my own. There’s peace that surpasses understanding, not because life is easy, but because Jesus is near.

These old pictures remind me not just of the sweetness of the past but also of God’s faithfulness throughout the years. I don’t know what tomorrow holds, but I know the One who holds tomorrow—and He is good.

So I’ll hold onto that. I’ll grieve, I’ll remember, and I’ll trust. Because our story isn’t just framed in photographs—it’s being written by a God who redeems, restores, and never lets go.

Mothers Day

This Mother’s Day

Hannah

I remember being in church the first Mother’s Day after burying my daughter and not being able to contain my sobs as the pastor shared a special tribute to mothers, and I didn’t feel like celebrating at all because I had stood at the edge of eternity and watched a piece of my motherhood be torn from my arms in an instant.

I remember the Mother’s Day after my first miscarriage and how I grieved over having been thrilled to add another arrow to our quiver, only to watch that dream bleed out through the cracks in my heart.

I remember the Mother’s Days during our seasons of infertility, and how I fought to not entertain bitterness toward the expecting mamas in my life because I was crippled by the thought of never being able to expand our family.

I remember the Mother’s Day following our season of foster care, and how I had seen our story being very different from the reality we were living.

I remember Mother’s Day as a child and how the only thing on my mind was the special craft I’d made for my mom, or the flowers I’d picked her, and how this day of celebration felt a whole lot less complicated and emotional back then.

This Mother’s Day I remember that there are those of you all around me that are living out various versions of broken stories that have wounded your dreams and experiences of motherhood, and I see you standing there. I see how this day of celebration comes with so many convoluted emotions; deep grief and heartfelt thankfulness and hopeful expectation. I know that some of you are holding your breath waiting to turn the calendar page to Monday, and that’s ok.

I know today may be especially hard, and I just want you to know that you’re not alone. I pray that God gives you comfort, peace, and strength as you carry both extravagant love and crushing sorrow in your heart. Your pain matters, and so does your story. Allow Him to use these painful and uncertain days to strengthen your trust in Him, to surrender your need for control, and to open your hands wide to the good-hard story that He is writing through you. I promise you it’s worth it.

faith

Waiting on the Whole Story

Hannah

I first experienced deep heartache in my teenage years as my parents engaged in a messy and traumatic divorce. I was blessed to have a wonderful youth pastor and his wife and my small group leader who walked through that with me. This was when I first felt the pull in my heart that I wanted to be for young people the person that I needed so badly in my youth. That feeling has never lessened; for years I have continued to feel that God has called me to work with youth in some capacity; being a safe place and a compass to point them to Jesus in these years that have such an impact on their future.

Suspecting that I should be a small group leader for teenage girls, I reached out to the youth pastor at my church and let him know I wanted to be involved. I went through the application process to be a leader, and a few different times had a prospective time frame of when I would start being involved with the teens. Unfortunately the timing always got derailed with my body waging war against different complications, or sudden progression in my disease.

This was discouraging to me, as I was anxious to jump in already and do what I had been yearning to do for years. Our youth pastor was kind and laid back, letting me know it was no big deal, and to come when I was ready. In the interim he had me share my story with the youth group, which was meaningful, but I still felt I was missing out on doing what God had called me to do.

Eventually I started having more bad days than good days physically, and youth group just had to take a backseat to my health. I didn’t understand why God would ask me to do something and then let me be prevented from doing it. I was certain he had been calling me to work with youth, so it led to much confusion.

Fast forward to the day I got the proverbial slap upside the face. Through various happenings it came together that I was meeting with a small group of teenage girls once a week at my house to lead them in a Bible study. The thought that washed over me this particular day had me feeling a little sheepish. The whole time that I had been trying to get God’s attention because I felt like he had forgotten about his prompting for me to work with teenagers, he had been orchestrating the actual plan right under my nose.

God has me exactly where he wants me; in my home, sitting down with a group of girls to teach them about him. It doesn’t look like the checkboxes I created. It looks perfectly as he planned it all along. I did not have to fill out an application, or drive across town, or have a certain size group; in his kindness God brought the opportunity right to the comfort of my own home, using the means I already have, in /his/ time.

Dear readers, don’t give in to discouragement when you know the Lord is leading you to something but it seems unattainable. Back up a little. Zoom out. Look for where his hand is working. Instead of putting him in the boxes you build, let him show you what he has in mind; it may be buckets full of goodness better than you had even imagined.

faith

Even When it Hurts

Hannah

My tendency toward binge-blogging is apparent again. 🙃 There is just much on my mind I want to get out somewhere productive.

As I mentioned in an earlier post, Easter weekend marked a foundational shift in my soul. I wanted to feel sorry for myself. I wanted to mope in feeling unseen and misunderstood. Instead, what could have been a morose, lonely weekend bloomed into one of the most transformative times of self-reflection and sacred dialogue I’ve ever experienced.

I started to say that I took my hurts to God, but the truth is I chose to sit with them, feeling pity for myself, and my Heavenly Father reached out to me. And in the thick silence of that weekend, as I grieved over the story I couldn’t possibly have imagined for myself 20 years ago, I saw myself and my life journey with more clarity than ever.

The truths I realized that weekend are too revolutionary to keep to myself. I realize that the fact that it took me this long to see myself with this kind of God-gifted understanding surely means that there are others needing to hear these truths as well. So on the days that the weight of your hard story feels like it will crush you into oblivion, whisper these words to your beaten soul, scribble them in your journal, tuck them deep into the hollows of your heart, and remind yourself over and over again until you have the strength to believe it.

God chose to leave you in this broken world—to live, to love, to struggle—not as punishment, but with purpose. The hardship you face isn’t pointless; it’s the very tool he is using to shape something in you that comfort never could.

He is at work in your pain, not to crush you, but to change you—to rescue you from the parts of yourself that hold you back from life as he intended it. And because he loves you deeply, he is willing to let go of your temporary happiness if it means drawing you closer to lasting wholeness.

God is unwavering in this mission. He’s not distracted. He hasn’t forgotten you. He’s committed—to your transformation, to your redemption, and to your good, even when it hurts.

community

When the Doorbell Doesn’t Ring: The Quiet Abandon of Terminal Days

Hannah

When you’re first diagnosed with a terminal illness, there’s often a flood of support—texts, calls, check-ins, care packages. People cry with you. They tell you they’re here for anything. They swear they won’t disappear.

Time moves on. So do they. There are seasons to our lives, and some people who may have been able to be more present in the beginning do not have the time and flexibility in this next season they are in. Perhaps others who weren’t available initially are now able to be more present as they enter a slower season of life.

What no one tells you is that terminal illness is not a straight descent. It’s a long, unpredictable goodbye filled with plateaus and crashes, slight recoveries and devastating setbacks. It’s not dramatic enough to be a crisis every day, and not gentle enough to be forgotten. It exists in this in-between space that makes people uncomfortable—too serious to ignore, too exhausting to engage with endlessly.

And in that in-between, some people begin to vanish.

Some friends disappear because they don’t know what to say. Others because they think you’ve stabilized and assume you’re doing better. Some perhaps can’t add anything else to their plates. Life, after all, goes on for them: promotions, vacations, weddings, baby showers. They’re not bad people—they’re just busy, or scared, or shy, or not able to confront your pain when they have the luxury of avoidance.

You sit in your room watching the seasons change. Spring arrives with its blossoms and pollen, and you wonder why it feels so far away. Summer blazes through with parties and long days, and you’re still in bed, waiting for a reply. Autumn colors the trees as your medications increase. Winter comes, and it’s the coldest one yet—not because of the weather, but because no one showed up for the last holiday. Or your procedure. Or just to sit with you.

Illness is isolating. Terminal illness is devastatingly lonely.

There are moments when you ask yourself if you’ve done something wrong. Were you not a good enough friend? Did you ask for too much? But deep down, you know this isn’t about blame. It’s about the raw truth that few people are prepared to walk with you through a slow, uncertain ending. <== Read that sentence again.

Still, not everyone leaves. There are those rare few who show up without needing to be asked. They don’t bring solutions—they bring presence. They don’t always know what to say, but they sit beside you anyway. Sometimes they bring coffee. Sometimes they just bring quiet. And their presence, however brief, becomes a form of medicine.

If you’re in this season of illness and loneliness, know this: you are not invisible. Your pain is real. Your courage, even when it looks like just getting through another hour, matters. You deserve community, not because you are dying, but because you are still here to be a part of it.

To those watching from the sidelines—don’t disappear. Show up. Even imperfectly. Especially imperfectly. You don’t need the right words. You just need to be willing to stand beside someone in their most human, most difficult season.

Because in the end, what heals us most is not the cure, but the connection.

Uncategorized

The Letters

Hannah

I probably should have started with this before my last post, because I’ve gotten some concerned responses. I am still here for every single moment ordained for me!

That being said, God has also been working in my life to prepare me for my Heavenly home. If I could write a letter to each one of you I would. So many of you are my prayer warriors and faithfully encourage me through the highs and the lows of my story. Since I can’t reach out to each of you individually, I’m going to be using my blog to write some letters to my people, so that each person will have the chance to hear my heart, and easy access to it. So please don’t despair when you see me posting the things I’m carrying in my heart. Know they are meant to be treasured by you, where you can return to them again and again.

Uncategorized

Walking Each Other Home

Hannah

To my ride-or-die friends who have walked with me through valley and mountain—

I know how deeply your beautiful hearts are wrestling with what you are being asked to do — to love so fiercely in friendship, and then hand me back to Jesus. To surrender our journey just as it felt like it was only beginning. How does one even begin to do that?

We have shared life together for about as long as the disciples sat at Jesus’ feet. Imagine how they must have felt, thinking their journey had only just begun — how desperate they must have been at the thought of losing their closest friend.

But as the disciples learned — and as you will too — God never asks us to walk alone. His Spirit of grace, His face in your friends, His voice in your heart, will comfort and guide you.

Yes, there will be tears. But there will never be a loss of hope or joy. The planting of you in my life is coming to bloom. We have loved deeply and served one another through many seasons, each with its own beautiful purpose.

Though I may slip away from this celebration a little early, it is only to join an even grander, more glorious one.

I ask that you continue in what we have learned together through this suffering: to show up, to love the brokenhearted, to carry hope into weary places. There are so many hurting hearts all around who need the same friendship, encouragement, and relentless pointing to Jesus that you have given me.

Our story doesn’t end here.

Go. Love fiercely. Serve joyfully. Laugh and grow richly, with hearts full of gratitude for the gift of friendship we are blessed to share.

I love you buckets. Xoxo

~Hannah

faith

The Worst Kind of Scars

Hannah

There’s a particular kind of pain that slices deeper than most—by the time the blade’s edge has cut deep into the soul, the compression meant to stop the pulsing flow is often insignificant and ineffective. This is the deep pain of being hurt by the very people who were supposed to be a reflection of Christ. The ones who were supposed to be your spiritual family. The ones you trusted with your most vulnerable confessions, your wounds, your heavy burdens. And instead of grace, you were met with rejection. Instead of love, you found judgment. Instead of healing, you were left with more scars.

This pain is a quiet heartbreak. A confusing one. Because how do you reconcile the love of Jesus with the rejection of His people?

It can look like being vulnerable in a small group and having your words twisted or used against you later. It can be coming forward with a struggle—addiction, abuse, mental health, prodigal children, doubts—and being met not with compassion, but with shame. It can be trying to serve, lead, or simply belong, only to be ignored, belittled, or pushed out.

If you’ve been there, I want you to hear this: you’re not alone. And you’re not crazy for feeling heartbroken and angry and confused. Jesus understands this kind of pain—He experienced betrayal, too. Not just from the world, but from those people closest to Him.

So how do you keep your faith when your heart is breaking?

Here’s what I’ve learned, often through long tears and difficult wrestling:

First of all, separate Jesus from people.

People are imperfect. Even well-meaning Christians can cause wounds. But Jesus—He never changes. He is the same yesterday, today, and forever. When people have failed you, He hasn’t. He still sees you. Still loves you. Still draws near. The church is meant to reflect Him, but when it doesn’t, He still remains good and trustworthy.

Lean in and feel the pain. Let it suck, and grieve it. Don’t minimize it.

Jesus never told us to pretend things are fine when they’re not. There’s space in his Kingdom to cry out, to lament, to question. Just look at the Psalms—David was constantly bringing his raw, unfiltered hurt to God. You can too. Your pain is valid, and God can handle your honesty.

Next, find community—but wisely. Not all churches are the same. Not all people are the same. It might take time, but there are places and people who will love like Jesus does—gently, kindly, humbly. Take your time, pray for discernment, and know that your healing is not rushed.

Finally, let Jesus be your healer.

No church can save you. No pastor can fully carry you. That’s not their job—it’s His. He came to bind up the brokenhearted, to carry burdens, to restore what was lost. Let Him do that for you. Day by day and layer by layer.

Faith after being hurt in church looks different.

It might be a quieter faith. More cautious. Less tied to the buildings and programs and activities, and more rooted in the secret place with God. That’s okay. Sometimes, when everything falls away, we finally see Jesus more clearly. Not through the stained glass of others’ opinions, but for who He truly is—gentle and lowly in heart, full of mercy, slow to anger, rich in love.

If you’re struggling, let me say this clearly: Jesus is not the one who hurt you. He weeps with you. He walks with you. And He is still worth following, even when His people fall short.

Your pain matters. Your story matters. And your faith—if it’s still there, even if it’s in pieces—is something beautiful.

You’re still seen. Still loved. Still held.

And most of all, you are not alone.

Kindly leave me a comment; it lets me know you’re listening!

faith

Update and Prayer

Hannah

This past week has been scary and challenging. Saturday morning I started my IV infusion and it didn’t take long to realize I had an infection brewing in my port. By the time my wingman took a quick shower to get me to the ER I was wracked with shivering, puking, had pain everywhere, had spiked a fever, and my heart was thumping along over 130 while my blood pressure plummeted. It was a blessing we arrived at the hospital when they had just emptied 8 beds. As soon as they checked my vitals they called a sepsis alert and had me back in a room. Sepsis is one of the worst feelings to go through physically for me.

The next several days were filled with IV antibiotics, blood draws, beeping alarms, a transfer to ICU as my blood pressure dropped into the 70’s over 30’s, more medications to fix all of that, a transfer back to the regular floor, and then a rather abrupt discharge from the hospital when we least expected it.

During one of the worst days while I mostly lay still in bed, unable to interact much with the world around me, I realized something about my prayer life. When I’m the sickest of sick I don’t really pray. I try, but it’s hard to keep focused with so much barraging my weary body. My cell phone was clipped near my head during this phase, so I was able to turn on my “Fight Songs” playlist, and that’s when I realized that the worship lyrics are my prayers in times like this.

Lying there unable to string thoughts together, I would let the words of the songs wash over me, and I would repeat them in my mind with a “please Jesus, yes Jesus,” but I couldn’t pray for myself. This is when I was able to rest in knowing that so many people were already praying on my behalf, and it was such a comfort. Thank you for standing in the gap for me when I couldn’t, and for praying me back home. I am gaining my strength and getting ready to slay all day with this sunny weather!

Uncategorized

The Fight

Hannah

The past few days have been a hard-fought fight with pain. Not super proud of it, but I’ve found myself begging for mercy; that Jesus would just take me home and free me from this. These prayers then make me feel sad, and I start thinking what that would really look like for me and my people.

My mind wanders to the verse that talks about the blessings given to those who are obedient to God. “May you see your children’s children (psalm 128).” So if I don’t get to see my grandchildren, does that mean God is a liar? Or should I just skip over the verses like this?

It’s tempting to see scripture through the lens of my own emotions and experiences, but I am learning to look at God’s promises through the lens of the Gospel instead, and the Gospel tells me he keeps his promises. If I don’t get to experience these promises here on earth then I must believe these promises are pointing me to my true home, Heaven, where these promises will be fulfilled.

Matthew 19:28 tells me that for every promise I miss out on here on earth, I will receive a hundred times that along with eternal life. His heart is not dishonest, but generous in all that he promises and gives. Yes, I still grieve over the things and people I will miss out on here, but I believe God wrote my story, and is telling his Story through mine, and that is important enough that it is worth the losses experienced in the telling of it.

God tells me that the sadness and suffering I experience here on earth are nothing compared to the glory that awaits me in Heaven, and that his love is better than the best of what this world has to offer me. When my most cherished things in this life are taken from me, more space is created in my heart for him to give me far more than I could ever imagine, for all of eternity. And that, my friends, is worth my fight.

family

Messy Grace

Hannah

I learned an important lesson yesterday. Well, probably not just yesterday. I have a feeling I’ve been shown this before, it’s just that I need lots and lots of reminding.

My Little was really struggling. You know how someone steals one of your dollars and you decide to burn the other $99? Yeah. My little was having one of those days, and it wasn’t pretty. I had made several attempts to offer helpful input, which was just met with more frustration. And then I hit the parenting connection jackpot.

I was making dinner, and trying to do it in a hurry. Well actually, it was dinner time, but I was making breakfast because I failed to plan ahead. I had exhausted the week’s meal plan already and needed groceries and didn’t have time to thaw anything out, so breakfast for dinner was the last ditch attempt to act like I had it all together. Fortunately it is well received around here.

Within about 5 minutes I had efficiently gotten tortillas into the oven to warm, sausage rewarming in the skillet, diced potatoes in another skillet, had the cheese laid out, and all that was left was to wash and crack the eggs and get them into the third waiting skillet. I estimated I would have everything hot and put together within 15 minutes, perfect. Then my struggling Little walked through and the frustration and sadness was palpable, y’all.

One of my earlier suggestions had been to check out our emotion wheel and do the corresponding activity. I probably use this more than who I got it for, and I’ve found it helpful. The activity suggested was to hold ice cubes, which sounded intriguing to me, but was met with much resistance.

As I started counting out the eggs and grabbed a pump of soap to start washing them, an idea occurred to me. Washing the eggs would involve hands in cold water; maybe that would have the same helpful effect at derailing the struggle train. So I offered the task up, and it was accepted.

I could see that this activity had helped just a bit, so I started thinking of how I could keep us moving in this direction. I looked at the pile of eggs to be cracked, and my rational type A personality went to war with my empathetic emotional side. I could get the eggs cracked in less than 2 minutes with no bits of shell and no mess, keeping dinner on track with my projected time estimate. Or I could offer it up to my Little in hopes that it would help blow away the fog of frustration and sadness that was tinting the day. The type A in me sighed as I opened my hands to giving up control.

“Hey, would you please crack these eggs for me? It would be really helpful.”

I got a hint of an exasperated eye roll, but then sleeves were rolled up and small hands reached for the first egg, still glistening with the last coat of cold water. One by one the eggs connected with the counter, shells cracked, yolks plopped into the glass pitcher. 8 eggs, several shell splinters, and two hands covered in gummy slime later, there was a smile.

“Thanks for letting me do that, Mom. That was fun!” And then a few minutes later from the other room… “Mom, I just love you so much.”

I was still picking bits of shell out of the eggs and cleaning yolk off the side of the pitcher. And the faucet. And the sink. And the counter. My heart swelled and twisted at the same time as I realized that making him feel seen and needed and valuable was exactly what he needed, and my own need for control and perfection almost got in the way. I tucked these feelings in my heart, hoping to remember them for next time.

Friends, the messes are worth it. People are messy. My messiness may look different than yours, but we all have a deep need to be seen and valued beyond the messes that we make, and accepted anyway. It was a humbling lesson that I’m sure I will need reminding of again, so that’s why I’m sharing it. We all need the reminder sometimes that letting go of our own hangups may be just the thing needed to make the confidence of someone else soar.

PS~ add “crack some eggs” to the wheel under Anger —> Annoyed. 😉

faith, Uncategorized

Collecting Scars

Hannah

This week in my reel of photo memories this one popped up…

Immediately the words to Ellie Holcomb‘s song, “Just As Good” started echoing in my mind, where they lingered for the rest of the day. “Oh every ebeneezer points to where my help comes from.”

Who would have thought these painful slices would become my stones of remembrance?

The many scars my body carries tell a story of God’s divine assistance and mercy. Times when I have been wounded, but He has allowed healing. Some scars run deeper than others. Some are still in the process of healing, but all of them come with a story of challenge that was met with grace and healing.

At times I feel embarrassed by my wounds, but reality is that these and other marks paint a connect-the-dots picture of my hard-fought story—right on my own skin. They are reminders that I have lived a life not of safety, but of the opposite. I’ve pushed myself, and I’ve been pushed, sometimes too far, and I would not have it any other way.

When I see my scars, I remember the difficult challenges, and the opening of my hands to surrender to an attitude of trust. I see the reminders of accidents and falls where I couldn’t hold myself up, but I was still held. I see evidence of a plot line that included my defeat, but instead is a story of survival.

I am drawn to the lyrics of the song Scars by I Am They. “So I’m thankful for the scars ‘Cause without them I wouldn’t know Your heart, And I know they’ll always tell of who You are, so forever I am thankful for the scars.”

It takes some hard-fought determination to be able to see these red and white squiggles carved into my flesh as accomplishments, but that is what has gently happened as the number of my scars has ticked up with each passing year.

I can choose to let my scars only remind me of the pain, or I can let them remind me of the scarred hands that payed my ransom.

Tracing my finger over these raised little lines I’m struck by immense truths. A stunning canvas of struggle, embodied suspense. In every imperfection, strength that can be found; the echoes of hardship that shapes my heart and mind to know and trust a good Father who is writing a good story for me.

Please leave me a comment, it lets me know you’re listening!

endurance

Lament

Hannah

I reach my desperate hands toward the heavens from where my help comes. I cry out to God because I know He will hear me.

How long God, will I watch my family crumble? Why do each of my children have to suffer so hard? How long will we wait for our redemption story? Have you forgotten us?

Please strengthen my hope, it is weary within me. Please redeem your people with your mighty hand. Restore to us the years the locusts have eaten.

I remember full well the days you stood me firm on a mountaintop. I remember your deep compassion for me, and how you saw something in me I could not yet. I remember the glimpse of my story you gave me, and it is a good, good story.

I will continually praise you, because not a moment of my life is hidden from you. You know full well what the finished picture will look like, and you are trustworthy to take me there. My thoughts are but chatter compared to the steadiness of your all-knowing mind. You have led me this far, and I will yet trust your kind and compassionate heart to bring my story to completion.

Thank you friends, near and far, who have prayed and loved and carried me through this hard few weeks. May God richly reward you for your faithful kindness.

daily graces

The Most Difficult Gift

Hannah

I love giving gifts, and I enjoy receiving them, yet I struggle to accept one of the greatest gifts offered to me; the gift of receiving. It is a humbling place to exist, needing others’ love and care, and I find it difficult at times. I have realized because of my love of giving that it takes far more grace to receive than it does to give.

After years of priding myself on my strength, being humble is difficult for me. It’s hard to ask for help. Do you find yourself agreeing with me? Yet we are all in need in one way or another; broken and struggling but putting on the best brave face we can muster just to prove we can go it alone.

In this long, loooooong season of needing to accept the help of others I find that the luster of having it all together is wearing thin. I see the depth of brokenness within me and around me, and I long to connect in my brokenness. I long to be known and to know the true hearts of others around me.

At my core I am a doer. A server, a giver, a wear-myself-down-to-nothing all in the name of love kind of girl. Accolades for me, right? What if I told you it’s just a ruse for my pride and need for control? Control that blares I’m not needy, I can do it myself, I don’t need anyone— unless someone needs /me/, and then I’m there.

I have spoken with enough people to know that I am not alone in this. Well, maybe I’m alone in admitting it, but I’m not alone in feeling it.

For 35 years I basked on the pedestal of being able-bodied, capable of doing anything that needed doing. I spent decades believing my purpose was to wear myself out pleasing those around me. I knew the truth, but it was easy to ignore when I had strength on my side.

Culture convinces us that our success is measured by our strength. It’s a bold-faced lie that what we are capable of is what we are loved for. This isn’t living in the truth of the gospel. Thankfully God is continually gracious to keep showing me the sin of my pride and need for control. He patiently loves me back to the foot of the cross and reminds me of my need to be needy and not just needed.

It took the stripping of my strength by this awful disease to expose this to me, and I still have to seek grace often because my heart’s bent is on proving myself instead of letting myself be loved in my neediness. Jesus is breaking me of my strength and showing me the grace to be found in embracing my weakness, and the joy that it gives others who want to help.

I hope that you can find this truth in your own life. Don’t settle for being loved for your abilities instead of being loved for your heart. Resist the temptation to keep yourself busy in order to feel accepted. Look for the ways to slow and find your significance in something more real. Then notice how you find peace and rest in giving others the gift of helping.

Uncategorized

Speechless

Hannah

Here is a graphic about my illness to give you an idea of the things it has, does, and will affect.

Inability to verbally communicate.

I have been a spectator to this with my friend who has ALS, and it is hard. Talk about a massive loss of control. Imagine the amount of having to slow down and let your actions speak louder than your words, or in this case instead of your words.

Over the past few months my voice has begun to weaken. At times it’s raspy, or sounds like I’m hoarse or getting sick. With this new development my speech therapist started the process for me to get an AAC device as an alternative means of communication. Control Bionics and my speech therapist have been wonderful to work with. They were very efficient at getting me set up with a device that will meet my current needs, as well as my needs as my condition continues to change.

At first, life with my AAC was about getting familiar with it and practicing navigating between the pages and words and phrases to best communicate. My device has sensors on the front that either detect my eye movements, or a slight muscle movement of my hand, and it selects the letters or phrases I want to say. It’s amazing we have this kind of technology, and I’m humbly grateful to be able to use it. I even had the opportunity to bank my own voice so that when it speaks for me you will still hear my voice. This part is expensive, but we are looking for solutions!

This past week my voice has taken a turn. One morning I woke up and barely had a voice at all. Some of it returned, but I now sound like a quiet, scratchy record with the occasional skip where nothing comes out at all. Truthfully it’s been a little unnerving seeing how fast I could be plunged into silence.

Hardly anyone can hear me anymore, and the effort and breath it takes to make my voice loud enough to project across a room is exhausting and frustrating. I wasn’t expecting this part to be so hard, but it’s hitting me right in a tender spot I didn’t know I had. I feel panicked to not be able to explain myself, threatened by the thought of not being able to call out and get my kids’ or caregivers’ attention. And if you see me singing along in church I’ve fooled you. I’m lip-syncing.

Another practice in total surrender; in cupping my hands around what’s left and holding out all I have to offer. A chance to do more listening than talking. Another practice in giving up what was and adjusting to what is, and believing that regardless of the journey or the outcome, I am held.

Gratitude

For Such a Time as This

Hannah

Throughout the debilitating process of this disease I admit I have wondered from time to time what good this trial could possibly teach me. It seems unfair. I have been wrestling with this question more so as I see the effect it has on my littles and my husband lately. What good is in it for them? God promised to use our circumstances for good (Romans 8:28). As the resulting wounds have grown deeper I have been asking more often; what are you doing God??

In typical fashion, He is faithful to point out His hand in my life and quiet my unbelief. Esther 4:14 runs through my brain on a constant loop; “perhaps you were created for such a time as this.” Then I was brought to John 9. Jesus and friends are with a blind man, and His friends asked why this man was born blind; was it because of something he or his parents did? The answer Jesus gave is everything. He replied, “No, this happened so the power of God can be seen in him.”

Wow. Talk about humbling. To think that God thinks enough of me to use me to reflect His power. This does not make the journey easier, but it makes it worth it. When I’m tempted to complain and long for the healing of Heaven I want to remember that His power is at work through me. It really is obvious, but sometimes I’m a slow learner. Look at how long I have been fighting! The average life expectancy with this is 6-10 years… I am in year 12! Why would God keep me here and allow the suffering to continue if not to bring glory? If you need proof of miracles well, you’re looking at one!

To God be all glory for allowing me the gift of being His and giving me a purpose beyond all I could imagine.

Uncategorized

An Honored Rite of Passage

Hannah

When I met with my counselor recently she said, “If you were given the space and peace I think you would succumb to your illness very quickly, but out of sheer stubbornness you continue to exceed all of our expectations.” She’s not wrong. As far as the stubbornness scale goes I’m way up there near the top, and I do have quite a number of things I want to feel like are going to be ok in my absence. I realize that may sound arrogant, and some of it probably is, but I also think most of us if we accepted that our time is limited have things we want to settle before we leave this world.

I think there are pros and cons to this stubbornness to cling to life. As a culture we really look at death in a strange light considering it is something that happens to all of us eventually. We measure the length of a person’s life and state that they were taken too soon, or they died much too young, but what if it was exactly the right time? What if your story hangs heavy on the thread of /this/season, /this/ loss?

We seem to live in a mutually accepted denial of the fact that we and those we love have an expiration date. This has a tendency to rob us of a joy and peace we can experience in the face of anticipated loss. We can all probably find a little purpose by leaning in and loving like crazy and then graciously walking our loved ones Home with our presence, our honesty, and our understanding.

Uncategorized

Words with Weight

Hannah

At the end of each year as I spend some time reflecting on the year before, inevitably a new word saturated in meaning is impressed upon my heart for the coming year. That word remains the theme of my photo album, and the compass to how I hope to lead my family to grow throughout the year.

This past year our word was Shalom. Many of you may already know that Shalom means peace. I was longing for peace at the beginning of this year, but it went even further to define our year as not just an absence of war, but an overall sense of fullness and completeness in mind, body, and estate. To make full restitution; RESTORE! This brought to mind one of my favorite verses, Joel 2:25. “I will repay you for the years the locusts have eaten.”

Every time I passed the 6 letters framed upon our front door I prayed for peace both within our home, and outside of its doors. I prayed that God’s peace would bring a sense of completeness to our home; to our relationships, our walks with God, and our friendships with others.

As 2024 drew to a close and I started seeking and praying for our word of this new year I began seeing it on repeat, the word chosen for this year. This year’s word is JOY. I anticipate we will be blessed with an abundance of joy, and we will also see it woven in and out of many of our daily experiences. Perhaps we will learn better how to give joy, and we will become accustomed to receiving joy even in circumstances we might not think to look!

As we wind down our time in Shalom, though still activity seeking where we can give and take peace, I excitedly welcome this 2025 season of all things Joy!

Christmas, Uncategorized

Enough

Hannah

I hardly have any photos from Christmas this year. Christmas Eve I missed our candlelight service at church because I was too weak to sit up or stay awake.

Our candlelit tradition of “shepherds’ meal” on the night of Christmas Eve only kinda-sorta happened, because I wasn’t well enough to remember, or to get up and make different choices of soup and bread like I usually do. The night was rescued by a frozen tub of tomato soup found in the bottom of the freezer, and the calming glow of our advent candles. I lay in my hospital bed in the next room listening to the chatter, and chiming in silly questions like “what ever happened to the sheep after the shepherds left to see baby Jesus?”

Late on Christmas Eve I still hadn’t managed to wrap more than 4 gifts to tuck under the tree. Anyone who knows my personality knows that is the polar opposite of my checklists and neat packages tied with string weeks before December 25th. My husband and daughter came through by busting out all the wrapping (with the help of a healthy stack of gift bags) in the late hours as Christmas Eve melted into Christmas morning.

Christmas morning… well, really most of the whole day is a blur with more chunks missing than I’d like to admit.

What I /do/ know is all four of my babes were under one roof again.

My silly dream of a Hannah tree finally happened, in all her pink glittery glory.

Even through sickness and pain, the cozy warmth of a crackling fire still brought with it the memories of Christmases past, and the anticipation of more to come.

Zero kinds of Christmas cookies or fudge happened, but “Kitchen Trash” sure as heck still did.

I did not capture my traditional “photo every hour” series of Christmas Day, but I did manage to grab the still-frames of the most important moments of joy and togetherness.

And as the day wound down and the doubts crept in with the quiet, my wise sweet little sister typed out the balm that my soul so badly needed; I need to adjust my definition of the word tradition from “every,” and “have to,” to “some years,” and “like to.”

When I sifted through my unmet expectations I found that though I didn’t get the Christmas pickle unpacked this year, there was just as much joy and gratitude and wonder in the exchanging of the packages. And even though we weren’t able to visit the lights at the bell tower or drive the neighborhoods looking for the best displays, the twinkling in our own window was enough to cast that magical glow that makes you feel warm with anticipation.

This Christmas started out feeling like I dropped more balls than I caught, but as the day unfolded and the story of the Light coming into this dark world permeated each of our moments and traditions, all of it was suddenly more than enough. I was enough. Because He is more than enough.

Uncategorized

Five Favorites

Hannah

I’ve had some heavier posts lately and still to come, so I’m keeping it lighthearted today by sharing a few of my favorite things! Have you tried any of these?

A sweet friend brought us one of these Danish Kringles from Trader Joe’s. Light and flaky and filled with the most delicious almond flavored filling, it is a true treat! If you want to try it you need to snag one soon, because this is a seasonal item they offer!

These mason jar zipper bags have made my spice situation so much easier! I tend to accumulate a lot of different spices trying new recipes, and it was taking over an entire cabinet. I ordered these bags and dumped my spices into them and keep them in a rectangular basket that now only takes up a portion of one shelf. I made them easy to find by organizing them into letter order. Not alphabetical, but all the A’s are together all the B’s are together, etc. Here is the link if you want to get yourself some! Mason Jar Zipper Bags

If you have been contemplating having special dishes for Christmas these are on sale until December 26th. I have been on the lookout for Christmas dishes for years, but I knew if I was going to sacrifice the space for a seasonal set of dishes it had to be one I really liked. Sam’s Club for the win! Not only are they adorable, they are also huge, and the set serves 6 which is perfect for my family! These cute dishes make me smile every time I serve up a meal. Here’s the link if you want to check them out! Peanuts Dishes

Ok, my Voss water habit may be a little silly. I first started getting these because I like the glass bottles. They are great for reusing. Then they started making this smaller version and I liked them even more, but they started making the bottles plastic and I didn’t like that. Well just recently this one entered the scene, and not only is it a glass bottle, but it’s also sparkling which I find much more enjoyable than flat water! I found these at Dorothy Lane Market, but I know Walmart carries Voss water and I’ve also seen it at different gas stations.

I started getting some kind of respiratory crud a few weeks ago and one of my dear friends immediately brought me a jar of her homemade Elderberry syrup. I had already started using my homemade garlic honey, but when I added the syrup I noticed a positive difference within a day, and after that I only got better and it never really turned into anything. That was enough to make me a believer in having Elderberry syrup on hand. Here is the recipe for Elderberry Syrup and here is one for how to make Fermented Honey Garlic

I hope you enjoyed my five favorites and found something new to try!

Multiple System Atrophy, Uncategorized

Losing Vision, Finding My Offering

Hannah

If you watched my video this week about getting new glasses, you undoubtedly noticed its lighthearted tone . I try to add an underscore of humor to all of my videos there, since the goal is education and awareness about MSA, not to garner pity or sad feelings from people. In reality, this latest change for me has been a little more heavy than humorous.

It started when I noticed my vision had pretty rapidly gotten very blurry. I wondered if it was a side effect of one of my medications, or if the slight glasses prescription I already have needed to be updated. When I went in for an eye exam, I learned it was neither. The reason for the profound vision loss I was experiencing was because my disease has weakened the muscles controlling my eyes so much that the blurriness I have been noticing is actually me seeing double.

The doctor that saw me that day was so compassionate and kind-hearted; I could tell he truly cared about my situation and wanted the best outcome possible for me. I sat staring through the giant robot-thingie while he dialed in lens after lens, trying to make it strong enough to correct my vision. It got better— the two birthday candles that started a few hand widths apart from each other moved in closer and closer, but even at top strength the candles never merged into one.

So I left the office with a new pair of thick bifocal glasses, feeling very much like the rug had been yanked out from under me by this new development that had not even been on my radar. And truth be told, even with my new specs there is a lot that has been lost as far as what I can see in detail, which in turn affects what I can do.

It was a disheartening blow at first, that left me wondering what I had to offer now. My Etsy business would be affected, my art, my writing… what was left for me to give to the people I love and care about?

For a little while, my mind went to the same place it always used to go when something was taken away from me: What am I still useful for?

Illness has a way of asking that question over and over again. Every new limitation feels like another subtraction sign—another thing crossed off the list of what you once could do.

And if I’m honest, I realized something in the middle of that discouragement: somewhere along the way, I had quietly started believing that my value to God and to other people was tied to my abilities. My productivity. My output. What I could make, build, write, organize, or contribute.

But that has never actually been the way God works.

God never needed my abilities.

He never needed my Etsy shop, or my artwork, or my words, or my capacity to juggle responsibilities and keep producing things that look impressive on the outside. None of those things were ever the offering He was asking for.

What He wanted was always much simpler—and much harder.

He wanted my heart.

When I started reading through Scripture again with this in mind, it was everywhere. Over and over, God makes it clear that He is not impressed with human strength or skill. In fact, He seems to go out of His way to work through weakness.

He chose shepherd boys, stutterers, widows with two coins, fishermen with no education, and people who openly admitted they were afraid and inadequate. Again and again, God reduced the resources so that no one could mistake where the power came from.

Which means my declining abilities are not a surprise to Him.

They don’t disqualify me.

If anything, they strip away the illusion that I ever had something impressive to bring to the table in the first place.

The truth is that my offering was never supposed to be what I could do.

My offering was always supposed to be me.

My trust.

My willingness.

My obedience in whatever small space I’m given today.

The older I get and the more this disease takes, the more God keeps narrowing things down to that single point: Will you still give me your heart when the things you used to rely on are gone?

And the surprising thing is that there is actually a lot of freedom in that question.

Because if God only wanted my abilities, I would eventually fail Him. Bodies break. Energy fades. Vision blurs. Talents come and go.

But if what He wants is my heart, that is something illness cannot take away.

Even on the days when my eyes won’t cooperate, when the candles refuse to merge into one clear image, when I can’t do half the things I used to do… I still have something to give.

I can still choose to trust Him.

I can still choose to love people well.

I can still offer the small, quiet faithfulness of a life surrendered.

And maybe that was the lesson hiding inside this unexpected trip to the eye doctor.

My vision may be fading in ways I never anticipated.

But in a strange way, the picture itself is becoming clearer.

God never needed my abilities.

He just wanted my heart.