Infant loss, Uncategorized

Cradled By Heaven

October is awareness month for several things, some I can relate to, and some that are not part of my story. Every year I ponder whether there is anything new to say as the calendar declares it is Pregnancy and Infant Loss Awareness Month, and as I’ve pondered that over this past week, it was impressed on me that there are scores of men and women walking afresh in the pain of this sorrow— mourning empty arms and vacant cradles and the fresh waves of pain that are going to come as we move into the season of celebrating family and togetherness. And that makes me want to share my story again and again, because each hurting heart needs to know their pain is seen, their empty space is held, and their future can contain lasting hope.

There are parts of my story I never imagined I’d be the one to write. I never thought I’d be the mother of children I couldn’t raise— that my arms would know both the fullness of love and the emptiness of loss so profoundly.

I’ve walked through the pain of losing two pregnancies, and I’ve held my precious daughter in my arms only to let her go before I was ready— just four and a half months after she was born.

There are no words for what it feels like to love that deeply and to lose that completely. Even now, years later, I can still feel her weight against my chest, and the flutter of my babies being woven together in my womb. But the pages of my story that I expected would be about them remain achingly blank. My heart still catches at that reality from time to time, like a bruise that never fully fades.

Grief changes everything. It changed how I see the world, how I talk to God, how I measure time—not by days and months, but by memories and milestones that never came. There were nights when I couldn’t pray, when I could only weep into my pillow and hope God heard the sound of it. And faithfully, He did.

He met me right there, not with explanations, but with His presence. I used to think faith meant feeling strong, but now I know it’s just trusting God enough to crumble in His hands. It’s believing He is still good when nothing feels good. It’s holding on to the promise that this life isn’t the end of the story.

I believe that my children are whole and alive in the arms of Jesus— and that one day, I’ll see them again. That hope doesn’t erase the ache, but it redeems it. It gives meaning to my tears and purpose to my pain.

I mother them differently now. In whispered prayers. In the way I try to love people more gently. In the way I cling to eternity a little tighter. Heaven holds what my arms cannot, but even here, in the space between what was and what will be, I still find traces of God’s goodness.

If you know this kind of loss too, I want you to hear this:

You are not alone.

Your story matters.

Your child’s life matters.

Even in this heartbreak, God is holding you and your little ones in the same hands. One day, every tear will be redeemed. Every broken hallelujah will turn into praise. And our arms—these aching, waiting arms—will finally be full again.

child loss, faith, family, grief, Infant loss, Uncategorized

When Suffering Repeats

Some sweet friends of mine just experienced the horror of delivering their lifeless baby girl at 18 weeks. This is after they buried their infant son just a few years back, and have suffered through 3 miscarriages in between. 5 babies that they have gone through excitement and joy and dreaming and hoping just to end in a devastating tragedy. When does it stop?

As a young adult I thought suffering was a transient and limited thing. It was meant to teach important life lessons, and once those lessons were learned the trial would end and that would be it.

My middle years taught me such a different truth though. Suffering isn’t something brief to be passed through— suffering is an invitation into the very heart of God. Since the best thing I can do with my life is love God and love people, whatever brings an increase to that goal then has to ultimately be incredibly good for myself, and for those my life touches.

It is a very painful truth to accept though, much less embrace. When we experience the sacred being ripped from our lives over and over again it gives way to some big questions about the goodness of a God who has said His plans for us are for good and not disaster; a future of hope. (Jeremiah 29:11)

Over the years, an especially long season of suffering has shown me that grief, loss, deep pain, and crushing brokenness have been the best teachers in instructing me how to best experience Jesus’ flawless love, and have taught me to have compassion and love for others in a way I never could have known before the hard roads of suffering I have found myself on.

It has not always been with open arms that I have embraced the hardships in my life though. Not even close. I have had long, hard wrestling matches with God with lots of searching and hard questions.

For me, if a terminal disease is the way for me to learn greater love for God and people, then I must count it a gift, not something to be endured and rushed through as quickly as possible. The suffering I experience now is only going to get harder and harder, and it won’t end until I die, but every day I endure I am pressed more into the heart of God… and that allows me to walk through the valley of the shadow of death with a God who promises to comfort me (Matthew 5:8), renew my strength (Isaiah 40:31), strengthen and help me (Isaiah 41:10). Mysteriously enough, the process of walking with him through that valley and beside those waters is what teaches me how to better love and care for others. 

God may still choose to heal me, but only if my healing presses me further into love. Only if healing can accomplish eternally what a terminal illness cannot.

My prayers these days are less for the miracle I used to beg for, and instead for more days here to practice loving God and people, and I fight hard for that, especially for my husband and my children.

My most pressing question is no longer, “Why doesn’t God heal me?” but, “What capacity would I have for loving and empathizing with others if healing was my story.”

Nobody likes to feel stuck in suffering, but before you rush your hardest seasons away, consider what character is being developed in you that you would not have otherwise had the opportunity to grow into, and whose lives you are able to reach out and make an eternal impact on because of the fire you have walked through. It is painful, friends, but it is also some sacred , holy ground you get to stand on when what shatters you also becomes what helps you find your true purpose in life.

birth, Infant loss, Trisomy, Trisomy 13

Nothing Wasted

Last week while tucking my youngest into his crib I whispered a prayer over him in the darkness. It struck me later that the last sentence I prayed was not something I had prayed over my other babies.   It was a prayer that came from a place of knowing more than I’d ever known before. I prayed that I would get to see him grow old. That prayer came from intimately knowing that nothing in life is promised; a fresh scar from the gash of that loss.

There are many areas of my life that have been touched and changed by the loss of my daughter; areas that aren’t defined by what happened to me, but by what has happened -in-me. One of the most poignant events that reflected this was something I got to do for a dear friend of mine.

I met Candy and Dean and their 5 darling children when some friends of ours invited us to join them and a few other families every week at their home.  It was only a few short months after we had lost Ellie, and we were empty; hungry for  support, and needing friends who had the strength to help us through the difficult road ahead.  Candy warmed my heart immediately with her outgoing friendliness, her frequent smile, and her hilarious story telling. At the time, her youngest was a baby, and unlike other babes, he was content to let anyone hold him, without squirming or fussing to be handed back. Every time we met I would find an excuse to snuggle him in and feel the warmth of his baby softness heavy against my chest as we sang into the night. His sweet smile and puppy dog eyes warmed my wounded heart and empty arms.

As the next few years crept by and other hardships surfaced in our lives, Candy was quick to offer help, bringing meals and offering sweet encouragement and prayers.  She is a bright example of a compassionate and selfless soul.

This past summer, Candy announced that they were unexpectedly expecting a sixth member of their precious brood of little ones.  Although surprising, the anticipation of this new life was met with excitement and joy.

20 weeks in, it was time for the ultrasound to make sure all was going well with the baby’s development, and for Candy, a secret chance to sneak at peek at the gender that everyone else would have to wait for.  Instead of that eagerly anticipated black and white beauty of baby’s first photo, a heavy cloud of fear and sadness crept in. Candy and Dean were told their baby, another boy, had Trisomy 13; he was missing many necessary functions for life, and would never be able to live outside of the womb.

It was a heartbreaking, breathtaking reality. One that no one really knew how to face, but Candy and her family would have to.

I remember contemplating again that phenomenon of joy and pain coexisting. I listened to Candy express the JOY she felt while feeling his kicks and wiggles, and I witnessed her tears as each day brought her closer to a painful goodbye.  I wondered how torturous it must feel to know for so many weeks that the day was coming, so different than the unexpected whirlwind loss I have known. I watched Candy’s strength as she chose to embrace every happiness she could of knowing he was still with her, and I doubted I could show such bravery if I were in her shoes.

This was the first time I remember thanking Jesus for what I had been through. Not thank you that Ellianna died, but thank you that because of it I could reach out to Candy in a way I never would have known how before. I know how desperately I long for others to acknowledge my daughter’s life; to say her name, to not ignore that she was here for four and a half glorious months. So I listened carefully to the importance behind his chosen name, Beau Emmanuel. I prayed for a miracle, and I prayed for grace if that miracle didn’t come in the way we hoped. I anointed Candy’s beautiful belly with oil, and prayed for her and this delicate but lively little boy whose life could be seen and felt beneath her skin.

We prayed, we cried, we made memories. I helped her think of things she would need to plan a memorial service for him, and made keepsakes to have small daily reminders of his presence in their home. I implored her to lean in, embrace, and take hold of every remembrance she could, because some day when her belly had melted away, those memories would be the best of what she had left.

As the week count grew longer Beau surprised everyone by his determination and strength; he was holding on and fighting for day after day safe in his mommy’s womb. We wondered if he would make it all the way through after all. We smiled longingly at the thought that maybe, just maybe his parents would get to meet him while he still had breath in his lungs.

Despite our hopes, days came when Candy began to feel weary, tired, and sick. Beau’s movements slowed down until one morning his strong kicks had faded to stillness. Ultrasound confirmed his mighty little heart had ceased to beat. It was such heartbreaking news even after the long anticipation. It sank like rocks.  Again my mind marveled at Candy’s fortitude as she bravely and calmly faced the strenuous labor that would bear a newborn without a cry.

I was honored and humbled when Candy asked me to be present at his birth and capture his moments in photos; the only photos they would have of their youngest boy. I never hesitated; I knew it was a great responsibility, as I hold dear the photos I have of my own baby girl.

The day came, and with prayerful reflection and a pounding heart I slung my camera over my shoulder and headed for the hospital where only moments stood between the unknown and the reality of his appearance. It seemed so unnatural to behold the absolute quiet of a birthing room that usually was filled with the sounds of new life and great joy.

There was an intense peace that filled the room that could only have come from the hands of God. Candy’s gentle brokenness flowed down her cheeks as Dean stood near, beholding the beautiful, yet lifeless bundle of their son, Beau Emmanuel.

The next few hours were heavy and sweet as I clicked away, capturing these moments of hello and goodbye. Dean and Candy absorbed every detail and feature of their newborn as they helped wash, dress, and finally snuggle and kiss this little person who had already captured their hearts. It was an intimate, crushing, priceless, holy snapshot of eternity that I got to witness, as if standing on holy ground. It blessed me to try to give something, anything to another mama reaching for something to cling to in the life-shaking aftermath of losing a child, and how sweet for me to get to love on him and kiss his beautiful little cheeks.

Remember how I’ve said God doesn’t waste pain?  I hated, hated that someone I love was having to face this tragedy, but I was so grateful that God would use my pain, my healing, my hope, to come alongside my friend and help her survive the impossible just like I am; one day at a time.

Only days after Beau’s memorial service, Candy came to me looking for an outlet to share her story. This brave and compassionate woman already knows that she wants to help other moms going through what she is. Candy expressed how hard it was to have so many questions and unknowns about being pregnant with a baby with an unsurvivable diagnosis. She wants to minister to other moms by sharing her experience.

Here is a link to Candy’s new page: Click Here. Please stop in and read Candy’s story in her own words, and if you know other families dealing with a life-altering prognosis during pregnancy, please point them to her as well; they will surely find comfort and strength in her and her story.