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What’s Making Me Tick

I carry with me “get out of jail free” cards for whenever I am somewhere a metal detector is involved. Rumor has it if you listen closely enough, I actually tick. I digress… One of my cards is for the medication pump that delivers meds into my spinal fluid, one for the metal coils that are part of my G/J tube in my abdomen, my port usually gets “bomb-sniffed” just because it shows up even though it isn’t metal, and this week I added a new card to my stack. I have the opportunity to try out the Walk-Aide; a device strapped around my upper calf that allows me to lift the toes on my left foot without the use of the brace I have worn for the past 5 years. Intriguing and exciting to say the least, and I have a feeling it will be worth being one more part bionic.

I have been switched back and forth between several different kinds of AFO’s (ankle-foot orthoses) over the past several years, depending on the changing severity of my weakness and muscle spasticity. They have all had the same goal though; to provide lift to my toes and ball of my foot, which isn’t getting the message down the nerve from my brain. Without help I cannot completely clear my foot when I’m walking, which leads to lots of awkward tripping and stumbling. I managed to keep up for awhile, even finding a way to get a foot-drop brace crammed into my duty boots, but it hasn’t always been the most comfortable.

Enter this fancy new device called the Walk-Aide. After some playing around with where the electrodes need to be, my orthotist located the exact spot that the nerve is in my leg to tell my foot to lift. She then worked through trial and error to find just the right timing and intensity to provide electrical stimulation to the nerve enough to lift my foot for me every time I step. The shock is pretty intense and often surprises me, especially when I get up from sitting for awhile, but it’s a pretty incredible feeling to be able to walk around barefoot, in my favorite shoes, or *gasp* in sandals without a bulky brace. I have been buying bigger shoes and work boots in order to accommodate my braces the last several years, and have had to completely avoid things like well, pretty much all pretty shoes and things like flip flops and sandals. Needless to say, I’m pretty stoked at the idea of being to wear whatever shoes (or no shoes!) I want, and still be able to walk in a more normal gait pattern.

They are letting me trial it for a little over a month, so I’m hoping that will give me time to adjust to the discomfort of the stim, start waking up some of the muscles I haven’t used in awhile, and give my hip and thigh a break from doing all the week. The deepest hope is that my health insurance will acknowledge the benefit and agree to help with the cost. If not, and I still decide it’s worth working for, my big girl and I have decided to do some art and projects and stuff to sell to earn the money needed to buy the device for me without the help of insurance.

Today, my leg is absolutelyfreakingexhausted from walking around with it for various chunks of time. I’m committed to seeing it through though, and excited for the potential change that will make one more thing easier and more functional for me. Stay tuned!

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