Uncategorized, Friendship

Curiosity & Caring

There’s a sacredness to suffering that not everyone understands.

When someone is walking through the deep waters—when every breath feels borrowed and every day is held together by grace—questions can become sharp without ever meaning to be. Have they given you a timeline? What treatments are they trying next? How bad has it gotten? Have they told you when they expect you to die?

Some of those seem atrocious, but they are questions we have actually answered had to field at one time or another. Sometimes these questions slip out clothed as concern, but they land like cold hands on tender skin.

Curiosity is not the same as caring. Curiosity wants information. Caring wants presence. Curiosity circles around pain to peer inside. Caring steps into the shadows and sits down beside you. Curiosity tries to relieve its own unease. Caring is willing to feel uncomfortable just so you don’t feel alone.

I’ve learned there is a holy difference.

I don’t mind sharing pieces of my journey—there is beauty, even here, and God’s fingerprints are everywhere. But when the conversation turns to timelines for my dying or details of treatments that stretch my limits just to endure… that crosses into a territory my soul guards carefully. It’s not because I’m ashamed or afraid. It’s because this is holy ground for me and my family. We are living it, breathing it, praying through it. I am learning to trust God in the dark, and trust is fragile when handled carelessly.

What I welcome—what I desperately treasure—are those who choose presence over answers.

The ones who say, “I’m here.”

The ones who quietly hold space when the tears come.

The ones who don’t need to know the forecast of my future to love me faithfully in my present. The ones who walk with us without needing to understand every detail of the valley. This is the love that looks like Christ.

He never demanded explanations from the suffering. He didn’t ask the bleeding woman for her medical history or the blind man for an exact timeline of his decline. He simply came close. He touched. He healed. He stayed.

He showed us that compassion doesn’t interrogate—it accompanies.

And so we lean into the nearness of God and into the arms of those who reflect Him, the ones who simply show up. The ones who see us instead of studying us. The ones who offer presence instead of probing questions.

If you want to walk beside me, you don’t need to understand every piece of what’s happening. You don’t need updates or timelines. You don’t need the painful details.

You just need a willing heart and a steady step.

Sit with me. Pray with me. Laugh with me. Hold hope with me when I’m tired. Remind me that God is still good, still here, still leading us home.

Curiosity might reach for facts, but caring reaches for hands.

And in this season, hands—and hearts—are what hold me up.

Uncategorized, Friendship

The Seasons of Staying

Being a friend of someone with terminal illness must be quite the roller coaster. I’ve had the privilege a few times, but never for so long a stretch of time as my illness has asked of my tribe. That in itself is a beautiful gift, but the cost of it is also not lost on me.

Being a friend of someone with terminal illness must be quite the roller coaster. I’ve had the privilege a few times, but never so long a stretch of time as my illness has asked of my tribe. That in itself is a beautiful gift, but the cost of it is also not lost on me.

There’s something both sacred and sorrowful about watching friendships move through the seasons when you are the one who is dying. In the beginning, the circle is wide — full of love and meals, visits and prayers, the kind of tender urgency that comes when people don’t yet know what to do but feel compelled to do something. It’s a holy flood of kindness, and it humbles you to your core.

But time, as it does, stretches. Months turn into years, and the edges of the circle shift. Some friends drift quietly into the background, not because they stopped caring, but because life resumes its relentless rhythm. Kids grow, careers change, and the crisis that once felt immediate now lives in the quieter corners of their awareness.

And honestly? I get it. I’ve been that friend before too — before this diagnosis rewrote my sense of time. I’ve meant to reach out and didn’t. I’ve avoided pain I didn’t know how to face. I’ve loved someone deeply and still failed to show up in the way I wish I had. So I hold that understanding now with open hands and no resentment, just a bittersweet ache that love sometimes outlasts proximity.

What’s left are the ones who stay through the long middle — not just the early crisis or the final goodbye, but the drawn-out, unpredictable middle where the reality of terminal illness stops being dramatic and just becomes life. They sit with me in the mundane. They ask the unglamorous questions. They know when to come close and when to give space. They’ve learned that faithfulness doesn’t always look like constant presence, but steady presence.

And then, there are those who come back — friends who circle in again after time away, sometimes awkwardly, often tenderly. Their return feels like mercy. It reminds me that love isn’t linear; it’s tidal. People ebb and flow in and out of each other’s lives, and that movement, too, can be grace.

I used to think loyalty meant never leaving. Now I think it means being willing to return.

So to my friends — those who have stayed, drifted, returned, or simply remembered me from afar — please know this: your love has carried me. Every text, every silence, every prayer whispered when you didn’t know what to say has mattered.

Illness has taught me that friendship isn’t measured in constant nearness but in the threads of care that remain, even when time and distance stretch them thin.

If I could sum it up, I’d say this: the seasons of friendship are not a sign of failure, but of humanity. And what a fragile, beautiful, sacred thing it is to be human together — even in the shadow of goodbye.

One of my all time favorite reads!

faith

Brave Was Never the Plan

I had a new nurse come visit me last week. He was honest, kind, and thorough — asking all the usual questions about my medical history; the twists and turns that brought me here. I’ve learned to tell that story in pieces now, almost like reading from a well-worn script. When I finished, he sat back in his chair and said softly, “You’re really brave.”

He said it again before he left. And I smiled, but inside I felt a strange ache. Because I don’t feel brave. Not even close.

Most days, I feel like I’m just hanging on for dear life — doing the next thing because there is no other choice. Take the medication. Show up for the appointment. Face the pain. Rest. Repeat. There’s nothing glamorous about it, and most of the time, it doesn’t feel like courage; it feels like survival. The kind of survival where you’re digging in your fingernails, white-knuckling hope like your life depends on it, because it does.

But maybe, just maybe, God sees it differently.

I think about how often Scripture tells us, “Do not be afraid.” It’s not because life is easy or because fear never knocks at our door — it’s because God promises to be with us in it. Maybe bravery isn’t the absence of fear or the strength to charge forward. Maybe it’s the quiet trust to take one trembling step at a time, believing that God’s hand is steadying us, even when our own knees are shaking.

There are days when my prayers are nothing more than whispered sighs — “Lord, help me through this hour.” There are nights when I’m too weary to pray at all, and all I can do is rest in the truth that the Spirit intercedes for me when I have no words left. And maybe that’s what real courage looks like: surrendering the illusion of strength and leaning instead into the grace that holds me together.

I don’t feel brave, but I am learning that bravery doesn’t always feel like bravery. Sometimes it looks like showing up. Sometimes it looks like tears. Sometimes it looks like still believing that God is good, even when life doesn’t feel good.

If someone calls me brave, maybe what they really see is the reflection of God’s faithfulness — the way He sustains a soul that should have fallen apart by now. I’m learning to take that as a quiet reminder: this story isn’t about how strong I am, but about how faithful He is.

So no, I don’t feel brave. But I keep going. And by God’s grace, that’s enough.

faith

When Small Acts Become Sacred Moments

As a member of my church, one of the things I most enjoy is using my spiritual gifts from God to serve wherever I’m needed. That has looked like playing with toddlers and teaching pre-schoolers as their parents sit in the service. Sharing my story with groups of people who don’t know me yet. Helping prepare and serve meals for special occasions, and taking meals to people when they’re ill. Though introverted, I also have a social streak, and I have enjoyed the hustle and bustle of working in a busy kitchen, preparing games, activities, or projects for large events, and participating in set up and take down for various events.

As you can imagine, my illness has stripped away my ability to do most of these things. This has sent me seeking different ways that I can still be an active part of my congregation instead of feeling like I do not have anything of value to contribute.

Through this season I have learned that Gifts from God are not always wrapped in brilliance. Sometimes, they arrive quietly—like a whisper, tucked deep into the folds of who we are. For me, one of those gifts is encouragement. It does not roar; it does not shine with spotlights. It is a candle in a darkened room, a warm cup of tea set down beside tired hands, a few words penned in ink that somehow carry light.

From time to time, God nudges me—

Write the note.

And so I do.

A card on a desk.

A folded envelope slid into a mailbox.

No fanfare. No flourish. Just I see you. I thank you. You matter. I cannot tell you how many times I’ve learned that God’s timing is far better than mine. That a sentence scribbled in the quiet has found its way into someone’s weary moment like rain on thirsty ground.

This is the mystery of the gifts He gives us; we offer them in faith, and He multiplies them in grace. Your gift may not look like mine. Perhaps you speak life through the meals you prepare, or through the way you listen without rushing.

Perhaps your gift is order in a world of chaos, or joy that bubbles into laughter in heavy spaces. Whatever it is—hold it with open hands. Let God place it where it’s needed most. And do not think it too small. The smallest seed, after all, can become the tallest tree.

This week, listen for His whisper. Offer your gift—quietly, humbly, freely. You may never see all the places it will bloom. But He will.

family

Messy Grace

I learned an important lesson yesterday. Well, probably not just yesterday. I have a feeling I’ve been shown this before, it’s just that I need lots and lots of reminding.

My Little was really struggling. You know how someone steals one of your dollars and you decide to burn the other $99? Yeah. My little was having one of those days, and it wasn’t pretty. I had made several attempts to offer helpful input, which was just met with more frustration. And then I hit the parenting connection jackpot.

I was making dinner, and trying to do it in a hurry. Well actually, it was dinner time, but I was making breakfast because I failed to plan ahead. I had exhausted the week’s meal plan already and needed groceries and didn’t have time to thaw anything out, so breakfast for dinner was the last ditch attempt to act like I had it all together. Fortunately it is well received around here.

Within about 5 minutes I had efficiently gotten tortillas into the oven to warm, sausage rewarming in the skillet, diced potatoes in another skillet, had the cheese laid out, and all that was left was to wash and crack the eggs and get them into the third waiting skillet. I estimated I would have everything hot and put together within 15 minutes, perfect. Then my struggling Little walked through and the frustration and sadness was palpable, y’all.

One of my earlier suggestions had been to check out our emotion wheel and do the corresponding activity. I probably use this more than who I got it for, and I’ve found it helpful. The activity suggested was to hold ice cubes, which sounded intriguing to me, but was met with much resistance.

As I started counting out the eggs and grabbed a pump of soap to start washing them, an idea occurred to me. Washing the eggs would involve hands in cold water; maybe that would have the same helpful effect at derailing the struggle train. So I offered the task up, and it was accepted.

I could see that this activity had helped just a bit, so I started thinking of how I could keep us moving in this direction. I looked at the pile of eggs to be cracked, and my rational type A personality went to war with my empathetic emotional side. I could get the eggs cracked in less than 2 minutes with no bits of shell and no mess, keeping dinner on track with my projected time estimate. Or I could offer it up to my Little in hopes that it would help blow away the fog of frustration and sadness that was tinting the day. The type A in me sighed as I opened my hands to giving up control.

“Hey, would you please crack these eggs for me? It would be really helpful.”

I got a hint of an exasperated eye roll, but then sleeves were rolled up and small hands reached for the first egg, still glistening with the last coat of cold water. One by one the eggs connected with the counter, shells cracked, yolks plopped into the glass pitcher. 8 eggs, several shell splinters, and two hands covered in gummy slime later, there was a smile.

“Thanks for letting me do that, Mom. That was fun!” And then a few minutes later from the other room… “Mom, I just love you so much.”

I was still picking bits of shell out of the eggs and cleaning yolk off the side of the pitcher. And the faucet. And the sink. And the counter. My heart swelled and twisted at the same time as I realized that making him feel seen and needed and valuable was exactly what he needed, and my own need for control and perfection almost got in the way. I tucked these feelings in my heart, hoping to remember them for next time.

Friends, the messes are worth it. People are messy. My messiness may look different than yours, but we all have a deep need to be seen and valued beyond the messes that we make, and accepted anyway. It was a humbling lesson that I’m sure I will need reminding of again, so that’s why I’m sharing it. We all need the reminder sometimes that letting go of our own hangups may be just the thing needed to make the confidence of someone else soar.

PS~ add “crack some eggs” to the wheel under Anger —> Annoyed. 😉

Christmas

There May Yet Be Hope

After a week of navigating multiple infections, side effects from the antibiotics to treat them, layers upon layers of pain, my wheelchair ramp in the van breaking again, as well as the van being in an accident and needing repair, single parenting through the highs and lows of two young adults, a high schooler, and a middle schooler, all while trying to give our children the comforting normalcy of a home ready to welcome Christmas, it is tempting to despair, or to long for a storyline different than this one.

But at the crest of a new week with new challenges, I look back and can see so clearly where a mighty and tender King saw me sitting in the dark on the floor of my locked bathroom, reached out for me, held me close, and gently walked me through each step, whispering words of hope and assurance and goodness to me. He has been with me through it all, and the whole week He has sung compassion over me.

Saturday he sang Lamentations 3:29 over me, reminding me that even when facedown in the dust, there is hope. My peace grew as He shone a light through my despair. Even though this illness will most likely end my time in this world, He gives me hope and joy and life, and not just me, but many others as well.

As my wingman had to fly out of state again, leaving me to carry the weight of the household while pushing through crushing pain, I found truths in the book of James that promise that my suffering will mold endurance, leaving me perfect and complete. Digging into the Gospels for my church class, I read about crowds of people entrenched in suffering who travelled long and far to receive His healing. Like me, they were desperate for wholeness and relief, and in His compassion He gave them healing. I am left wondering, is this the same Jesus who might choose not to heal my body on earth? Will he let my little loves continue to watch me waste away to nothing and then have to grow up without their mom? Will he let my husband of 23 years become a widow and a single parent?

Then I find that He never promised a life of comfort. He promised great struggle and suffering. And hard as that is to comprehend, I hold to His promise that His Kingdom will come through the mending of all that is broken, and that His power is made great in my weakness. He came here to suffer an agonizing death so that I can learn to suffer well in His footsteps; that even in my pain I can find peace and joy and purpose.

He is gentle with me when I struggle with my limitations and when I question the good in my story. He is also faithful to remind me that as I live out a story I never would have chosen for my family, and take up my cross again and again to follow Him, this is the road that leads to everlasting life.

faith, Uncategorized

The Slow Fade

Moving methodically around each raised bed of my garden I parted prickly leaves to get the clearest view where any new produce was ready for harvest, or any weeds that had sprung up among my vegetable plants. I plucked thin blades of grass and clover-looking leaves attached to flexible stems that had popped up since the last rain. I counted the pumpkins that were forming and twisted a cucumber vine back around its trellis. I was snipping off young okras when I noticed the difference, and it was profound.

Standing tall right between the towering cornstalks and the fuzzy buds of okra there was a different plant. Its stems were a rhubarb red, and flat pointed leaves grew abundantly from matching branches. As I examined these plants I noticed the leaves were close, but shaped differently than the neighboring okra, neither did they have any evidence of bearing anything of edible value. That’s when it hit me. These were weeds! Standing just as tall as the okra plants, and almost in neat little rows, it was clear why I had thought these had come from the seeds that I planted. I had been deceived from the time of tiny seedlings to these now towering plants.

I grasped the thick woody stems and yanked, but no matter how hard I pulled, most of them would not budge. The ones that did come up had impressively massive roots.

With these crawling tentacles beneath the surface of the soil I had to worry about how entangled they might be with my healthy plants, and many of them I had to just hack off above the ground, knowing they would need to be watched closely for regrowth. I was frustrated with myself that I had not noticed them and put a stop to them when they were seedlings. That made me realize how much this is like us missing the mark of God’s design in our lives.

When the wrong things we choose to do are disguised as something good; healthy green leaves in straight lines, it’s easy to overlook them. They creep in, and unknowingly we water and fertilize them, allowing the roots to grow deep and take hold. By the time we recognize there is something that shouldn’t be there, it is already so tangled around the healthy roots that it is sucking the nutrition from the fruit that is growing, and there is often no way to remove it without casualties.

So how does one prevent this kind of sneaky invasion? We have to be attentive, distinguishing what does not belong in our lives and uprooting it before it takes hold. The best defenses we have are spending time regularly in God’s Word, and faithfully in prayer, as well as having friends we can trust to hold us accountable; then we will be so immersed in truth that anything not of Him will be easy to recognize.

Uncategorized

To My Son on his 21st Birthday

How do I write a letter to a 21 year old who used to fit in the crook of my arm with ease; the one I rocked and bounced and drove back and forth with for hours and hours when he would not stop screaming in the first weeks of life? How do I acknowledge adulthood to the little boy I taught to sing his ABC’s, and make himself a peanut butter and jelly sandwich? (Wellll, we are still working on that one😉) How do I give permission to soar to the little sweetling that used to look back just to make sure I was still safely behind him?

As I rise to look my blue-eyed-boy in the eye, I see the reflection of each of these moments, big and small. The insignificance of how many months old you were when you walked. The monumental moment of greatest joy when you shared that you’d given your life to Christ. The skinned knees, the baseball trophies, the nightly kisses on the cheek that continue to this day. The victories and achievements, as well as the falling short and the battles. All of these tiny moments making the whole amazing you, and the joy and enthusiasm and determination that you bring to this world.

I am proud of you for letting each moment, whether easy or excruciating carve you into who you are today. I know it does not stop at adulthood; you have many years and many more small moments that will shape and change who you are. Promise me above all you will cling to your faith in God, you will be an advocate for what is right; standing up for those in need as you always have. Those truths I whispered to you in bedtime’s drowsiness, those songs I sang; keep them tucked away to always lead you back to where you came from. As you stand at the brink of this new ridge in your life, so much behind you, and yet such a beautifully immense expanse widening your eyes in front of you, I pray you remain anchored to that which is love and truth and family, and that you F L Y.

I love you, Jacob Andrew; the boy who made me a mama.

Uncategorized

Sink or Swim

This week was the end of me. I felt like the last drops in my cup were sucked dry and I had nothing left to give. Frustration over my exhaustion and inability to keep up in the midst of daily hardballs left me convinced the best thing for me was to quit fighting for well, anything. Least of all myself.

As my body does, it decided another shut down was in order, and my digestion came to a screeching halt. This led to constant discomfort, and frequent vomiting even though I wasn’t eating anything. For three days I was in bed burning through barf bags or clutching a big metal bowl while at the same time trying to single parent my little people and see that their needs were met. I was not able to get up and feed them one meal, so they did without or got by on bowls of cereal and Halloween candy. It is heartbreaking to not be able to do the things I want and need to as their mom, and the volume gets turned loud on all the voices telling me I’m failing at motherhood… and everything else.

This is a lonely season of trying to build community without always having the strength to do it. This means long hard days scraping by and simply doing the best I can usually at the minimum amount. I long to be in a place again of having community to surround us and pick us up and meet us in the messes, because doing it alone is awful.

Despite my grumpy attitude and dismal outlook God showed up in the flesh of a friend who saw my frantic social media post asking for help and dropped everything to pick me up and not only see that I got back and forth to a small surgery, but while I was under she shopped for meals for my kids and stocked my freezer with things they could make in my absence. The “Just Show Up” mantra that I’ve tried to make part of my life song was so beautifully expressed in the serving kindness of my friend that day.

It is embarrassing now, but I felt so helpless I texted another friend and told her I had nothing left to give and she deserved better than me. I basically told her she needed to drop me like a sack of rocks because I did not have what it takes to be a good friend. Instead of stepping back she pushed in. She responded, “I’m not letting you break up with me. You can’t get rid of me.” I don’t know what I was expecting, but her response cracked a small grin across the weary furrows in my face, and the brick wall I was trying to build started to crumble.

Thumbing through the pages of my Bible I was brought to 2 Corinthians 10:5, which reminded me I am to take each thought captive in obedience to Christ. I heaved a sigh heavy with burden, gathered all my thoughts of overwhelm, anxiety, and defeat, and imagined placing them at the feet of my Heavenly Father. Peace washed over me; relief that these heavy weights are not mine alone to carry.

I was reminded me that I cannot control everything that comes my way, but that I can decide if my life will be marked by defeat, or by a patient trust in a Heavenly Father who loves me and knows where I am at every moment.

I cannot help but wonder who else is finding themself at the end of their rope this week. I wish we could all gather in solidarity and speak truth to bolster each other in our capacity to carry on. It always seems easier to encourage others than to encourage yourself sometimes. If you are in that spot this week raise your eyes up; remember that the hairs on your head are numbered and the birds outside the window are under the Lord’s watchful care. As we reflect on Him it is easier to be assured of His strength and less intimidated by the size of our problems.

God has promised us abundant life. I don’t want to miss that because I am tangled up in worry and frustration over circumstances that are not mine to control.

Here’s to the ending of a hard week and the beginning of a fresh one, Saturday sports games, Sunday morning donuts, and knowing that we do not have to be strong enough to carry our own burdens. Jesus has us on the hard days just as much as the easy days and beckons us to take up His yoke which is easy and His burden which is light, and he will give us rest for our souls.

“Even though the fig trees have no blossoms, and there are no grapes on the vines; even though the olive crop fails, and the fields lie empty and barren; even though the flocks die in the fields, and the cattle barns are empty, yet I will rejoice in the Lord! I will be joyful in the God of my salvation. The sovereign Lord is my strength! He will make me as sure footed as a deer, able to tread upon the heights.” Habakkuk 3:17-19

Uncategorized

Being Brave

It gets said a lot; you are so brave. When it is said to me I think to myself, “I am not brave, I am barely hanging on.” I have always self-described bravery as purposely doing something big and scary. Like something voluntary I think. I have always felt like brave is more of a choice rather than something you just are.

Recently my pastor came and sat at my bedside. His enormous hand swallowed mine, and he looked me in the eyes and said, “you are so brave.” I responded by telling him I don’t /feel/ brave; I feel like my anger and my fear and my disappointment is the opposite of brave. It planted a seed in my mind though. I started wondering what brave actually means.

Back in my day, before Google, we had these things called dictionaries. They were huge books that had the definitions of practically every word you could think of. So, I dictionaried the word Brave. Yes, I am making a new word because in this day and age of everything being looked up by Siri I feel like the good old dictionary deserves its own new description that I can convince my kids is real. Dictionaried. That’s what I did. The Oxford Dictionary said this under the word brave:

Ready to face and endure danger or pain.”

It did not say you come looking for the danger or pain, but are simply ready to face it; assuming it has instead come looking for you. It was such a simple definition, but it resonated in my bones. It did not say that bravery is a lack of fear. Wow. This changed my whole perspective. It is ok for us to show up shaking and sobbing and scared out of our ever-loving minds, but being brave simply means being ready for the fight.

My danger and pain today is facing Botox. It is injected into my hamstrings and some of the muscles in my legs to loosen the spasms and help me retain more range of motion. The last time we did this I passed right out on the very last injection. Naturally that bad experience has me feeling extra apprehensive this time around. I know however, that I am putting up the fight of my life. That is my brave; still being afraid of what is going to happen, but showing up anyway because I know good will come of it. Courage is not fearlessness.

Friends, whatever you are facing today, just getting up and facing it makes you brave. You do not have to have good feelings about it, you just need to show up with the ability to endure. The world knows you are afraid, but you love more than you fear, and that is what we all remember about you. Let’s take on today, shall we?