Tag: MSA

faith

Brave Was Never the Plan

Hannah

I had a new nurse come visit me last week. He was honest, kind, and thorough — asking all the usual questions about my medical history; the twists and turns that brought me here. I’ve learned to tell that story in pieces now, almost like reading from a well-worn script. When I finished, he sat back in his chair and said softly, “You’re really brave.”

He said it again before he left. And I smiled, but inside I felt a strange ache. Because I don’t feel brave. Not even close.

Most days, I feel like I’m just hanging on for dear life — doing the next thing because there is no other choice. Take the medication. Show up for the appointment. Face the pain. Rest. Repeat. There’s nothing glamorous about it, and most of the time, it doesn’t feel like courage; it feels like survival. The kind of survival where you’re digging in your fingernails, white-knuckling hope like your life depends on it, because it does.

But maybe, just maybe, God sees it differently.

I think about how often Scripture tells us, “Do not be afraid.” It’s not because life is easy or because fear never knocks at our door — it’s because God promises to be with us in it. Maybe bravery isn’t the absence of fear or the strength to charge forward. Maybe it’s the quiet trust to take one trembling step at a time, believing that God’s hand is steadying us, even when our own knees are shaking.

There are days when my prayers are nothing more than whispered sighs — “Lord, help me through this hour.” There are nights when I’m too weary to pray at all, and all I can do is rest in the truth that the Spirit intercedes for me when I have no words left. And maybe that’s what real courage looks like: surrendering the illusion of strength and leaning instead into the grace that holds me together.

I don’t feel brave, but I am learning that bravery doesn’t always feel like bravery. Sometimes it looks like showing up. Sometimes it looks like tears. Sometimes it looks like still believing that God is good, even when life doesn’t feel good.

If someone calls me brave, maybe what they really see is the reflection of God’s faithfulness — the way He sustains a soul that should have fallen apart by now. I’m learning to take that as a quiet reminder: this story isn’t about how strong I am, but about how faithful He is.

So no, I don’t feel brave. But I keep going. And by God’s grace, that’s enough.

faith, Uncategorized

Even now

Hannah

How will we make it through this? The valleys we walk may bear different names, but at the beginning of the trailhead we all have a choice to make.

I once chose with clenched fists, fueled by grief, driven by fear… maybe you have been there too. But hear me now, not from the mountaintop, but from the shadowed lowlands, where echoes of pain still linger—choose the better way.

To those who call Jesus Lord: we proclaim a Kingdom not built by hands, not tied to decades past or decades to come. No power of earth can shake what is secure in Him. This is not a call to passivity— but perhaps an invitation: learn the stillness of the soul.

Not silence for silence’s sake, but a reorienting, a returning to the Way that is higher, slower, deeper. God has been faithful—not because all is mended, not because we have been spared, but because He never left.

Each day aches like fire, and still, Jesus is good.

Each prayer rises desperate, and still, Jesus is near.

His nearness is not held hostage to the outcomes I crave. Call me foolish, if you must. I am learning to care less for opinions, and more for people, because Jesus is shaping my heart for a Kingdom not made of noise.

God’s goodness is not measured by the speed of escape from sorrow. Whether I have months or years this I know:

Jesus is here. He is good. And gently He whispers: “Be still, and know that I am God.

So in your valley will you stop, just for a moment? Turn from the scroll, the post, the panic, and let your soul lean toward Him. Even here, where fear stirs, where anger brews, there is joy. Because love remains, and He is near.

Even now, I can say with trembling lips: It is well with my soul. He is God. And He is good.

faith, Uncategorized

Collecting Scars

Hannah

This week in my reel of photo memories this one popped up…

Immediately the words to Ellie Holcomb‘s song, “Just As Good” started echoing in my mind, where they lingered for the rest of the day. “Oh every ebeneezer points to where my help comes from.”

Who would have thought these painful slices would become my stones of remembrance?

The many scars my body carries tell a story of God’s divine assistance and mercy. Times when I have been wounded, but He has allowed healing. Some scars run deeper than others. Some are still in the process of healing, but all of them come with a story of challenge that was met with grace and healing.

At times I feel embarrassed by my wounds, but reality is that these and other marks paint a connect-the-dots picture of my hard-fought story—right on my own skin. They are reminders that I have lived a life not of safety, but of the opposite. I’ve pushed myself, and I’ve been pushed, sometimes too far, and I would not have it any other way.

When I see my scars, I remember the difficult challenges, and the opening of my hands to surrender to an attitude of trust. I see the reminders of accidents and falls where I couldn’t hold myself up, but I was still held. I see evidence of a plot line that included my defeat, but instead is a story of survival.

I am drawn to the lyrics of the song Scars by I Am They. “So I’m thankful for the scars ‘Cause without them I wouldn’t know Your heart, And I know they’ll always tell of who You are, so forever I am thankful for the scars.”

It takes some hard-fought determination to be able to see these red and white squiggles carved into my flesh as accomplishments, but that is what has gently happened as the number of my scars has ticked up with each passing year.

I can choose to let my scars only remind me of the pain, or I can let them remind me of the scarred hands that payed my ransom.

Tracing my finger over these raised little lines I’m struck by immense truths. A stunning canvas of struggle, embodied suspense. In every imperfection, strength that can be found; the echoes of hardship that shapes my heart and mind to know and trust a good Father who is writing a good story for me.

Please leave me a comment, it lets me know you’re listening!

daily graces

The Most Difficult Gift

Hannah

I love giving gifts, and I enjoy receiving them, yet I struggle to accept one of the greatest gifts offered to me; the gift of receiving. It is a humbling place to exist, needing others’ love and care, and I find it difficult at times. I have realized because of my love of giving that it takes far more grace to receive than it does to give.

After years of priding myself on my strength, being humble is difficult for me. It’s hard to ask for help. Do you find yourself agreeing with me? Yet we are all in need in one way or another; broken and struggling but putting on the best brave face we can muster just to prove we can go it alone.

In this long, loooooong season of needing to accept the help of others I find that the luster of having it all together is wearing thin. I see the depth of brokenness within me and around me, and I long to connect in my brokenness. I long to be known and to know the true hearts of others around me.

At my core I am a doer. A server, a giver, a wear-myself-down-to-nothing all in the name of love kind of girl. Accolades for me, right? What if I told you it’s just a ruse for my pride and need for control? Control that blares I’m not needy, I can do it myself, I don’t need anyone— unless someone needs /me/, and then I’m there.

I have spoken with enough people to know that I am not alone in this. Well, maybe I’m alone in admitting it, but I’m not alone in feeling it.

For 35 years I basked on the pedestal of being able-bodied, capable of doing anything that needed doing. I spent decades believing my purpose was to wear myself out pleasing those around me. I knew the truth, but it was easy to ignore when I had strength on my side.

Culture convinces us that our success is measured by our strength. It’s a bold-faced lie that what we are capable of is what we are loved for. This isn’t living in the truth of the gospel. Thankfully God is continually gracious to keep showing me the sin of my pride and need for control. He patiently loves me back to the foot of the cross and reminds me of my need to be needy and not just needed.

It took the stripping of my strength by this awful disease to expose this to me, and I still have to seek grace often because my heart’s bent is on proving myself instead of letting myself be loved in my neediness. Jesus is breaking me of my strength and showing me the grace to be found in embracing my weakness, and the joy that it gives others who want to help.

I hope that you can find this truth in your own life. Don’t settle for being loved for your abilities instead of being loved for your heart. Resist the temptation to keep yourself busy in order to feel accepted. Look for the ways to slow and find your significance in something more real. Then notice how you find peace and rest in giving others the gift of helping.

Uncategorized

Speechless

Hannah

Here is a graphic about my illness to give you an idea of the things it has, does, and will affect.

Inability to verbally communicate.

I have been a spectator to this with my friend who has ALS, and it is hard. Talk about a massive loss of control. Imagine the amount of having to slow down and let your actions speak louder than your words, or in this case instead of your words.

Over the past few months my voice has begun to weaken. At times it’s raspy, or sounds like I’m hoarse or getting sick. With this new development my speech therapist started the process for me to get an AAC device as an alternative means of communication. Control Bionics and my speech therapist have been wonderful to work with. They were very efficient at getting me set up with a device that will meet my current needs, as well as my needs as my condition continues to change.

At first, life with my AAC was about getting familiar with it and practicing navigating between the pages and words and phrases to best communicate. My device has sensors on the front that either detect my eye movements, or a slight muscle movement of my hand, and it selects the letters or phrases I want to say. It’s amazing we have this kind of technology, and I’m humbly grateful to be able to use it. I even had the opportunity to bank my own voice so that when it speaks for me you will still hear my voice. This part is expensive, but we are looking for solutions!

This past week my voice has taken a turn. One morning I woke up and barely had a voice at all. Some of it returned, but I now sound like a quiet, scratchy record with the occasional skip where nothing comes out at all. Truthfully it’s been a little unnerving seeing how fast I could be plunged into silence.

Hardly anyone can hear me anymore, and the effort and breath it takes to make my voice loud enough to project across a room is exhausting and frustrating. I wasn’t expecting this part to be so hard, but it’s hitting me right in a tender spot I didn’t know I had. I feel panicked to not be able to explain myself, threatened by the thought of not being able to call out and get my kids’ or caregivers’ attention. And if you see me singing along in church I’ve fooled you. I’m lip-syncing.

Another practice in total surrender; in cupping my hands around what’s left and holding out all I have to offer. A chance to do more listening than talking. Another practice in giving up what was and adjusting to what is, and believing that regardless of the journey or the outcome, I am held.

Uncategorized

An Honored Rite of Passage

Hannah

When I met with my counselor recently she said, “If you were given the space and peace I think you would succumb to your illness very quickly, but out of sheer stubbornness you continue to exceed all of our expectations.” She’s not wrong. As far as the stubbornness scale goes I’m way up there near the top, and I do have quite a number of things I want to feel like are going to be ok in my absence. I realize that may sound arrogant, and some of it probably is, but I also think most of us if we accepted that our time is limited have things we want to settle before we leave this world.

I think there are pros and cons to this stubbornness to cling to life. As a culture we really look at death in a strange light considering it is something that happens to all of us eventually. We measure the length of a person’s life and state that they were taken too soon, or they died much too young, but what if it was exactly the right time? What if your story hangs heavy on the thread of /this/season, /this/ loss?

We seem to live in a mutually accepted denial of the fact that we and those we love have an expiration date. This has a tendency to rob us of a joy and peace we can experience in the face of anticipated loss. We can all probably find a little purpose by leaning in and loving like crazy and then graciously walking our loved ones Home with our presence, our honesty, and our understanding.

Uncategorized

Words with Weight

Hannah

At the end of each year as I spend some time reflecting on the year before, inevitably a new word saturated in meaning is impressed upon my heart for the coming year. That word remains the theme of my photo album, and the compass to how I hope to lead my family to grow throughout the year.

This past year our word was Shalom. Many of you may already know that Shalom means peace. I was longing for peace at the beginning of this year, but it went even further to define our year as not just an absence of war, but an overall sense of fullness and completeness in mind, body, and estate. To make full restitution; RESTORE! This brought to mind one of my favorite verses, Joel 2:25. “I will repay you for the years the locusts have eaten.”

Every time I passed the 6 letters framed upon our front door I prayed for peace both within our home, and outside of its doors. I prayed that God’s peace would bring a sense of completeness to our home; to our relationships, our walks with God, and our friendships with others.

As 2024 drew to a close and I started seeking and praying for our word of this new year I began seeing it on repeat, the word chosen for this year. This year’s word is JOY. I anticipate we will be blessed with an abundance of joy, and we will also see it woven in and out of many of our daily experiences. Perhaps we will learn better how to give joy, and we will become accustomed to receiving joy even in circumstances we might not think to look!

As we wind down our time in Shalom, though still activity seeking where we can give and take peace, I excitedly welcome this 2025 season of all things Joy!

Christmas, Uncategorized

Enough

Hannah

I hardly have any photos from Christmas this year. Christmas Eve I missed our candlelight service at church because I was too weak to sit up or stay awake.

Our candlelit tradition of “shepherds’ meal” on the night of Christmas Eve only kinda-sorta happened, because I wasn’t well enough to remember, or to get up and make different choices of soup and bread like I usually do. The night was rescued by a frozen tub of tomato soup found in the bottom of the freezer, and the calming glow of our advent candles. I lay in my hospital bed in the next room listening to the chatter, and chiming in silly questions like “what ever happened to the sheep after the shepherds left to see baby Jesus?”

Late on Christmas Eve I still hadn’t managed to wrap more than 4 gifts to tuck under the tree. Anyone who knows my personality knows that is the polar opposite of my checklists and neat packages tied with string weeks before December 25th. My husband and daughter came through by busting out all the wrapping (with the help of a healthy stack of gift bags) in the late hours as Christmas Eve melted into Christmas morning.

Christmas morning… well, really most of the whole day is a blur with more chunks missing than I’d like to admit.

What I /do/ know is all four of my babes were under one roof again.

My silly dream of a Hannah tree finally happened, in all her pink glittery glory.

Even through sickness and pain, the cozy warmth of a crackling fire still brought with it the memories of Christmases past, and the anticipation of more to come.

Zero kinds of Christmas cookies or fudge happened, but “Kitchen Trash” sure as heck still did.

I did not capture my traditional “photo every hour” series of Christmas Day, but I did manage to grab the still-frames of the most important moments of joy and togetherness.

And as the day wound down and the doubts crept in with the quiet, my wise sweet little sister typed out the balm that my soul so badly needed; I need to adjust my definition of the word tradition from “every,” and “have to,” to “some years,” and “like to.”

When I sifted through my unmet expectations I found that though I didn’t get the Christmas pickle unpacked this year, there was just as much joy and gratitude and wonder in the exchanging of the packages. And even though we weren’t able to visit the lights at the bell tower or drive the neighborhoods looking for the best displays, the twinkling in our own window was enough to cast that magical glow that makes you feel warm with anticipation.

This Christmas started out feeling like I dropped more balls than I caught, but as the day unfolded and the story of the Light coming into this dark world permeated each of our moments and traditions, all of it was suddenly more than enough. I was enough. Because He is more than enough.

Uncategorized

Exhaustion

Hannah

I’m grumpy. Last night I threw every trick I had at my pain. Every essential oil, medication, balm, massage, heavy blanket, heat, and desperate prayer. Yet it managed to throb steadily on through the night hours and into the morning without a moment of drifting off to sleep. Now as I count the minutes until my alarm goes off, it hardly seems worth trying to snatch any last seconds of shut eye against the roar of pain. I’m sure each of you have wrestled sleep deprivation at one time or another, and you know how your usual problems seem 10 times harder when you’re running on coffee beans and daydreams. So yeah, I’m grumpy and I know it and I’m praying sweet salvation over my soul.

Today I will need the strength to care for a husband who isn’t feeling well. I’ll need the wisdom to meet with a school counselor to plan the next semester in a way that’s most beneficial for my child. I’ll need the patience to help with missing homework, and the clarity to stay alert while driving kids here and there. It would be easy to despair before the day has even begun.

I’m reminding myself I am carried though. Carried by my Father who will never leave me, and the prayers of my people who never stop helping me press on. Please meet me there. Meet me in the fight, the grueling repetition, and the endless prayers, because goodness knows they’re needed today.