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Growing Hope

As I struggle with losing my ability to do so many of my favorite pastimes, there are a few I’m holding tight to. Gardening is one of them. A sweet friend offered to get the seedlings I had been nursing into the ground for me, but I held tight to believing I could do it myself. I so much wanted to feel the warm earth as I babied my sprouts and seeds into the ground. I do not by any means have a green thumb, but have managed for a stretch of years to grow a number of vegetables for my family right in our backyard. I’m missing the Colorado sunshine, but trying to figure out what works here.

I don’t know what it is, but watching things grow has always felt so sacred to me. It truly is a miracle to see tiny dried out seeds change and grow into something beautiful. It brings me such joy. The warm soil, gentle sun, and fresh colors of green make me feel as if I’m in a breathtaking cathedral.

Too weak to stand, I carved out my own small slice of land and sat in the dirt, covered in afternoon sun, and gently pressed seeds and seedlings into the earth. Watching them sprout and grow bigger is bringing me so much delight and satisfaction. Here’s hoping for a harvest, but either way, the working of the soil has been therapeutic for me in beautiful ways.

What is it that you do that refreshes and cheers your soul?

Please leave me a comment, it lets me know you’re listening!

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Leaning In

This past week we wrestled as we processed some new information. The brokenness can seem so overwhelming at times when we forget to give over control. We had a hard conversation with our little people, and we leaned in hard over the weekend to find the good in our story.

Saturday we supervised as our new high school freshman invited over several friends to celebrate saying goodbye to middle school. It was a mess of s’mores, slip n slides, rain, and lots of smiles and laughs.

Sunday was the first time I’ve made it physically to church in months. It was wonderful to sit among community, and to get to visit with a few of the kind women that have been reaching out to help meet our needs at home.

Monday morning we loaded up to watch a small parade in one of our neighboring towns, and then visited the dairy farm nearby to feed the animals and enjoy the most delicious freshly made ice cream.

Every time I push past the exhaustion and hurting to get to see joy and connection on my babies’ faces, it eases the discomfort in my bones and brings me the richest joy I can imagine. I’m so thankful I can still get up and embrace the best of our days. If you’re sitting on the sidelines, would you get up too? I promise it’s worth it. We’ve been given so much beauty to enjoy, let’s not miss it!

Please leave me a comment, it lets me know you’re listening!

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For the Love of Palliative Care

For the better part of a year or more my weeks have had to revolve around appointments. With 14 separate specialists each handling a different aspect of my health, you can imagine how the calendar filled up.  Most of these doctors have done me well, and helped me cope with the different challenges of  having a degenerative neuromuscular disease, but the past several months have left me exhausted each time I’ve had to leave my home, and resenting the several times a week that I had to spend my daily energy on seeing a doctor.  Helpful, yes, but the truth is there is no cure, and they’re all just doing their best to help me be more comfortable and handle the unpleasant side effects of my condition.

My husband and I had a very honest conversation about all this, and agreed it was time to get hospice involved.  Instead of running all the time from doctor to doctor, I wanted to spend more time at home with my loves spending what energy I do have on them.  I needed all the doctors consolidated into one master plan. It was the /best/ decision. 

The palliative care people? They’re a different breed.  I remembered this from my days working on the ambulance, but it was reaffirmed to me the first time I met my new team.  They aren’t out to find me a cure; their goal is to keep me as comfortable as I can be with what I’ve got, and that is exactly what I needed.  I was met with such kindness.  They weren’t rushed and bothered like so many; they took the time to see and understand me. They acknowledged and affirmed everything I was going through and feeling, and they committed to only do what I needed most.

Our days have slowed down.  I have found myself with more energy because there is less running around.  I’m so deeply grateful to shift our goals and focus on loving each other even more. My doctor is so kind, and readily available when I need something.  When I landed in the hospital with septic pneumonia recently, my palliative care team was there, and they were the ones who stayed extra in my room and laid comforting hands on me while we spoke, asked me how I was feeling, and truly sympathized with the pain I was experiencing and wanted to help.  I am learning a whole new level of compassion from these people, and I can’t help but wonder if I show the same love when someone needs me.  I sure aim to, and I’m thankful to have such incredible examples showing me the way.

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Hard Fight

I am here.

Head down, fighting hard over a perilous week, but still crawling to stand to chant the victory cheer.

It’s going to take some time for me to recover, but I will get there. In my quiet spaces, know I am deeply grateful for every kind word, thoughtful gift, and whispered prayer. You are my people.

Please leave me a comment, it lets me know you’re listening!

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The Long Goodbye

Today I am remembering my pastor’s wife, and sweet friend Kara, on the day she left this world for the Heaven she so joyfully believed in. She is missed, and the legacy she left behind is one of great encouragement and grace. I know I was honored to learn from her about life, family, and faith.

Today her documentary came out. I encourage you to watch it and learn what made this woman such an inspiring friend. I am still challenged by many of our conversations, and always striving to love big like she did.

Click here for a link to the trailer.

Please leave me a comment, it lets me know you’re listening!

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Twists

Yesterday started out with a heartbreaking phone call, and ended with me back in the operating room having one of the procedures from Friday needing to be redone. For a Monday, it was a doozy. I kept finding myself wanting a break long enough to have a hard cry, but the day was just non-stop happening, and there was no time for that. For a hot minute I was angry. I was complaining, and I didn’t think it was fair. Maybe it wasn’t, but grace still showed up. It showed up in my mother-in-law being able to handle the details of the hard morning news for me so I could get to the doctor, and my angel of a neighbor not only driving me back and forth to the hospital, but also showing up to make sure my little people were doing ok, and receiving a homemade meal for them, cooked by someone I’ve never met. Even when I painfully eased into bed last night, my pillow didn’t need to catch a single tear, because while my husband is away on work this week every little body in the house has taken up residence in my bedroom to be close to me. It’s just the cutest thing. I don’t deserve such gifts, yet they flow so freely.

Today I’m a little shell-shocked. My heart is sad. My everything is hurting. My mind and body are exhausted. But there is an unusual amount of sun today, tiny sprouts pushing up in my windowsill, and my kindhearted nurse will come by to care for me and make me laugh as he always does. I hope that on every hard day I continue to be reminded to look for the gifts, and I hope that as my children grow they will learn to do the same, because it sure makes the worst of Mondays more bearable.

Please leave me a comment, it lets me know you’re listening!

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Red Footie Pajamas

I distinctly remember my first time visiting the childrens’ unit at Cedar Springs Hospital. I was new to the city as an EMT, and while I had run my fair share of adult psychiatric calls, this was my first child.  Actually, in my naivety, I didn’t even know there was such thing as a psych unit for kids up to that point.

There I was, walking into the building for a boy under the age of 6 with an arm injury… thinking he must have been the son of someone who happened to be visiting.  I’m certain there was an audible squeak of my boots stopping abruptly against the hard floor as I turned the corner to find the entire wing of the building occupied by children of various ages. A staff member began rattling off the details of how he fallen out of bed, and my mind was searching for the inexplicable reason that he had been sleeping in a tasteless wooden bed in a duplicated room with hard sterile floors instead of tucked into the shelter of his parents’ hugs and kisses in his own familiar bedroom.  I was silently trying to piece together this mystery when another staff member ushered my patient into the hallway; a dark-haired little guy, hardly taller than my hips, padding silently in red footie pajamas.

That night I learned one of those hard life-truths that you don’t learn little by little; one of those truths that smack you in the face like the concrete-sting of a belly flop into icy water.  Though I lost that bit of innocence on that call I still had many questions bouncing around between my mind and the soul that stared out at me from those young brown eyes.

It wasn’t long before running psych calls for youngsters wasn’t unusual for me.  I ran the frantic 9 year old who pleaded with his grandma to give him one more chance after tearing apart the whole house.  I ran the 15 year old cutter who had run away from home, and the 13 year old boy who successfully took his own life.  I saw a new world of confusion and pain and I struggled to understand it.  There were those who were vocal about their opinions; it was easy to assume that a lack of parenting or responsibility had created this brokenness, or that these were just bratty children needing firmer discipline.  While I was never one to say it out loud, I suppose in some ways I thought the same thing.  I wondered if the guardians were just tired of dealing with the hard work of parenting, and wanted to pass the adversity off to someone else.  I wondered if these kids felt so invisible that their gashes and outlandish displays of defiance were the only means left to spark some flames of attention from the people they craved it from.  While I refrained from joining in the open toxic banter of judgement, I still pondered these questions because some things you just can’t understand until you’ve tasted them more personally.

Fast forward several years to my own boy standing at the dawning of teen-hood.  Two parents who loved him unconditionally, a stable home in which all his needs were met, a routine of discipline and appropriate freedom, and yet his soul was changing, darkness clouding his once crystal blue eyes. Despite all the good things in his life my young boy had experienced tragedy that he was never meant to have to bear.  His normal had been ripped and shaken by such affliction over a short amount of time his soul halted in shock from the uprooting of all he knew to be true and safe.  So began this terrible and frightening battle of his entire being trying to reconcile things that his young soul was not created to understand.  He learned to build impenetrable walls to guard his bleeding wounds from further pain.  He forced himself to not feel so that he would never again know the devastation of a hurting heart.

Somewhere between watching his destruction from an utterly helpless distance, and screaming helpless tears into starlight night after night I came to understand the full story of that boy in the red footie pajamas.

It’s not for anyone to judge why these kids are the way they are, because the truth in all of them is that at some point they experienced a hurt that was more than they knew what to do with.  There are insecurities and scars and genetic dispositions, and I guarantee you not one of these kids suddenly woke up one day with a desire to be angry or dangerous or out of control or truthfully, an outcast. There is a world of hurting young people who need not our judgement and our assumptions, but our understanding and our unbiased desire to reach out to them and help fill those gaps and holes that created their unbalance to begin with.  What would the world look like if all the adults stepped up to give the attention and meet the needs that these kids so desperately need met?

It is with greatest sincerity that I say thank you to the adults that have stepped in, or even been forced in, to stand in the gap for my son.  I get it, I do.  I know that your 25th patient contact of the day is exhausting.  I know that you came in not feeling well to begin with, or with your own trouble going on, and yet you still showed up to give of yourself to help my boy, and so many others, with his healing.  I know that in the big scheme of things, the little issues these kids are making monstrous seems so outrageously ridiculous that’s it’s tempting to give a shoulder-shake of reality.  I know that after a long day, 2am was not the time you felt most compassionate when you had to get up and deal with a new admission, or a meltdown,  or a half-hearted suicide attempt for attention, or an all-out brawl.  I know that there are a lot of days you wonder why you chose this, or you think about moving on.  I know that it may seem thankless and pointless some days, and that you may question whether you are even making a difference.  The truth is you are some of the bravest, most selfless, most compassionate people to walk this earth.  This world does need you, and you are making differences, even if they are tiny baby ant steps.  In our universe, those ant steps are huge.

So thank you for what you do day in and day out; for the sacrifices you make and the things you endure so that every story has a chance at a happy ending, and that every hurting young heart that crosses your threshold knows that someone fought for them, even the boy in the red footie pajamas.

Please leave me a comment, it lets me know you’re listening!

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The Good, the Bad, and the Beautiful

This was such a rotten week you guys. I would recount it for you, but seriously I spent so much of it face down I’m not even sure which days were which.

Mostly what I want to share with you about this week though is today. Today was a day of scrolling through the camera reel and remembering, or maybe just really seeing for the first time the big and beautiful and maybe even amazing things that had everything to do with survival, whether I knew it at the time or not.

There was ugly. There were struggles and new limits and fears and just brokenness, but won’t you look with me? See the undeserved beautiful that cast a beautiful afterglow through the storms.

There were tender snuggles.

There were endless warm blankets and hard day socks. Never forget a pair of hard day socks.

There was HILARITY (slash panic) when my children somehow just haphazardly grabbed a mole and brought it into my bedroom to show me. A MOLE people!!

There was awe at the perfectly inspiring timing at which my sweet mama shared her sky with me from several states away.

There was giggling and excitement as the kids set up our tent in the backyard for an end of summer camp out, which I could see in plain view from the giant bay window at the foot of my bed.

There were breathtaking flowers along the walkway to the hospital.

I wasn’t stalling, there were like, a LOT of them!

There was cheering as my soon-to-be-school-goer beat me at his new letter sounds game.

There was the sweetest little pregnant mama houseguest who seems to think I’m the bestest snuggler of all….

And after… I lost count how many… days of not leaving home for anything other than the doctor, after a few dry runs and a lot of help from my wingman this morning, I busted on out with my two big boys for this…

And this…

AND antiques…

I don’t quite remember how I got back into the house, but I did in a sore, exhausted, pale-ish, and wonderfully happy and satisfied heap, where I intend to stay well into the snuggles of the evening. Who knows, maybe we will find another adventure or two to cram in before sundown. 😉

Look back through your own week; did you miss any hidden gifts that might have been the very things that carried you to the weekend?

I love it when you leave me comment-love; it lets me know you’re listening!