Tag: Terminal Illness

grief

Trusting God as the Table Changes

Hannah

Despite often not having much of an appetite, that has not slowed my consumption of Ben & Jerry’s ice cream, or homemade yogurt, or anything really that resembles the flavor of a pickle. Until today. It was a waffle. A delicious, crisped-to-perfection sourdough waffle with butter and syrup was the red flag that put a stop to eating as I knew it. Truthfully I had noticed over recent weeks that bites were getting caught in my chest and being stubborn to go down, but I had been dismissing it as too big of a bite, or not enough chewing. That was wishful thinking. After a brief check-in with my speech therapist, she confirmed that the dangers of eating by mouth now outweigh the benefit. Fortunately for me I have already had feeding tubes placed for a few years now as my inability to absorb nutrients became a bigger problem. 

So this isn’t entirely unfamiliar ground for me. Still, hearing those words—that food by mouth is no longer safe—hit me in a way I didn’t expect. It’s not just about waffles or yogurt or pickles. It’s about the little pleasures, the ordinary gifts I’ve often taken for granted. The lit candles at my dinner table. The joy of sitting down to eat with others, the taste of something warm and comforting, the way food brings people together. That chapter is closing, and I find myself grieving the loss of it.

But grief, for me, never has the final say.

As I sat with this news today, a quiet truth settled in my heart: I am not sustained by waffles. I am not even ultimately sustained by feeding tubes. My sustenance comes from the Bread of Life—Jesus Himself. He alone satisfies the deepest hunger of my soul. The world may see this as loss, but in Him, there is gain. Not in a shallow, “look on the bright side” kind of way, but in a rooted, unshakable truth that His grace is sufficient for me—even here.

Scripture tells us, “Though outwardly we are wasting away, yet inwardly we are being renewed day by day” (2 Corinthians 4:16). My body may be failing, piece by piece, but I am being upheld, day by day, by the One who does not grow weary. I have tasted and seen that the Lord is good—and that is a flavor I will never have to give up.

So while I may no longer get to enjoy the crispy edges of a sourdough waffle, I rest in the promise of a coming feast—one prepared for me by the King Himself, where no illness, no brokenness, and no feeding tubes will ever be needed again.

Until that day, I will keep showing up to the table of His grace. Because He still meets me there.

suffering

Today

Hannah

Head throbs,

Spasms pulse.

Nausea ebbs and flows in great waves,

Pain spins up to 8 and then ticks back down to 4.

My mind fights my body with its will to get up and participate, move, live.

The weight of fatigue grips my limbs like wet sand,

Every breath a labor, every step a gamble.

The world outside carries on, brightly unaware,

While I drift beneath its surface, unseen currents pulling.

Hope is not always loud.

Sometimes it whispers in the quiet:

a hand held,

a laugh shared,

the sun warming my windowpane.

There are days I curse this vessel,

days I retreat into silence and salt,

but also moments—sharp and golden—

where love slices through the fog.

I do not vanish all at once.

I am still here:

in the tremor of my voice,

in the stories I still tell,

in the soft rebellion of surviving today.

Memories

Where Memory and Mercy Meet

Hannah

Tonight, I was caught in the quiet pull of old photographs, each one a window to a world that felt softer, lighter. I lingered in the hush of memory—bare feet on sun-warmed pavement, sticky fingers clutching melting popsicles, laughter rising like fireflies into a dusk that never hurried. The days before my family knew the heavy grief of suffering through the progression of a fatal illness.

Grief has a way of sharpening our memories. It turns the past into a soft-lit place where pain had not yet knocked at the door. And tonight, I felt that ache—the ache of before.

But as I sat there, surrounded by memories frozen in time, the Lord gently reminded me: He was with us then, and He is with us now.

Hebrews 13:8 says, “Jesus Christ is the same yesterday and today and forever.” While everything around me has changed, He has not. The God who gave us the joy of long summer days and laughter echoing down the hallway is the same God holding us steady in the storm of uncertainty. He does not abandon us in our sorrow; He walks with us through it.

And so, while my heart longs for what once was, I’m learning to give thanks for the beauty that still is. Even in the midst of heartache, there are glimpses of grace—quiet moments of strength I know I didn’t conjure on my own. There’s peace that surpasses understanding, not because life is easy, but because Jesus is near.

These old pictures remind me not just of the sweetness of the past but also of God’s faithfulness throughout the years. I don’t know what tomorrow holds, but I know the One who holds tomorrow—and He is good.

So I’ll hold onto that. I’ll grieve, I’ll remember, and I’ll trust. Because our story isn’t just framed in photographs—it’s being written by a God who redeems, restores, and never lets go.

Mothers Day

This Mother’s Day

Hannah

I remember being in church the first Mother’s Day after burying my daughter and not being able to contain my sobs as the pastor shared a special tribute to mothers, and I didn’t feel like celebrating at all because I had stood at the edge of eternity and watched a piece of my motherhood be torn from my arms in an instant.

I remember the Mother’s Day after my first miscarriage and how I grieved over having been thrilled to add another arrow to our quiver, only to watch that dream bleed out through the cracks in my heart.

I remember the Mother’s Days during our seasons of infertility, and how I fought to not entertain bitterness toward the expecting mamas in my life because I was crippled by the thought of never being able to expand our family.

I remember the Mother’s Day following our season of foster care, and how I had seen our story being very different from the reality we were living.

I remember Mother’s Day as a child and how the only thing on my mind was the special craft I’d made for my mom, or the flowers I’d picked her, and how this day of celebration felt a whole lot less complicated and emotional back then.

This Mother’s Day I remember that there are those of you all around me that are living out various versions of broken stories that have wounded your dreams and experiences of motherhood, and I see you standing there. I see how this day of celebration comes with so many convoluted emotions; deep grief and heartfelt thankfulness and hopeful expectation. I know that some of you are holding your breath waiting to turn the calendar page to Monday, and that’s ok.

I know today may be especially hard, and I just want you to know that you’re not alone. I pray that God gives you comfort, peace, and strength as you carry both extravagant love and crushing sorrow in your heart. Your pain matters, and so does your story. Allow Him to use these painful and uncertain days to strengthen your trust in Him, to surrender your need for control, and to open your hands wide to the good-hard story that He is writing through you. I promise you it’s worth it.

faith

Even When it Hurts

Hannah

My tendency toward binge-blogging is apparent again. 🙃 There is just much on my mind I want to get out somewhere productive.

As I mentioned in an earlier post, Easter weekend marked a foundational shift in my soul. I wanted to feel sorry for myself. I wanted to mope in feeling unseen and misunderstood. Instead, what could have been a morose, lonely weekend bloomed into one of the most transformative times of self-reflection and sacred dialogue I’ve ever experienced.

I started to say that I took my hurts to God, but the truth is I chose to sit with them, feeling pity for myself, and my Heavenly Father reached out to me. And in the thick silence of that weekend, as I grieved over the story I couldn’t possibly have imagined for myself 20 years ago, I saw myself and my life journey with more clarity than ever.

The truths I realized that weekend are too revolutionary to keep to myself. I realize that the fact that it took me this long to see myself with this kind of God-gifted understanding surely means that there are others needing to hear these truths as well. So on the days that the weight of your hard story feels like it will crush you into oblivion, whisper these words to your beaten soul, scribble them in your journal, tuck them deep into the hollows of your heart, and remind yourself over and over again until you have the strength to believe it.

God chose to leave you in this broken world—to live, to love, to struggle—not as punishment, but with purpose. The hardship you face isn’t pointless; it’s the very tool he is using to shape something in you that comfort never could.

He is at work in your pain, not to crush you, but to change you—to rescue you from the parts of yourself that hold you back from life as he intended it. And because he loves you deeply, he is willing to let go of your temporary happiness if it means drawing you closer to lasting wholeness.

God is unwavering in this mission. He’s not distracted. He hasn’t forgotten you. He’s committed—to your transformation, to your redemption, and to your good, even when it hurts.

community

When the Doorbell Doesn’t Ring: The Quiet Abandon of Terminal Days

Hannah

When you’re first diagnosed with a terminal illness, there’s often a flood of support—texts, calls, check-ins, care packages. People cry with you. They tell you they’re here for anything. They swear they won’t disappear.

Time moves on. So do they. There are seasons to our lives, and some people who may have been able to be more present in the beginning do not have the time and flexibility in this next season they are in. Perhaps others who weren’t available initially are now able to be more present as they enter a slower season of life.

What no one tells you is that terminal illness is not a straight descent. It’s a long, unpredictable goodbye filled with plateaus and crashes, slight recoveries and devastating setbacks. It’s not dramatic enough to be a crisis every day, and not gentle enough to be forgotten. It exists in this in-between space that makes people uncomfortable—too serious to ignore, too exhausting to engage with endlessly.

And in that in-between, some people begin to vanish.

Some friends disappear because they don’t know what to say. Others because they think you’ve stabilized and assume you’re doing better. Some perhaps can’t add anything else to their plates. Life, after all, goes on for them: promotions, vacations, weddings, baby showers. They’re not bad people—they’re just busy, or scared, or shy, or not able to confront your pain when they have the luxury of avoidance.

You sit in your room watching the seasons change. Spring arrives with its blossoms and pollen, and you wonder why it feels so far away. Summer blazes through with parties and long days, and you’re still in bed, waiting for a reply. Autumn colors the trees as your medications increase. Winter comes, and it’s the coldest one yet—not because of the weather, but because no one showed up for the last holiday. Or your procedure. Or just to sit with you.

Illness is isolating. Terminal illness is devastatingly lonely.

There are moments when you ask yourself if you’ve done something wrong. Were you not a good enough friend? Did you ask for too much? But deep down, you know this isn’t about blame. It’s about the raw truth that few people are prepared to walk with you through a slow, uncertain ending. <== Read that sentence again.

Still, not everyone leaves. There are those rare few who show up without needing to be asked. They don’t bring solutions—they bring presence. They don’t always know what to say, but they sit beside you anyway. Sometimes they bring coffee. Sometimes they just bring quiet. And their presence, however brief, becomes a form of medicine.

If you’re in this season of illness and loneliness, know this: you are not invisible. Your pain is real. Your courage, even when it looks like just getting through another hour, matters. You deserve community, not because you are dying, but because you are still here to be a part of it.

To those watching from the sidelines—don’t disappear. Show up. Even imperfectly. Especially imperfectly. You don’t need the right words. You just need to be willing to stand beside someone in their most human, most difficult season.

Because in the end, what heals us most is not the cure, but the connection.

Uncategorized

The Letters

Hannah

I probably should have started with this before my last post, because I’ve gotten some concerned responses. I am still here for every single moment ordained for me!

That being said, God has also been working in my life to prepare me for my Heavenly home. If I could write a letter to each one of you I would. So many of you are my prayer warriors and faithfully encourage me through the highs and the lows of my story. Since I can’t reach out to each of you individually, I’m going to be using my blog to write some letters to my people, so that each person will have the chance to hear my heart, and easy access to it. So please don’t despair when you see me posting the things I’m carrying in my heart. Know they are meant to be treasured by you, where you can return to them again and again.

Uncategorized

Walking Each Other Home

Hannah

To my ride-or-die friends who have walked with me through valley and mountain—

I know how deeply your beautiful hearts are wrestling with what you are being asked to do — to love so fiercely in friendship, and then hand me back to Jesus. To surrender our journey just as it felt like it was only beginning. How does one even begin to do that?

We have shared life together for about as long as the disciples sat at Jesus’ feet. Imagine how they must have felt, thinking their journey had only just begun — how desperate they must have been at the thought of losing their closest friend.

But as the disciples learned — and as you will too — God never asks us to walk alone. His Spirit of grace, His face in your friends, His voice in your heart, will comfort and guide you.

Yes, there will be tears. But there will never be a loss of hope or joy. The planting of you in my life is coming to bloom. We have loved deeply and served one another through many seasons, each with its own beautiful purpose.

Though I may slip away from this celebration a little early, it is only to join an even grander, more glorious one.

I ask that you continue in what we have learned together through this suffering: to show up, to love the brokenhearted, to carry hope into weary places. There are so many hurting hearts all around who need the same friendship, encouragement, and relentless pointing to Jesus that you have given me.

Our story doesn’t end here.

Go. Love fiercely. Serve joyfully. Laugh and grow richly, with hearts full of gratitude for the gift of friendship we are blessed to share.

I love you buckets. Xoxo

~Hannah

faith

The Worst Kind of Scars

Hannah

There’s a particular kind of pain that slices deeper than most—by the time the blade’s edge has cut deep into the soul, the compression meant to stop the pulsing flow is often insignificant and ineffective. This is the deep pain of being hurt by the very people who were supposed to be a reflection of Christ. The ones who were supposed to be your spiritual family. The ones you trusted with your most vulnerable confessions, your wounds, your heavy burdens. And instead of grace, you were met with rejection. Instead of love, you found judgment. Instead of healing, you were left with more scars.

This pain is a quiet heartbreak. A confusing one. Because how do you reconcile the love of Jesus with the rejection of His people?

It can look like being vulnerable in a small group and having your words twisted or used against you later. It can be coming forward with a struggle—addiction, abuse, mental health, prodigal children, doubts—and being met not with compassion, but with shame. It can be trying to serve, lead, or simply belong, only to be ignored, belittled, or pushed out.

If you’ve been there, I want you to hear this: you’re not alone. And you’re not crazy for feeling heartbroken and angry and confused. Jesus understands this kind of pain—He experienced betrayal, too. Not just from the world, but from those people closest to Him.

So how do you keep your faith when your heart is breaking?

Here’s what I’ve learned, often through long tears and difficult wrestling:

First of all, separate Jesus from people.

People are imperfect. Even well-meaning Christians can cause wounds. But Jesus—He never changes. He is the same yesterday, today, and forever. When people have failed you, He hasn’t. He still sees you. Still loves you. Still draws near. The church is meant to reflect Him, but when it doesn’t, He still remains good and trustworthy.

Lean in and feel the pain. Let it suck, and grieve it. Don’t minimize it.

Jesus never told us to pretend things are fine when they’re not. There’s space in his Kingdom to cry out, to lament, to question. Just look at the Psalms—David was constantly bringing his raw, unfiltered hurt to God. You can too. Your pain is valid, and God can handle your honesty.

Next, find community—but wisely. Not all churches are the same. Not all people are the same. It might take time, but there are places and people who will love like Jesus does—gently, kindly, humbly. Take your time, pray for discernment, and know that your healing is not rushed.

Finally, let Jesus be your healer.

No church can save you. No pastor can fully carry you. That’s not their job—it’s His. He came to bind up the brokenhearted, to carry burdens, to restore what was lost. Let Him do that for you. Day by day and layer by layer.

Faith after being hurt in church looks different.

It might be a quieter faith. More cautious. Less tied to the buildings and programs and activities, and more rooted in the secret place with God. That’s okay. Sometimes, when everything falls away, we finally see Jesus more clearly. Not through the stained glass of others’ opinions, but for who He truly is—gentle and lowly in heart, full of mercy, slow to anger, rich in love.

If you’re struggling, let me say this clearly: Jesus is not the one who hurt you. He weeps with you. He walks with you. And He is still worth following, even when His people fall short.

Your pain matters. Your story matters. And your faith—if it’s still there, even if it’s in pieces—is something beautiful.

You’re still seen. Still loved. Still held.

And most of all, you are not alone.

Kindly leave me a comment; it lets me know you’re listening!