Tag: community

suffering

Hard is Hard

Hannah

I just want to belong, and I feel like I don’t.

I want to embrace community in the same capacity I did when I was well, but the truth is it’s not the same. People feel awkward around me, and I’m embarrassed that that’s what I bring to the table. People look at me with my glaringly obvious physical struggles, and they don’t know what to say. They’ve been carrying a difficult thing this week, but when they measure it against the ticking time bomb of my terminal illness, it feels insignificant, so they minimize their struggle and choose to talk about nothing.

Friends. Family. Random strangers who happen to be reading this… there is a fundamental truth I learned when I buried my daughter that holds true like the steady, blazing colors of a war-torn flag. Hard is exactly that; HARD. We shouldn’t be comparing hards, because there just is no comparison.

With the fresh wounds of having stood at the cavernous edge of my daughter’s grave, I heard things like, “I know how you feel, because my child got pneumonia and had to be in the hospital, and it was awful.” Or, “I know what you’re going through; I still haven’t gotten over losing my dog last Spring.” I watched the moving lips of these stories, but the sound was deafeningly absent because of the noise of what rose up inside of me. I seethed.

How could you compare something like that to what I was going through? And then I learned something crucial to understand. My hard is the worst thing that has happened to me thus far. Your hard is the worst thing that has happened to you thus far. You may not be able to relate to my exact story, because you haven’t been there, but you have your own story where you have experienced the most awful thing so far, and it rocked your world and shook your faith, and left you standing with gaping wounds you didn’t know how to patch yet. And that is where we find common ground. It is inevitable that we will all walk through earth-shattering hard things at some point, and when we come to those trials we each gain a little more compassion and understanding that we didn’t have before.

And maybe that is what I have been missing when I feel like I don’t belong. Belonging was never meant to come from having the same circumstances, the same bodies, the same stories, or the same kind of pain. It comes from being willing to sit beside one another in the places we don’t understand and say, “I may not know exactly what this is like for you, but I know what it is to hurt. I know what it is to be afraid. I know what it is to need someone to stay.”

So please don’t measure your pain against mine before you bring it to me. You don’t have to apologize for having a bad day because my days are hard. You don’t have to hide your grief because mine looks bigger from the outside. Your sorrow does not become less worthy because someone else is carrying something heavier. There is room at the table for all of it.

And if you don’t know what to say, you don’t have to fill the silence with a comparison. You can simply tell me the truth: “I don’t know what to say, but I’m here.” You can tell me about the thing that broke your heart this week. You can let me be more than my illness. You can remember that I am still a person who wants to laugh, listen, complain, celebrate, and care about the ordinary things that make up a life.

I am not asking anyone to pretend that my circumstances are ordinary. They are not. I am asking to be met as a whole person inside of them.

I want to belong—not because my life is easy, and not because anyone can make this hard thing disappear, but because I am still here. I am still loving. I am still reaching for connection with whatever strength I have left. And maybe belonging is not found in the absence of awkwardness or pain. Maybe it is found in the brave, imperfect choice to stay present anyway.

So bring me your hard. I will bring you mine. We don’t have to compare them. We can simply sit together beneath the weight of them, reminding each other that neither of us has to carry it alone.

Uncategorized

I Need Some Help

Hannah

Hey friends, I have something you can help with… I entered an art contest, and one of the categories is “fan favorite,” which is decided by the number of votes a piece of artwork receives. If you would be inclined…

  1. Follow this link: https://www.staedtler.com/us/en/discover/staedtler-international-creative-challenge-2026/
  2. Scroll down to #3 and click on the blue rectangle that says “voting,” and click on it.
  3. Enter your email (for keeping votes fair) and you will be taken to the gallery of all the art that has been entered.
  4. In the search bar type “Hannah M,” and my submission should pop up.
  5. Hit “like!”

Thank you for your time; your support is much appreciated!

suffering

Life Raft

Hannah

For an easy $80-$250 you can acquire the materials to make a pretty decent DIY life raft, a cost I suspect many of us would easily triple or quadruple if it came down to preserving the life of someone we love. It may be surprising then to hear that there are even simpler and more affordable ways to snatch a life back from the brink. Don’t feel bad, I was acting quite ignorant to this myself until the life-affirming experience I had earlier this week.

A weighty world and a few unexpected shoe drops this week had me feeling rather dismal and uninspired as I rode out the sweltering days of a Midwest summer. The isolating circumstances of my illness had been contributing to a build up of unshared anxieties, paired with a lengthy succession of sleepless nights as I wrestled with symptoms I’ve felt too small to tolerate. After a “hair that breaks the camel’s back” experience, my fear and desperation caused all of this to bubble high enough that my struggles were leaking out into unassuming conversations. Conversations that should have first happened between myself and my Heavenly Father to begin with, but as his attributes have proven to me historically, he again lavished grace upon grace for my shortcomings and gifted me what I had been too troubled and preoccupied to ask him for in the first place.

As I visited with a friend this week her thoughtful questions and tender attentiveness probed out some of the wrestling matches I was engaging in, and unassuming as I was for her to be the answer to any of my concerns, her loving character held the power to change the trajectory of my week, my heart, and I hope, my very life.

We are all fighting battles big and small, and though comparison is an ill-fitting tool with which to measure, the difficulties my friend is faithfully navigating make most of my discomforts look like small potatoes. That didn’t stop her however, from following her heart and lavishing love upon me despite the meager bucket she had been given to pour from. And the results created a chain reaction of love and care that I forever want to be a link of.

What stops the rest of us then, from using our gifts in whatever quantity we contain them to reach out and be the life raft to the hurting around us? We are brushing shoulders with people whose crushing depression or debilitating circumstance may just be one small act of kindness away from the difference between life today or death tomorrow, so I propose we follow my friend’s example and expand our focus from our own hard stories to give us the clarity to see into the lives of the people around us who just need one kind word, one thoughtful gesture, one glint of truth to create the bridge that gets them from their hard today’s and into the lavish hope that tomorrow brings.

Suffering is simply not restricted to the occasional hard story that a friend of a friend of a friend shared with us; it is rampant and violent and bullying the hearts and minds of people we rub elbows and hearts with on a daily basis, so won’t you join me in being a line in the master story of someone whose life went from over to exuberantly fulfilling because of the one simple kindness that someone offered up with their own battered hands? Running on empty won’t ever be a valid excuse for those walking a servant-hearted life, because we serve a God who gives generously to those he loves, and he is capable of feeding thousands with your small loaf of bread.

Look around for the places you can be a life raft to someone who is feeling one breath from giving in to the raging waters, and then do that on repeat in your good weeks and your hard ones, because these hard-fought days are so much richer when graced with the possibility of hope gifted by a friend… or even a stranger. Then come share your story with me— I want to hear how you made a stand to be the domino in one person’s spiral that then turned out to be the victory shout of unrestrained joy!

Uncategorized

Who Remains

Hannah

As my illness has not so quietly crept into new areas, the clear, trustworthiness of my world that was semi-predictable has faded as well. Despite what my energetic heart and mind have had planned, my body is simply not getting the message, often doing the opposite of what I’m asking it to. This was especially evident this past week.

Sunday I slept through most of the sermon and parts of worship. Again. It had been a tiring week—being in the middle of a 2 week stretch where my husband was traveling, but I honestly felt like I got a decent night’s sleep on Saturday. My fatigue continued though, and I found myself either missing things, or having to cancel plans because my body was determined to sleep more whether or not I was at an event or behind the wheel.

Tuesday a dear friend came over to visit. After just a few minutes chatting I dozed right off mid conversation . I jostled awake shortly, and profusely apologized for my rudeness. My friend was as gracious as could be. The next thing I knew I awoke a significant time later to my friend still sitting at my bedside. She had brought her Bible, and as she read she took notes that she compiled into a beautiful and encouraging 3 page letter that she gifted to me on her way out. I was sad and upset that I had missed out on visiting with her, but her words were a gift to my heart.

“Please don’t be embarrassed. It was an honor you let me in today and I enjoyed the time by your side even if it was a quieter visit. Love you!”

I had another friend visit recently with her kids in tow. The littles sat at the dining table and kept busy while their mama and I visited. I didn’t even realize I was sleepy until I startled awake to see her hustling her littles quietly out the front door.

That moment sat heavy with me long after the door shut. Not because she was unkind—she wasn’t. She was trying to be considerate. Trying not to embarrass me. Trying not to wake me. But what I woke with was the reality of it all. The quietness of it. The careful escape. The unspoken understanding that the visit had suddenly become awkward and there was no graceful way to recover it.

Illness has a way of turning normal interactions into strange little social negotiations nobody knows how to navigate. That may be one of the loneliest parts of this illness for me lately—not just the symptoms themselves, but the way they alter the atmosphere in a room. The way people start adjusting around me. Whispering around me. Watching me carefully. Exiting cautiously.

I know the people who love me are doing their best. I know they aren’t judging me cruelly. But it is still difficult to repeatedly become the unexpected thing everyone has to accommodate. I miss being easy to be around.

My friend who stayed while I slept gave me a gift I didn’t even know I needed; the gift of presence.

Not fixing.
Not rescuing.
Not trying to force the moment to be less uncomfortable than it was. Just staying.

There is something profoundly Christlike about that kind of love. The kind that does not flee weakness or rush past suffering, but settles beside it without demanding it hurry up and become easier.

I think so often I have imagined God’s love primarily through the lens of intervention—that if He loved me, surely He would fix this. Relieve this. Wake me up from this exhausting fog my body keeps pulling me into. But lately I am beginning to wonder if sometimes His love looks less like removal and more like companionship. A God who remains.

A God who is not embarrassed by my limitations. Not irritated by my weakness.
Not awkwardly slipping out the front door because He doesn’t know what to do with me.A God who stays at the bedside.

Maybe that is why the presence of faithful friends has ministered to me so deeply in this season. Because every quiet act of patience, every unhurried moment, every person willing to sit in the strangeness of this illness without recoiling from it—they are reflecting Him back to me in ways I desperately need.

Not every act of love looks dramatic.
Sometimes holiness looks like simply staying when it would be easier to leave.

Terminal

Drifting

Hannah

There was a time when they were the new couple. The friendly girl, not afraid to take on a bleak prognosis, and her wingman, always at her side helping her along.

Then things started to change. The wingman was often tied up elsewhere, and eventually wasn’t available to pursue the same life she did, so she continued showing up on her own, often with a kid or two in tow. And then that dwindled too, the kids stopped wanting to get up on Sunday mornings, pushing back against beliefs they once embraced.

The girl continued to push herself to be there, sometimes through difficult obstacles. A wheelchair ramp that often did not work. A car door that jammed half the time. But instead of resolution, she had to soldier on in the best way she could, piecing things together to work so she could still show up.

Being in that place made her come alive, surrounded by likeminded friends journeying together. Eventually though, even that got too hard in a body that was fighting against her in every way.

When she tried to use her gifts in the ways she still could, she was nothing more than an inconvenience. Where her phone used to light up if she left a vacancy in the front row, it now sat gray and silent, as if the empty space had simply backfilled in her absence.

She hoped that the community she worked hard to build around her would continue to surround her in this new season and new capacity, but things grew quiet.

The walls of her room that used to echo with presence and laughter now felt more like walls of a prison, as visits became fewer and further between. Still she clung to the hope that her heart and her home would be full as she journeyed toward Home. Then came the realization that this road was going to end just as lonely as it had begun.

But that wasn’t the whole truth—just the part she could see.

Because somewhere along the way, she had quietly started measuring love by footsteps and phone calls… by who showed up and who didn’t. And while those absences were real and painful, they were never the full accounting of her life.

What she couldn’t always feel—but had not lost—was presence.

Not the loud, bustling kind that fills a room on a Sunday morning. Not the kind that depends on functioning ramps or willing friends. But the steady, unrelenting presence of a God who does not require her to “get there” in order to be near.

In the stillness of that room, where the walls sometimes felt too close and the silence too loud, there was Another who had never once failed to enter in.

The One who saw every effort it took just to show up.The One who noticed when no one else did. The One who did not measure her faith by attendance, but by endurance.

And maybe—though it took time to admit—her life was not a story of abandonment, but of being held in ways she didn’t expect.

Because the truth is, community can falter. People can disappoint. Even the most well-meaning hearts can drift when life gets busy or uncomfortable or unfamiliar.

But God does not drift.

He sits beside hospital beds and wheelchairs.
He remains when invitations stop coming.
He speaks in quiet when the noise of life fades.

And He does not wait at the finish line—He walks every inch of the road. So while it may have looked like her story was ending the way it began, heaven would tell it differently. It would say she was never unseen.
Never unsupported. Never alone.

It would say that every hard step she took toward Him that felt unseen mattered more than a hundred easy ones taken in comfort.

And it would remind her—gently, faithfully—that “home” was never something she had to gather people to reach. It was always where He was. And He had been there all along.

Friendship, Uncategorized

Curiosity & Caring

Hannah

There’s a sacredness to suffering that not everyone understands.

When someone is walking through the deep waters—when every breath feels borrowed and every day is held together by grace—questions can become sharp without ever meaning to be. Have they given you a timeline? What treatments are they trying next? How bad has it gotten? Have they told you when they expect you to die?

Some of those seem atrocious, but they are questions we have actually answered had to field at one time or another. Sometimes these questions slip out clothed as concern, but they land like cold hands on tender skin.

Curiosity is not the same as caring. Curiosity wants information. Caring wants presence. Curiosity circles around pain to peer inside. Caring steps into the shadows and sits down beside you. Curiosity tries to relieve its own unease. Caring is willing to feel uncomfortable just so you don’t feel alone.

I’ve learned there is a holy difference.

I don’t mind sharing pieces of my journey—there is beauty, even here, and God’s fingerprints are everywhere. But when the conversation turns to timelines for my dying or details of treatments that stretch my limits just to endure… that crosses into a territory my soul guards carefully. It’s not because I’m ashamed or afraid. It’s because this is holy ground for me and my family. We are living it, breathing it, praying through it. I am learning to trust God in the dark, and trust is fragile when handled carelessly.

What I welcome—what I desperately treasure—are those who choose presence over answers.

The ones who say, “I’m here.”

The ones who quietly hold space when the tears come.

The ones who don’t need to know the forecast of my future to love me faithfully in my present. The ones who walk with us without needing to understand every detail of the valley. This is the love that looks like Christ.

He never demanded explanations from the suffering. He didn’t ask the bleeding woman for her medical history or the blind man for an exact timeline of his decline. He simply came close. He touched. He healed. He stayed.

He showed us that compassion doesn’t interrogate—it accompanies.

And so we lean into the nearness of God and into the arms of those who reflect Him, the ones who simply show up. The ones who see us instead of studying us. The ones who offer presence instead of probing questions.

If you want to walk beside me, you don’t need to understand every piece of what’s happening. You don’t need updates or timelines. You don’t need the painful details.

You just need a willing heart and a steady step.

Sit with me. Pray with me. Laugh with me. Hold hope with me when I’m tired. Remind me that God is still good, still here, still leading us home.

Curiosity might reach for facts, but caring reaches for hands.

And in this season, hands—and hearts—are what hold me up.

Friendship, Uncategorized

The Seasons of Staying

Hannah

Being a friend of someone with terminal illness must be quite the roller coaster. I’ve had the privilege a few times, but never for so long a stretch of time as my illness has asked of my tribe. That in itself is a beautiful gift, but the cost of it is also not lost on me.

Being a friend of someone with terminal illness must be quite the roller coaster. I’ve had the privilege a few times, but never so long a stretch of time as my illness has asked of my tribe. That in itself is a beautiful gift, but the cost of it is also not lost on me.

There’s something both sacred and sorrowful about watching friendships move through the seasons when you are the one who is dying. In the beginning, the circle is wide — full of love and meals, visits and prayers, the kind of tender urgency that comes when people don’t yet know what to do but feel compelled to do something. It’s a holy flood of kindness, and it humbles you to your core.

But time, as it does, stretches. Months turn into years, and the edges of the circle shift. Some friends drift quietly into the background, not because they stopped caring, but because life resumes its relentless rhythm. Kids grow, careers change, and the crisis that once felt immediate now lives in the quieter corners of their awareness.

And honestly? I get it. I’ve been that friend before too — before this diagnosis rewrote my sense of time. I’ve meant to reach out and didn’t. I’ve avoided pain I didn’t know how to face. I’ve loved someone deeply and still failed to show up in the way I wish I had. So I hold that understanding now with open hands and no resentment, just a bittersweet ache that love sometimes outlasts proximity.

What’s left are the ones who stay through the long middle — not just the early crisis or the final goodbye, but the drawn-out, unpredictable middle where the reality of terminal illness stops being dramatic and just becomes life. They sit with me in the mundane. They ask the unglamorous questions. They know when to come close and when to give space. They’ve learned that faithfulness doesn’t always look like constant presence, but steady presence.

And then, there are those who come back — friends who circle in again after time away, sometimes awkwardly, often tenderly. Their return feels like mercy. It reminds me that love isn’t linear; it’s tidal. People ebb and flow in and out of each other’s lives, and that movement, too, can be grace.

I used to think loyalty meant never leaving. Now I think it means being willing to return.

So to my friends — those who have stayed, drifted, returned, or simply remembered me from afar — please know this: your love has carried me. Every text, every silence, every prayer whispered when you didn’t know what to say has mattered.

Illness has taught me that friendship isn’t measured in constant nearness but in the threads of care that remain, even when time and distance stretch them thin.

If I could sum it up, I’d say this: the seasons of friendship are not a sign of failure, but of humanity. And what a fragile, beautiful, sacred thing it is to be human together — even in the shadow of goodbye.

One of my all time favorite reads!

faith

When Small Acts Become Sacred Moments

Hannah

As a member of my church, one of the things I most enjoy is using my spiritual gifts from God to serve wherever I’m needed. That has looked like playing with toddlers and teaching pre-schoolers as their parents sit in the service. Sharing my story with groups of people who don’t know me yet. Helping prepare and serve meals for special occasions, and taking meals to people when they’re ill. Though introverted, I also have a social streak, and I have enjoyed the hustle and bustle of working in a busy kitchen, preparing games, activities, or projects for large events, and participating in set up and take down for various events.

As you can imagine, my illness has stripped away my ability to do most of these things. This has sent me seeking different ways that I can still be an active part of my congregation instead of feeling like I do not have anything of value to contribute.

Through this season I have learned that Gifts from God are not always wrapped in brilliance. Sometimes, they arrive quietly—like a whisper, tucked deep into the folds of who we are. For me, one of those gifts is encouragement. It does not roar; it does not shine with spotlights. It is a candle in a darkened room, a warm cup of tea set down beside tired hands, a few words penned in ink that somehow carry light.

From time to time, God nudges me—

Write the note.

And so I do.

A card on a desk.

A folded envelope slid into a mailbox.

No fanfare. No flourish. Just I see you. I thank you. You matter. I cannot tell you how many times I’ve learned that God’s timing is far better than mine. That a sentence scribbled in the quiet has found its way into someone’s weary moment like rain on thirsty ground.

This is the mystery of the gifts He gives us; we offer them in faith, and He multiplies them in grace. Your gift may not look like mine. Perhaps you speak life through the meals you prepare, or through the way you listen without rushing.

Perhaps your gift is order in a world of chaos, or joy that bubbles into laughter in heavy spaces. Whatever it is—hold it with open hands. Let God place it where it’s needed most. And do not think it too small. The smallest seed, after all, can become the tallest tree.

This week, listen for His whisper. Offer your gift—quietly, humbly, freely. You may never see all the places it will bloom. But He will.

faith, Fatal Illness, grief, hope

Already Gone, Still Here

Hannah

In the lonely slowness of the in-between, I have discovered something deeply human. A kind of fierce clarity about what matters. An urgent desire to stop faking things just so others won’t be uncomfortable. A pressing yearning to stop wasting words. I can already see who stays. And who doesn’t. Why then do I go to such lengths to create a mirage of okayness so that other people don’t have to reckon with my pain? Why do I smooth over the truth, soften the edges, laugh at the wrong moments—just to make grief more palatable for them?

I think it’s because pretending is the currency of the healthy world. We’re taught to keep things light, manageable, convenient. And when you live in the long shadow of a fatal illness, your reality becomes deeply inconvenient. It disrupts dinner parties. It silences group texts. It taints the joyful camaraderie of a birthday party and unsettles the rhythm of everyone else’s forward motion.

So I contort myself. I wrap my fear in polite phrases. I pad my sorrow with jokes. I give updates that are vague but upbeat. I try not to be too much.

But the cost of that mirage is high. It leaves me lonelier than the illness ever could.

Because here in this slow unraveling, there’s a strange and sacred gift: honesty. The kind that doesn’t flinch. The kind that strips everything down to what’s real and raw and enduring. The kind that doesn’t need to be tied up in a bow.

I’m learning—painfully, awkwardly—that the people who can sit with the truth, even when it’s heavy, are the ones who deserve a front-row seat to what’s left of my life. The rest, kindly, can drift.

This in-between space? It’s not just waiting to die. It’s where I’m learning how to live.

And it’s beautiful and sacred and so much richer than the plot points I would have imagined for my life, and if I am worthy enough to be used for His glory in this way, then I dare not try to contort the storyline that I was written into- one that is not defeat, but is my final triumph.

This is my sacred stage to shine for Jesus- to show a watching world that He is true and every word He spoke is sure. So I will be clinging to His promises like breath itself until my breath is nothing more than the stringy shadow of a vapor hanging suspended in nothingness. If I do that alone then I know it was done with the most honest of intentions, not for the sake of trying to fit into one of the many molds this world would have me choose.

To those of you who were courageous enough to sit near and take fire based on your proximity, I thank you, and I commend you. Know that you did something holy. You didn’t fix it. You didn’t have to. You just stayed—when leaving would have been easier, cleaner, safer. You let the silence speak. You let the pain breathe. You let me be more than just my label.

Know that your presence has been a lifeline. A quiet rebellion against the cultural pull to look away, move on, keep scrolling. You bore witness when I felt invisible. You carried pieces of my grief in your own hands, and somehow, that made it more bearable.

You may not realize the impact you’ve had, but I do. And I will carry the weight of your kindness with me for as long as I have breath.

This long goodbye is not just mine to live—it’s ours to hold. And I am so deeply grateful for those of you who chose to hold it with me.