As my illness has not so quietly crept into new areas, the clear, trustworthiness of my world that was semi-predictable has faded as well. Despite what my energetic heart and mind have had planned, my body is simply not getting the message, often doing the opposite of what I’m asking it to. This was especially evident this past week.
Sunday I slept through most of the sermon and parts of worship. Again. It had been a tiring week—being in the middle of a 2 week stretch where my husband was traveling, but I honestly felt like I got a decent night’s sleep on Saturday. My fatigue continued though, and I found myself either missing things, or having to cancel plans because my body was determined to sleep more whether or not I was at an event or behind the wheel.
Tuesday a dear friend came over to visit. After just a few minutes chatting I dozed right off mid conversation . I jostled awake shortly, and profusely apologized for my rudeness. My friend was as gracious as could be. The next thing I knew I awoke a significant time later to my friend still sitting at my bedside. She had brought her Bible, and as she read she took notes that she compiled into a beautiful and encouraging 3 page letter that she gifted to me on her way out. I was sad and upset that I had missed out on visiting with her, but her words were a gift to my heart.
“Please don’t be embarrassed. It was an honor you let me in today and I enjoyed the time by your side even if it was a quieter visit. Love you!”
I had another friend visit recently with her kids in tow. The littles sat at the dining table and kept busy while their mama and I visited. I didn’t even realize I was sleepy until I startled awake to see her hustling her littles quietly out the front door.
That moment sat heavy with me long after the door shut. Not because she was unkind—she wasn’t. She was trying to be considerate. Trying not to embarrass me. Trying not to wake me. But what I woke with was the reality of it all. The quietness of it. The careful escape. The unspoken understanding that the visit had suddenly become awkward and there was no graceful way to recover it.
Illness has a way of turning normal interactions into strange little social negotiations nobody knows how to navigate. That may be one of the loneliest parts of this illness for me lately—not just the symptoms themselves, but the way they alter the atmosphere in a room. The way people start adjusting around me. Whispering around me. Watching me carefully. Exiting cautiously.
I know the people who love me are doing their best. I know they aren’t judging me cruelly. But it is still difficult to repeatedly become the unexpected thing everyone has to accommodate. I miss being easy to be around.
My friend who stayed while I slept gave me a gift I didn’t even know I needed; the gift of presence.
Not fixing.
Not rescuing.
Not trying to force the moment to be less uncomfortable than it was. Just staying.
There is something profoundly Christlike about that kind of love. The kind that does not flee weakness or rush past suffering, but settles beside it without demanding it hurry up and become easier.
I think so often I have imagined God’s love primarily through the lens of intervention—that if He loved me, surely He would fix this. Relieve this. Wake me up from this exhausting fog my body keeps pulling me into. But lately I am beginning to wonder if sometimes His love looks less like removal and more like companionship. A God who remains.
A God who is not embarrassed by my limitations. Not irritated by my weakness.
Not awkwardly slipping out the front door because He doesn’t know what to do with me.A God who stays at the bedside.
Maybe that is why the presence of faithful friends has ministered to me so deeply in this season. Because every quiet act of patience, every unhurried moment, every person willing to sit in the strangeness of this illness without recoiling from it—they are reflecting Him back to me in ways I desperately need.
Not every act of love looks dramatic.
Sometimes holiness looks like simply staying when it would be easier to leave.
Choosing Hope 