Author: Hannah

family

Messy Grace

Hannah

I learned an important lesson yesterday. Well, probably not just yesterday. I have a feeling I’ve been shown this before, it’s just that I need lots and lots of reminding.

My Little was really struggling. You know how someone steals one of your dollars and you decide to burn the other $99? Yeah. My little was having one of those days, and it wasn’t pretty. I had made several attempts to offer helpful input, which was just met with more frustration. And then I hit the parenting connection jackpot.

I was making dinner, and trying to do it in a hurry. Well actually, it was dinner time, but I was making breakfast because I failed to plan ahead. I had exhausted the week’s meal plan already and needed groceries and didn’t have time to thaw anything out, so breakfast for dinner was the last ditch attempt to act like I had it all together. Fortunately it is well received around here.

Within about 5 minutes I had efficiently gotten tortillas into the oven to warm, sausage rewarming in the skillet, diced potatoes in another skillet, had the cheese laid out, and all that was left was to wash and crack the eggs and get them into the third waiting skillet. I estimated I would have everything hot and put together within 15 minutes, perfect. Then my struggling Little walked through and the frustration and sadness was palpable, y’all.

One of my earlier suggestions had been to check out our emotion wheel and do the corresponding activity. I probably use this more than who I got it for, and I’ve found it helpful. The activity suggested was to hold ice cubes, which sounded intriguing to me, but was met with much resistance.

As I started counting out the eggs and grabbed a pump of soap to start washing them, an idea occurred to me. Washing the eggs would involve hands in cold water; maybe that would have the same helpful effect at derailing the struggle train. So I offered the task up, and it was accepted.

I could see that this activity had helped just a bit, so I started thinking of how I could keep us moving in this direction. I looked at the pile of eggs to be cracked, and my rational type A personality went to war with my empathetic emotional side. I could get the eggs cracked in less than 2 minutes with no bits of shell and no mess, keeping dinner on track with my projected time estimate. Or I could offer it up to my Little in hopes that it would help blow away the fog of frustration and sadness that was tinting the day. The type A in me sighed as I opened my hands to giving up control.

“Hey, would you please crack these eggs for me? It would be really helpful.”

I got a hint of an exasperated eye roll, but then sleeves were rolled up and small hands reached for the first egg, still glistening with the last coat of cold water. One by one the eggs connected with the counter, shells cracked, yolks plopped into the glass pitcher. 8 eggs, several shell splinters, and two hands covered in gummy slime later, there was a smile.

“Thanks for letting me do that, Mom. That was fun!” And then a few minutes later from the other room… “Mom, I just love you so much.”

I was still picking bits of shell out of the eggs and cleaning yolk off the side of the pitcher. And the faucet. And the sink. And the counter. My heart swelled and twisted at the same time as I realized that making him feel seen and needed and valuable was exactly what he needed, and my own need for control and perfection almost got in the way. I tucked these feelings in my heart, hoping to remember them for next time.

Friends, the messes are worth it. People are messy. My messiness may look different than yours, but we all have a deep need to be seen and valued beyond the messes that we make, and accepted anyway. It was a humbling lesson that I’m sure I will need reminding of again, so that’s why I’m sharing it. We all need the reminder sometimes that letting go of our own hangups may be just the thing needed to make the confidence of someone else soar.

PS~ add “crack some eggs” to the wheel under Anger —> Annoyed. 😉

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Talking Points Podcast

Hannah

My church recently invited me to be a guest on their podcast, called Talking Points. I’m including a link if you’d like to listen to it, and you can also find many of their other podcasts on meaningful and important topics. If you give it a listen, let me know your thoughts!

UBC Talking Points Podcast

(Two of my favorites are the ones about worship. Check them out too!)

faith, Uncategorized

Collecting Scars

Hannah

This week in my reel of photo memories this one popped up…

Immediately the words to Ellie Holcomb‘s song, “Just As Good” started echoing in my mind, where they lingered for the rest of the day. “Oh every ebeneezer points to where my help comes from.”

Who would have thought these painful slices would become my stones of remembrance?

The many scars my body carries tell a story of God’s divine assistance and mercy. Times when I have been wounded, but He has allowed healing. Some scars run deeper than others. Some are still in the process of healing, but all of them come with a story of challenge that was met with grace and healing.

At times I feel embarrassed by my wounds, but reality is that these and other marks paint a connect-the-dots picture of my hard-fought story—right on my own skin. They are reminders that I have lived a life not of safety, but of the opposite. I’ve pushed myself, and I’ve been pushed, sometimes too far, and I would not have it any other way.

When I see my scars, I remember the difficult challenges, and the opening of my hands to surrender to an attitude of trust. I see the reminders of accidents and falls where I couldn’t hold myself up, but I was still held. I see evidence of a plot line that included my defeat, but instead is a story of survival.

I am drawn to the lyrics of the song Scars by I Am They. “So I’m thankful for the scars ‘Cause without them I wouldn’t know Your heart, And I know they’ll always tell of who You are, so forever I am thankful for the scars.”

It takes some hard-fought determination to be able to see these red and white squiggles carved into my flesh as accomplishments, but that is what has gently happened as the number of my scars has ticked up with each passing year.

I can choose to let my scars only remind me of the pain, or I can let them remind me of the scarred hands that payed my ransom.

Tracing my finger over these raised little lines I’m struck by immense truths. A stunning canvas of struggle, embodied suspense. In every imperfection, strength that can be found; the echoes of hardship that shapes my heart and mind to know and trust a good Father who is writing a good story for me.

Please leave me a comment, it lets me know you’re listening!

endurance

Lament

Hannah

I reach my desperate hands toward the heavens from where my help comes. I cry out to God because I know He will hear me.

How long God, will I watch my family crumble? Why do each of my children have to suffer so hard? How long will we wait for our redemption story? Have you forgotten us?

Please strengthen my hope, it is weary within me. Please redeem your people with your mighty hand. Restore to us the years the locusts have eaten.

I remember full well the days you stood me firm on a mountaintop. I remember your deep compassion for me, and how you saw something in me I could not yet. I remember the glimpse of my story you gave me, and it is a good, good story.

I will continually praise you, because not a moment of my life is hidden from you. You know full well what the finished picture will look like, and you are trustworthy to take me there. My thoughts are but chatter compared to the steadiness of your all-knowing mind. You have led me this far, and I will yet trust your kind and compassionate heart to bring my story to completion.

Thank you friends, near and far, who have prayed and loved and carried me through this hard few weeks. May God richly reward you for your faithful kindness.

daily graces

The Most Difficult Gift

Hannah

I love giving gifts, and I enjoy receiving them, yet I struggle to accept one of the greatest gifts offered to me; the gift of receiving. It is a humbling place to exist, needing others’ love and care, and I find it difficult at times. I have realized because of my love of giving that it takes far more grace to receive than it does to give.

After years of priding myself on my strength, being humble is difficult for me. It’s hard to ask for help. Do you find yourself agreeing with me? Yet we are all in need in one way or another; broken and struggling but putting on the best brave face we can muster just to prove we can go it alone.

In this long, loooooong season of needing to accept the help of others I find that the luster of having it all together is wearing thin. I see the depth of brokenness within me and around me, and I long to connect in my brokenness. I long to be known and to know the true hearts of others around me.

At my core I am a doer. A server, a giver, a wear-myself-down-to-nothing all in the name of love kind of girl. Accolades for me, right? What if I told you it’s just a ruse for my pride and need for control? Control that blares I’m not needy, I can do it myself, I don’t need anyone— unless someone needs /me/, and then I’m there.

I have spoken with enough people to know that I am not alone in this. Well, maybe I’m alone in admitting it, but I’m not alone in feeling it.

For 35 years I basked on the pedestal of being able-bodied, capable of doing anything that needed doing. I spent decades believing my purpose was to wear myself out pleasing those around me. I knew the truth, but it was easy to ignore when I had strength on my side.

Culture convinces us that our success is measured by our strength. It’s a bold-faced lie that what we are capable of is what we are loved for. This isn’t living in the truth of the gospel. Thankfully God is continually gracious to keep showing me the sin of my pride and need for control. He patiently loves me back to the foot of the cross and reminds me of my need to be needy and not just needed.

It took the stripping of my strength by this awful disease to expose this to me, and I still have to seek grace often because my heart’s bent is on proving myself instead of letting myself be loved in my neediness. Jesus is breaking me of my strength and showing me the grace to be found in embracing my weakness, and the joy that it gives others who want to help.

I hope that you can find this truth in your own life. Don’t settle for being loved for your abilities instead of being loved for your heart. Resist the temptation to keep yourself busy in order to feel accepted. Look for the ways to slow and find your significance in something more real. Then notice how you find peace and rest in giving others the gift of helping.

Uncategorized

Speechless

Hannah

Here is a graphic about my illness to give you an idea of the things it has, does, and will affect.

Inability to verbally communicate.

I have been a spectator to this with my friend who has ALS, and it is hard. Talk about a massive loss of control. Imagine the amount of having to slow down and let your actions speak louder than your words, or in this case instead of your words.

Over the past few months my voice has begun to weaken. At times it’s raspy, or sounds like I’m hoarse or getting sick. With this new development my speech therapist started the process for me to get an AAC device as an alternative means of communication. Control Bionics and my speech therapist have been wonderful to work with. They were very efficient at getting me set up with a device that will meet my current needs, as well as my needs as my condition continues to change.

At first, life with my AAC was about getting familiar with it and practicing navigating between the pages and words and phrases to best communicate. My device has sensors on the front that either detect my eye movements, or a slight muscle movement of my hand, and it selects the letters or phrases I want to say. It’s amazing we have this kind of technology, and I’m humbly grateful to be able to use it. I even had the opportunity to bank my own voice so that when it speaks for me you will still hear my voice. This part is expensive, but we are looking for solutions!

This past week my voice has taken a turn. One morning I woke up and barely had a voice at all. Some of it returned, but I now sound like a quiet, scratchy record with the occasional skip where nothing comes out at all. Truthfully it’s been a little unnerving seeing how fast I could be plunged into silence.

Hardly anyone can hear me anymore, and the effort and breath it takes to make my voice loud enough to project across a room is exhausting and frustrating. I wasn’t expecting this part to be so hard, but it’s hitting me right in a tender spot I didn’t know I had. I feel panicked to not be able to explain myself, threatened by the thought of not being able to call out and get my kids’ or caregivers’ attention. And if you see me singing along in church I’ve fooled you. I’m lip-syncing.

Another practice in total surrender; in cupping my hands around what’s left and holding out all I have to offer. A chance to do more listening than talking. Another practice in giving up what was and adjusting to what is, and believing that regardless of the journey or the outcome, I am held.

Gratitude

For Such a Time as This

Hannah

Throughout the debilitating process of this disease I admit I have wondered from time to time what good this trial could possibly teach me. It seems unfair. I have been wrestling with this question more so as I see the effect it has on my littles and my husband lately. What good is in it for them? God promised to use our circumstances for good (Romans 8:28). As the resulting wounds have grown deeper I have been asking more often; what are you doing God??

In typical fashion, He is faithful to point out His hand in my life and quiet my unbelief. Esther 4:14 runs through my brain on a constant loop; “perhaps you were created for such a time as this.” Then I was brought to John 9. Jesus and friends are with a blind man, and His friends asked why this man was born blind; was it because of something he or his parents did? The answer Jesus gave is everything. He replied, “No, this happened so the power of God can be seen in him.”

Wow. Talk about humbling. To think that God thinks enough of me to use me to reflect His power. This does not make the journey easier, but it makes it worth it. When I’m tempted to complain and long for the healing of Heaven I want to remember that His power is at work through me. It really is obvious, but sometimes I’m a slow learner. Look at how long I have been fighting! The average life expectancy with this is 6-10 years… I am in year 12! Why would God keep me here and allow the suffering to continue if not to bring glory? If you need proof of miracles well, you’re looking at one!

To God be all glory for allowing me the gift of being His and giving me a purpose beyond all I could imagine.

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An Honored Rite of Passage

Hannah

When I met with my counselor recently she said, “If you were given the space and peace I think you would succumb to your illness very quickly, but out of sheer stubbornness you continue to exceed all of our expectations.” She’s not wrong. As far as the stubbornness scale goes I’m way up there near the top, and I do have quite a number of things I want to feel like are going to be ok in my absence. I realize that may sound arrogant, and some of it probably is, but I also think most of us if we accepted that our time is limited have things we want to settle before we leave this world.

I think there are pros and cons to this stubbornness to cling to life. As a culture we really look at death in a strange light considering it is something that happens to all of us eventually. We measure the length of a person’s life and state that they were taken too soon, or they died much too young, but what if it was exactly the right time? What if your story hangs heavy on the thread of /this/season, /this/ loss?

We seem to live in a mutually accepted denial of the fact that we and those we love have an expiration date. This has a tendency to rob us of a joy and peace we can experience in the face of anticipated loss. We can all probably find a little purpose by leaning in and loving like crazy and then graciously walking our loved ones Home with our presence, our honesty, and our understanding.