My 6 year old climbed into bed with me and let out a deep sigh as he laid his head on my shoulder. His babyish fingers fiddled with the green beads on the bracelet I had given him when he asked for something to “remember me.” When I asked him what he was thinking about, the fears came spilling out. “I don’t want to miss you mama, I want you to stay.” He echoed what my heart whispers every time I look into the eyes of my little people. We all want more time.
My condition has a life expectancy of 5-15 years. My symptoms started 6 years ago. I guess many would say I’m living on borrowed time. It’s a heavy thought when you think of it that way. That’s the thing though; every one of my days are already perfectly appointed, however many that may be.
It’s easy to get caught up in fear when you have something that has put an expiration date over your head. I’m not going to lie and say my mind doesn’t wander there, wondering sometimes over how long I have. The more I have moved and leaned into this season though, the more I am filled with an overwhelming peace that I will be here the perfect number of days. It’s a painful belief we have that people are taken from us too soon. “She was too young.” “He died too soon.” “She was taken from us much too early.” Can any of us point to someone who died right on time? I choose to believe that God allows each of us to die at the perfect time, regardless of the circumstances. This gives me so much freedom.
Instead of focusing on my life expectancy, I’m choosing to live expectantly; expecting joy, daily graces, and the perfect number of days to do life here with my people. I’m soaking up the snuggles, rolling with the grumpy mornings, and pledging to be present for the big and small moments of every day without fear over my future. What if you decided to believe that everyone is here for the perfect number of days? Who would you be?
Please leave me a comment, it lets me know you’re listening!
Choosing Hope 
God indeed has a plan for each of us and in His timing. I’ve always admired your strength and positive energy Hannah. You are an inspiration to many, in so many ways. I often wonder if I would be as brave, as understanding, as patient, as spiritual as you are, and pray I will be.
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Thank you Cindy💕
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You are amazing❤️
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Thank you Pam!
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Hannah, this is so true. We all live the number of days God has for us, but it is hard to accept. It is another of His provisions to be able to come to that realization. I love you
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I love you too ♥️
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And… I think you are an “odds beater”….
You’re definitely a fighter.
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Thanks Wendy! I hope so!
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You are the biggest, little fighter I know! I’m thankful you have chosen joy and perseverance. What a testimony and example for your children. They couldn’t have a better mama.
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Thanks Jami 💕
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Wow. Thank you. ❤️
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♥️
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You’re beautiful. Inspiring. And just gave me more of a push ♥️. God bless you.
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Savannah, thank you so much. In this together ♥️
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Always💚
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Beyond convicting to live intentionally and with purpose! You are very much a light!
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Glad you are living expectantly, with love. Wishing you and your family a blessed and joyful Christmas and a healthy and happy New Year. You are in my prayers. – Jeanne
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Thank you Jeanne!
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